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by kiwiinoz
Wed Jul 02, 2025 10:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 12 years ago today ...
Replies: 6
Views: 39370

Re: 12 years ago today ...

OSM, good to see the post and when I think back to all the help you have supplied to those that use this forum over the years, you have been a very big presence indeed.
Hope to see many more posts like this in the future :D
by kiwiinoz
Sat Nov 30, 2024 7:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I was 10 year cancer free on November 20th!
Replies: 10
Views: 3555

Re: I was 10 year cancer free on November 20th!

Congrats DE, 10 years is a massive milestone.
Do you feel like you have put cancer in the rearview mirror?
I am so happy to see posts like this, from people that were facing the same issues as I did at a similar sort of time :D
by kiwiinoz
Sat Nov 30, 2024 7:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: chemo or not at almost 83
Replies: 7
Views: 1078

Re: chemo or not at almost 83

Getting advice from strangers on a colorectal cancer site when your primary was your appendix is a strange place to look for advice. However, I do understand where you are coming from. In my personal experience it come down to how you want to face the remaining time you have, no matter the outcome o...
by kiwiinoz
Mon Sep 30, 2024 6:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10++ years and counting ...
Replies: 18
Views: 11640

Re: 10++ years and counting ...

May those anniversaries keep coming OSM :D
by kiwiinoz
Tue Aug 13, 2024 2:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rock Robster
Replies: 18
Views: 14942

Re: Rock Robster

No, too sad. Logged in for the 1st time in a while and so completely sad to read this.
Best wishes to his family and friends
by kiwiinoz
Tue Mar 19, 2024 7:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member - Looking for Some Reassurane
Replies: 5
Views: 3663

Re: New Member - Looking for Some Reassurane

Hi there, 1st of all, congratulations on being in a position to worry only about the after effects of surgery. Interesting that you were on Humira for Rheumatoid Arthritis. I had taken Humira for Psoriasis. After about 1 year I moved to Ustekinaumab (known as Stelara) which was doing a good job of k...
by kiwiinoz
Mon Mar 04, 2024 7:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I was so lucky to find this forum a decade ago
Replies: 4
Views: 5119

Re: I was so lucky to find this forum a decade ago

Hey, good to see your post and I am glad that an oldie is on posting like this. I too remember you from the past and am happy to see you are doing well. I think we all agree that Eric was a legend and his motto helped me too, and I am sure many others. Loosing him was a big loss to the entire CC Com...
by kiwiinoz
Thu Jan 11, 2024 11:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy from FOLFOX?
Replies: 11
Views: 5491

Re: Neuropathy from FOLFOX?

It's been about 10 years since I had FOLFOX in what goes for our Winter in Sydney but I was like hot black bean teas as I couldn't do cold drinks and I kind of went off coffee (decaf if you count that as coffee). The neuropathy gradually got worse until about rounds 9 & 10 were so bad I couldn't...
by kiwiinoz
Tue Dec 19, 2023 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 years cancer free stage 4
Replies: 6
Views: 5044

Re: 3 years cancer free stage 4

Fantastic news, always like these good news updates and look forward to many more from you
by kiwiinoz
Wed Dec 07, 2022 11:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 years & 3 days since diagnosis
Replies: 18
Views: 10682

10 years & 3 days since diagnosis

Hi All Just thought I would share with you the belated 10th anniversary of my diagnosis with stage IV rectal cancer. Just over 10 years ago my wife & I had just had our 11th wedding anniversary, and bought our "dream home" when after Mrs Kiwi's loving reminders (I would never say naggi...
by kiwiinoz
Sun Nov 13, 2022 7:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here
Replies: 12
Views: 4089

Re: New here

Hi, Sorry you had to join this club, kinda sucks to join and once you join it you tend to want to unjoin as soon as possible. I am not familiar with the regime you are taking as I had FOLFOX via a port I had installed in my chest. However the oxaliplatin is effects are cumulative and get harder as y...
by kiwiinoz
Wed Sep 28, 2022 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10++ years and counting ...
Replies: 18
Views: 11640

Re: 10 years and counting ...

Hi OSM Amazing to hear that and I still sometimes lurk around here, but I thought after seeing this that I had to actually log in and comment. My sincere congratulations on this result and I wanted to thank you for the cool, calm, logical and reassuring presence you have always been on this board. S...
by kiwiinoz
Tue Jun 28, 2022 3:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for the brains trust!
Replies: 9
Views: 2968

Re: Question for the brains trust!

Rob My oncologist sounds similar to yours. I was in a small cohort where my lung resection meant that I had no visible disease and he said the same as yours, there was no scientific evidence to support chemo, but there wasn't any evidence to rule it out so the decision was mine. OK, he kind of tactf...
by kiwiinoz
Wed Jun 01, 2022 9:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Who are the longest stage 4 survivor's on here?
Replies: 136
Views: 86568

Re: Who are the longest stage 4 survivor's on here?

I'm nowhere near the longest stage 4 but upon reading this I realized that I am now up to 9.50 years. My goal when I was diagnosed was to beat the estimate of 2 years so I am pretty happy to still be here and well at the moment.
Makes me sad to see all those that are no longer with us.
by kiwiinoz
Tue May 17, 2022 1:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: juliej?
Replies: 12
Views: 8170

Re: juliej?

I only ever contacted Julie via the PM's and talked to her a few times as I felt that her and I had some similarities, especially in relation to lung involvement (and running). She was still pretty active on this site but mentioned a few things that suggested she was transitioning from being a cance...

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