OSM, good to see the post and when I think back to all the help you have supplied to those that use this forum over the years, you have been a very big presence indeed. Hope to see many more posts like this in the future
Congrats DE, 10 years is a massive milestone. Do you feel like you have put cancer in the rearview mirror? I am so happy to see posts like this, from people that were facing the same issues as I did at a similar sort of time
Getting advice from strangers on a colorectal cancer site when your primary was your appendix is a strange place to look for advice. However, I do understand where you are coming from. In my personal experience it come down to how you want to face the remaining time you have, no matter the outcome o...
Hi there, 1st of all, congratulations on being in a position to worry only about the after effects of surgery. Interesting that you were on Humira for Rheumatoid Arthritis. I had taken Humira for Psoriasis. After about 1 year I moved to Ustekinaumab (known as Stelara) which was doing a good job of k...
Hey, good to see your post and I am glad that an oldie is on posting like this. I too remember you from the past and am happy to see you are doing well. I think we all agree that Eric was a legend and his motto helped me too, and I am sure many others. Loosing him was a big loss to the entire CC Com...
It's been about 10 years since I had FOLFOX in what goes for our Winter in Sydney but I was like hot black bean teas as I couldn't do cold drinks and I kind of went off coffee (decaf if you count that as coffee). The neuropathy gradually got worse until about rounds 9 & 10 were so bad I couldn't...
Hi All Just thought I would share with you the belated 10th anniversary of my diagnosis with stage IV rectal cancer. Just over 10 years ago my wife & I had just had our 11th wedding anniversary, and bought our "dream home" when after Mrs Kiwi's loving reminders (I would never say naggi...
Hi, Sorry you had to join this club, kinda sucks to join and once you join it you tend to want to unjoin as soon as possible. I am not familiar with the regime you are taking as I had FOLFOX via a port I had installed in my chest. However the oxaliplatin is effects are cumulative and get harder as y...
Hi OSM Amazing to hear that and I still sometimes lurk around here, but I thought after seeing this that I had to actually log in and comment. My sincere congratulations on this result and I wanted to thank you for the cool, calm, logical and reassuring presence you have always been on this board. S...
Rob My oncologist sounds similar to yours. I was in a small cohort where my lung resection meant that I had no visible disease and he said the same as yours, there was no scientific evidence to support chemo, but there wasn't any evidence to rule it out so the decision was mine. OK, he kind of tactf...
I'm nowhere near the longest stage 4 but upon reading this I realized that I am now up to 9.50 years. My goal when I was diagnosed was to beat the estimate of 2 years so I am pretty happy to still be here and well at the moment. Makes me sad to see all those that are no longer with us.
I only ever contacted Julie via the PM's and talked to her a few times as I felt that her and I had some similarities, especially in relation to lung involvement (and running). She was still pretty active on this site but mentioned a few things that suggested she was transitioning from being a cance...