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by taexali
Sun Feb 04, 2024 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LARS. Any tips?
Replies: 15
Views: 2423

Re: LARS. Any tips?

For males 60+ with LARS here’s what I did: Cut back on food and reduce it to the absolute minimum to survive. If that fixes it, then slowly add back foodstuffs gradually to find the food that causes LARS problems and simply avoid eating it. I cannot overeat no matter what my diet is: I must always b...
by taexali
Tue Aug 29, 2023 3:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tough decision - your input welcome!
Replies: 27
Views: 5725

Re: Tough decision - your input welcome!

LARS not accepted for "Compassionate Allowance" by SSA SSA response in italics: RE: CAL Condition Suggestion: Low Anterior Resection Syndrome Compassionate.Allowances@ssa.gov. * To:xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx * Cc:Compassionate.Allowances@ssa.gov Tue 8/29/2023 1:04 PM Thank you for ...
by taexali
Tue Jul 11, 2023 8:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 16 years
Replies: 6
Views: 1341

16 years

16 years since diagnosis
by taexali
Sun Jan 01, 2023 12:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 years & 3 days since diagnosis
Replies: 18
Views: 7434

Re: 10 years & 3 days since diagnosis

Good luck and best wishes for 2023.

Taexali
by taexali
Mon Nov 07, 2022 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Who are the longest stage 4 survivor's on here?
Replies: 136
Views: 73402

Re: Who are the longest stage 4 survivor's on here?

Male 76 yrs. DX 7/2007 at age 60 with Stage IVa Rectal with mets to lung 8/2007 to 9/2007 Chemo (Fufa?) & Radiation 12/2007 LAR + Colonic J-Pouch + Ileo 1/2008 to 9/2008 Chemo (Oxaliplatin) 15 Sessions! 11/2008 Ileo reversal 5/2009 Left lower lobectomy 11/2021 Still NED, 01/21, 1/22,.... Skin Ca...
by taexali
Tue Jun 07, 2022 6:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Who are the longest stage 4 survivor's on here?
Replies: 136
Views: 73402

Re: Who are the longest stage 4 survivor's on here?

DX Stage 4 rectal + mets to lung.

Still going strong at 74!

Good luck & best wishes to all!
by taexali
Fri Sep 25, 2020 5:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peristalsis/tenismus pain 5 months post takedown
Replies: 3
Views: 1873

Re: Peristalsis/tenismus pain 5 months post takedown

I had similar, but worse, symptoms one year after my ileostomy takedown, and they were caused by an abdominal adhesion, and I was hospitalized for two days. The ER doctor told me that the scar tissue from the ileostomy was the source of the problem, and my intestines had closed up. I had become care...
by taexali
Sun Aug 11, 2019 12:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Black/red specks or flakes when wiping
Replies: 1
Views: 788

Re: Black/red specks or flakes when wiping

Hang in there until you get the colonoscopy results. I went through this in 2007.

Please keep us updated.

Male 73 years, DX Stage 4 rectal/lung in June 2007 at age 60. Now 10+ years NED.
by taexali
Tue Nov 21, 2017 4:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 33 year old - Stage 4 - no family history
Replies: 13
Views: 3136

Re: 33 year old - Stage 4 - no family history

Hi ftp123, I’m very sorry to read about your cancer. I spent 4 years of misdiagnosis before it became very obvious early in 2007 that I wasn’t suffering from hemorrhoids/IBS/stress/depression/dysentery/etc., and instead I had a very bad case of stage 4A rectal cancer with lung mets. Fortunately by c...
by taexali
Sat Jun 24, 2017 12:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any survivor of 4th stage Metastasis Colorectal Cancer in Lungs of_My husband of age 28 years
Replies: 9
Views: 4339

Re: Any survivor of 4th stage Metastasis Colorectal Cancer in Lungs of_My husband of age 28 years

Male diagnosed with stage 4 rectal + mets to lung on 11th July 2007 at age 60. Radiation, chemo, surgery, more chemo, more surgery etc from Aug 2007 to October 2009. Low anterior resection and colonic J-pouch, and a left lower lobectomy, as well as miscellaneous other surgical procedures. No longer ...
by taexali
Fri Oct 24, 2014 12:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any J-pouchers been able to put on weight?
Replies: 8
Views: 2229

Re: Any J-pouchers been able to put on weight?

M 68 DX Stg IV (rectal + mets to lung) @ age 60 July 2007 LAR/Lobectomy/Rad/Chemo/Ileo/etc., etc. Colonic J-Pouch in 2008 Now NED My weight dropped from 200 lbs in 2007 to 170 lbs. in 2008. But nowadays I have problems keeping it below 220! It might also take time for your weight to recover. Best of...
by taexali
Thu Apr 04, 2013 1:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Survivors - Can you update us on your progress
Replies: 153
Views: 28288

Re: Stage 4 Survivors - Can you update us on your progress

Male, age 66

DX Stage 4 rectal & lung on 7/2007.

LAR, lobectomy, radiation & chemo..

Currently NED
by taexali
Fri Jan 25, 2013 6:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV with 1 (I hope) met to the lung looking for advice
Replies: 23
Views: 3884

Re: Stage IV with 1 (I hope) met to the lung looking for adv

Hi Kiwi, I've never had any breathing problems since they removed my lower left lobe about three years ago. Prior to the lobectomy I had several months of chemo (oxaliplatin). Roughly speaking, all my medical treatments lasted for about two years from the initial diagnosis. But I am now I am reasona...
by taexali
Thu Jan 24, 2013 11:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV with 1 (I hope) met to the lung looking for advice
Replies: 23
Views: 3884

Re: Stage IV with 1 (I hope) met to the lung looking for adv

Male 66 Stage 4 Rectal with mets to lung DX Jul 2007 Radiation from Aug 2007 to Oct 2007 Misc chemo from August 2007 to September 2008 December 2007 - LAR + Colonic J-Pouch + Ileostomy Nov 2008 - Ileo reversal May 2009 - Lower left lobectomy - Open surgery I had open surgery for my lobectomy at age ...

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