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by Jack&KatiesMommy
Fri Jul 16, 2021 1:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: UPDATE: Rising CEA
Replies: 10
Views: 1989

Re: UPDATE: Rising CEA

Congratulations on the recovery and continued response to Keytruda. This brings to mind some research I've read in the last month or so concerning turning tumors that are infiltrated with immune cells and resistant to them had high activity of the gene monoamine oxidase A. This is the gene that pro...
by Jack&KatiesMommy
Thu Jul 15, 2021 1:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: UPDATE: Rising CEA
Replies: 10
Views: 1989

Re: UPDATE: Rising CEA

Most recent blood draw at Keytruda infusion: CEA .9. So far so good.
by Jack&KatiesMommy
Thu Jun 24, 2021 11:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: UPDATE: Rising CEA
Replies: 10
Views: 1989

UPDATE: Rising CEA

Sorry for the delay in updating. I know I always follow everyone's stories for many reasons...but mostly to be sure that they are okay and to better understand (at least antidotally) what options there are for different cancer situations. I ended up having a PET/CT scan that showed an enlarged and &...
by Jack&KatiesMommy
Tue May 04, 2021 8:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rising CEA After 2 1/2 Years on Keytruda
Replies: 22
Views: 6746

Re: Rising CEA After 2 1/2 Years on Keytruda

Hi everyone...sorry to not bring news earlier. My PET showed an enlarged lymph node near my esophagus (the same one that was enlarged 2 years ago but that decreased to normal size and SUV right before I was scheduled to have it surgically removed. The Keytruda either killed the cancer that was growi...
by Jack&KatiesMommy
Wed Mar 31, 2021 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mum needs prayers
Replies: 27
Views: 5201

Re: My mum needs prayers

I am praying for your Mom. Prayers do work and I am praying for a miracle for her.
Love,'
Cynthia
by Jack&KatiesMommy
Tue Mar 30, 2021 5:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rising CEA After 2 1/2 Years on Keytruda
Replies: 22
Views: 6746

Re: Rising CEA After 2 1/2 Years on Keytruda

Thank you everyone. I so appreciate all of your encouraging thoughts. I have my PET scheduled for this Thursday...I'll let you know after I get the results. ((HUGS))
Cynthia
by Jack&KatiesMommy
Sun Mar 28, 2021 4:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 11 year Check In-Stage IV
Replies: 4
Views: 1176

Re: 11 year Check In-Stage IV

So very happy to see this update Mattie!!!!
Cynthia
by Jack&KatiesMommy
Sun Mar 28, 2021 8:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rising CEA After 2 1/2 Years on Keytruda
Replies: 22
Views: 6746

Re: Rising CEA After 2 1/2 Years on Keytruda

Hi Cynthia, While CEA surges are scary they do not necessarily mean you have progression. CEA can flare up with inflammation. I guess you should get a CT scan as soon as possible to confirm or hopefully discard progression. Have you discussed this CEA increase with your oncologist? For what´s worth...
by Jack&KatiesMommy
Sat Mar 27, 2021 8:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rising CEA After 2 1/2 Years on Keytruda
Replies: 22
Views: 6746

Rising CEA After 2 1/2 Years on Keytruda

Well after 2 1/2 years (with minor CEA rises slowly rising to 5.0 or 5.2 over several months and then dropping back down to 1.2 or lower—every year for the last 2 1/2 years during the winter months) my CEA now has now risen to 6.8. So I am so scared that this will be it. For the last 2 1/2 years I h...
by Jack&KatiesMommy
Tue Oct 13, 2020 2:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Eight years and counting ...
Replies: 12
Views: 1885

Re: Eight years and counting ...

How wonderful!!!!! So happy to see and hear this! Please fill out your signature with your diagnosis and what you have gone through so that others looking for hope can see that this is possible!!!
Cynthia
by Jack&KatiesMommy
Mon Oct 12, 2020 7:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good News!
Replies: 9
Views: 2423

Re: Good News!

I would call hospitals now to see what you need to do to get a second opinion there. I have been to MD Anderson, and a local cancer center (in Columbus Ohio where I live) and Memorial Sloan Kettering. I highly suggest contacting MSK....to get the ball rolling now.....the sooner you can get that othe...
by Jack&KatiesMommy
Mon Oct 12, 2020 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After a year of FOLFOX, switching to FOLFIRI - hope to get to resecting liver
Replies: 14
Views: 1913

Re: After a year of FOLFOX, switching to FOLFIRI - hope to get to resecting liver

Matt
Where are you being treated? Can you get a second opinion at Memorial Sloan Kettering if you aren’t already seen there?

Cynthia
by Jack&KatiesMommy
Mon Oct 12, 2020 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Total Pelvic Exenteration
Replies: 11
Views: 2225

Re: Total Pelvic Exenteration

Shaina You are an amazing person to go through this (as a Mom, I know how your children give you the strength to fight and live beyond what can be imagined.). Thank you for coming here to share your story...honestly. I was told when I was 46 years old with an 8 year old and a 4 year old that I had 1...
by Jack&KatiesMommy
Fri Oct 09, 2020 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I got a call to go right to the ER
Replies: 12
Views: 3274

Re: I got a call to go right to the ER

Just wanted to check in and see how you were doing. Been thinking about you and your sweet son.
Cynthia
by Jack&KatiesMommy
Fri Oct 09, 2020 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good News!
Replies: 9
Views: 2423

Re: Good News!

Paradise....before I relaxed, I would get a second opinion from a board certified colorectal oncologist. I have never heard of anyone being cured through cehemo alone. Generally it is used to shrink the cancer to a controlled level so that the areas of cancer can be surgically removed. I think belie...

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