Can anyone provide clarification. There has been no treatments since the end of 2017. Doctor has never declared remission (stage 4) but since this time period all scans have said calcified lymph node unchanged not lymphadenopathy by size criteria (was cancerous and has had radiation to area in 2017-...

Hello everyone, DH is still stable after a stage 4 diagnosis in 2012. After reviewing paperwork we’re now going on 3 years stable. There has consistently been nothing present in his body except for a distant calcified lymph node that has not changed size in the 2-3 years. His dr has moved him for th...

Hello all, DH has had a cough for over a month and a half. Not anything serious but when stage IV it’s hard not to worry about spread. Had scan at the end of September all was stable. Went to GP about cough and given antibiotics which did nothing for the cough. Called oncologist to see if they thoug...

Thanks for your response. They actually never biopsied them except for the ones removed during the original colon resection in 2012. At the time he had 2 large distant lymph nodes remaining that could not be touched do to close proximity to aorta. They have essentially stayed there and occasionally ...

Hello everyone. DH has been stage 4 since 2012 diagnosis. He has been stable for several years , since 2016, and has been off all treatment for an entire year. The dr has moved him to yearly scans vs every six months and asked if he’d like his port removed. He is Leary on removing it if he will need...

Hello everyone DH has been stable and off treatment for over a year following several years of treatment, stage 4 diagnosis,spread to metastatic lymph nodes and tissues along the spine and Aditya, etc. His oncologist suggested today to remove his port. We were in such a hurried state that we didn’t ...

Sorry for the confusion... I was referring to individuals that are NED for 5 years are considered cured.. But what about those who are stable after 5 years is stability after five years considered remission? His nodes are unable to be surgically removed because there are too many and they are very s...

DH is approaching 4 years since diagnosis. He has never had a NED scan but has had stability for over a year. My question is, is the 5 year rate dependent on NED before they allow you to be off chemo and consider you in remission or is that only relevant if you've remained at the NED mark for those ...

Thank you, makes perfect sense now! I will start asking for the radiologists report thank you both!

Can anyone here give me insight on to what exactly a stable scan is. I hear doctors refer to a scan where they can't find anything in a normally healthy persons scan as "stable" but for those with cancer is it different? DH is stage 4 and has no end to treatment in sight. However, at every...

Rob your story is very familiar to that of my DH's . You almost have had identical node locations I'd like to give you some hope and let you know my DH is over 3 years into treatment and still has a very active and full life with no end in sight. Most people would never even notice he is undergoing ...

Does anyone have any stories about anyone who has never been NED but has long term outcomes while still going through therapy? DH is over the 3 year mark and fortunately there appears to be no end in sight anytime soon!!

Has anyone ever felt pretty well, no new pains, symptoms, and possibly even better than normal but still have a scan where something is significantly worse? DH has been feeling good aside from his normal aches and pains from past radiation, bone mets, etc but the dr scheduled his results appt up to ...

DH was off chemo 8 weeks while receiving radiation. Has anyone experienced spread while on such a short break?!

Ok ladies here's my story. When I was 24 my DH age 34 began experiencing pain the doctors kept mis diagnosing as IBS etc until someone finally did a CT scan and discovered the tumor. After surgery was told stage 3A but there was swollen lymph nodes on scan further up In the body. After a pet was don...