Just curious, since we seem to be on similar paths - why Irinotecan only? That is the drug from the devil for me, and ONC has reduced it by 40% over the last 2 treatments. He was telling me that the drug of choice for maintenance for me would be the 5FU. Good question - I have tried 5-FU + Avastin ...

This article is a little old, but as a person that experienced different, "rare", 5FU side effects, you might want to read it..
http://www.ro-journal.com/content/pdf/1 ... -7-212.pdf

Regards,

Connie K.

I'm St. Louis born and raised....Go CARDS! Not so good on stats, but I go to games and follow them. Going to see them Wed evening.

Connie K.

Sorry to hear of his passing. Another one taken too young. I really hate this.

Condolences to his family,

Connie K.

Hi CRGuy, From what I understand, the contrast dye injector they used is under pressure designed to work sort of automatically with a power port....things didn't start leaking/flooding me until the cap blew off the IV line and from what the tech said, none of it went into me because he wasn't seeing...

Kenny, you crack me up....

Hi Olivia,

We haven't talked directly, but we've been part of the same conversations and I miss your voice and sweet face. Sending positive wishes, prayers and hugs.

Connie K.

Hello Maia,

I just wanted to express my sympathy for your loss. Keeping you in my thoughts and prayers.

Connie K.

So Connie, would that be sbrt round three? I feel like I have a little weeziness from mine. Do you have any side effects from it? Hell, at least it's only two! Right? Technically, yes, I guess. Last summer I had a a spot that came back after chemo and caused me rib pain (turns out, it broke the rib...

Glad your scans came back good, you seem to be putting up with enough stuff right now, you don't need that too. Just remember to take care of yourself, also.

Connie K.

Yeah Kenny, a couple of new spots, too small to biopsy (not that I'd bother), so we're "watching" them, next CT in May. Regular (chemoguy) oncologist says if the spots grow, he thinks we probably should go back to chemo and I think he's a fan of the " ***imabs" drugs which I've a...

It contrast dye spills/leaks outside the body, such that you find yourself laying in it.......will the CT possibly detect any of the dye outside the body? Does anyone know?

Connie K.

Hi Kenny, I haven't been around much lately, it's been crazy here. Sorry to hear about the new "findings". Anyway, I see your second opinion led you to your answer. I'll just add that you're doing what I would do. Maybe the the CEA is an abberration. My CEA barely changes whether there's s...

I understand the anxiety, seems our brains don't know when to shut the "F" up. I'll admit to using the occasional xanax to get to sleep (sometimes more often). It works for me and doesn't seem to cause any dependency or morning "hangover" in my case. I don't know if my signature ...

I like the "Chemo made me do it" shirt ....my friends would get a giggle out of that one.

Connie K.