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by O Stoma Mia
Mon Oct 25, 2021 7:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Incision pain 12 days after surgery
Replies: 19
Views: 3824

Re: Incision pain 12 days after surgery

No codes but this is the description of what they did in the surgery. From the operative report. OPERATION: Colonoscopy to cecum. Laparoscopic hand-assisted sigmoid colectomy with coloproctostomy. Rigid proctosigmoidoscopy. ANESTHESIA: General. The description of your surgery looks a litle incomple...
by O Stoma Mia
Sat Oct 23, 2021 11:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rise in CEA
Replies: 21
Views: 5310

Stage III-C: Recent rise in CEA

Thank you for setting up a signature page. That should help. However, there are some important items missing in your initial signature, namely: Tumor type: , Adenocarcinoma; villous adenoma; signet ring-cell carcinoma, etc. Tumor size (in mm or cm) Tumor grade: G1: Well differentiated (low grade) G2...
by O Stoma Mia
Sat Oct 23, 2021 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rise in CEA
Replies: 21
Views: 5310

Stage III-C: Recent rise in CEA

... Also, are there any recent survival statistics or recurrence rates that have been posted? Sorry for the questions but as most people have commented, just worried... There are many Stage III-B patients here who successfully managed to avoid recurrences. They followed the Three Pillars of Survivo...
by O Stoma Mia
Sat Oct 23, 2021 1:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rise in CEA
Replies: 21
Views: 5310

Re: Rise in CEA

Another point: You should create a proper signature to go at the bottom of each of your future posts so that people can see the history and status without having to scroll back to previous posts where the details were originally mentioned. Signatures are limited to 512 characters, including spaces. ...
by O Stoma Mia
Sat Oct 23, 2021 6:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rise in CEA
Replies: 21
Views: 5310

Re: Rise in CEA

Welcome to the forum. Here is some information on CEA. A 2019 overview of CEA (Carcinoembryonic Antigen) https://www.verywellhealth.com/carcinoembryonic-antigen-cea-797561 "In addition, CEA levels may not reflect what is happening with a tumor at the current time. As cancer cells die, CEA is re...
by O Stoma Mia
Sat Oct 23, 2021 6:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: List of chemo drugs approved for colorectal cancer (2021)
Replies: 2
Views: 3719

Re: List of chemo drugs approved for colorectal cancer (2021)

I might well be wrong here, but am I right in thinking the triplet protocol for CRC would be FOLFOXIRI, not FOLFIRINOX? Although the drugs are the same, the protocol dosages/frequencies are different, and I believe FOLFIRINOX is mainly used for pancreatic cancer. Rock_Robster - Thanks for the heads...
by O Stoma Mia
Sat Oct 23, 2021 2:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy
Replies: 1
Views: 978

Re: Immunotherapy

In the link below you will find some of the treatments approved in the US for colorectal cancer in 2021, along with the main genetic mutations and other restrictions for use, if any. The treatments ending in suffix "-mab" are monoclonal antibodies and therefore fall in the general categori...
by O Stoma Mia
Sat Oct 23, 2021 12:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Incision pain 12 days after surgery
Replies: 19
Views: 3824

Re: Incision pain 12 days after surgery

Since you are still having pain and still asking for feedback, I think it would be good if you could provide a little more information in the following areas. This might help people focus on the problem. ⋅  Types of surgical procedures actually done on October 4 You said that you had a &qu...
by O Stoma Mia
Fri Oct 22, 2021 12:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Telephone appointment with my GI
Replies: 12
Views: 5784

Re: Telephone appointment with my GI

Question: When you were talking to the gastroenterologist, did he ask you whether you slept on your right side or on your left side? If you sleep on your left side, the heart will have an easier time pumping blood into the left ischemic colon.
by O Stoma Mia
Fri Oct 22, 2021 2:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU maintenance chemo even though NED - thoughts/opinions appreciated
Replies: 29
Views: 6972

Random Doctors

Thank you for the update. I'm sorry to hear that you are having to deal with "random doctors". In such circumstances you really need to start on a "Plan B" -- which you are already doing. The "Plan A" in your type health system is essentially a "one-size-fits-all&q...
by O Stoma Mia
Thu Oct 21, 2021 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Telephone appointment with my GI
Replies: 12
Views: 5784

Re: Telephone appointment with my GI

It's good that you had a pleasant phone call with the gastroenterologist.

Did you manage to get all of your questions answered satisfactorily?

Do you have enough information now to allow you to avoid ischemic crises in the future?
by O Stoma Mia
Wed Oct 20, 2021 2:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Telephone appointment with my GI
Replies: 12
Views: 5784

Re: Telephone appointment with my GI

I have a suggestion. Why don't you apply for a full-time job in Fredericton, so that you can have a better standard of living, more flexibility, and can then afford a wider range of health care options? Since you have good writing skills, computer skills, and experience with several social media pla...
by O Stoma Mia
Wed Oct 20, 2021 3:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 31
Views: 15077

Re: In need of metastasis education

... Take my husband, who’s a bit if an oddity on this forum. He may not even have CRC but small bowel adenocarcinoma, which is rare and treated like CRC; as far as i know he’s the only one (of active members) who had no primary. His oncologist’s theory is that it invaginated = was tiny and got dest...
by O Stoma Mia
Tue Oct 19, 2021 2:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU maintenance chemo even though NED - thoughts/opinions appreciated
Replies: 29
Views: 6972

Batson's plexus

It's all a big mystery, as far as I can tell. I really wondered about the pattern of spread for my husband. I found interesting articles citing Batson's plexus as a possible way for spread to the spine, but since he eventually developed lung mets (who knows, maybe they were already there but so tin...
by O Stoma Mia
Tue Oct 19, 2021 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU maintenance chemo even though NED - thoughts/opinions appreciated
Replies: 29
Views: 6972

Re: 5FU maintenance chemo even though NED - thoughts/opinions appreciated

Good luck with your meeting with the oncologist today. Let us know what you find out.

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