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by rp1954
Tue Feb 07, 2023 5:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC Stage IV mets to LV and LN - what can we do more?
Replies: 23
Views: 360

Re: mCRC Stage IV mets to LV and LN - what can we do more?

bleeding We included 1 - 5 grams per day for mucosal / GI lining with buffered vitamin C, K2, glucosamine and some zinc carnosine for stomatitis. Direct application on wounds, hold for 5 min, swished swallowed. Our ND doctor advice to try off-label Testosterone to raise Hemoglobin. I have no idea a...
by rp1954
Sun Feb 05, 2023 2:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC Stage IV mets to LV and LN - what can we do more?
Replies: 23
Views: 360

Re: mCRC Stage IV mets to LV and LN - what can we do more?

You are treatment limited by any critical parameter - e.g. WBC, Hgb, platelets, etc. RBC is already pretty thin, presumably by chemo. Your wife is likely to hit her limits on 1chemo or radiation tx. Sequential surgeries are best if you can get them. At one time Canada had or was working on a Rolles ...
by rp1954
Thu Feb 02, 2023 9:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver mets are back; what’s next….
Replies: 21
Views: 989

Re: Liver mets are back; what’s next….

Chemo, modified FOLFOX (no Oxaliplatin, no Avastin, no Irinotecan) will begin Monday. (Other chemo drugs will be added as needed after the PET and once a path has been established, there is a focus on QoL no oxi-, no iri-, no Avastin .... all that is left is basic 5FU - LV with aa loose promise of ...
by rp1954
Tue Jan 31, 2023 8:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Proteinuria from bevacizumab
Replies: 2
Views: 4866

Re: Proteinuria from bevacizumab

Might be worth while to shop several naturopaths and integrative/orthomolecular/functional medicine MD/DO drs for nutraceutical kidney support. I seldom find a full set of good answers in one spot. ~20 years ago, after a trainwreck with a soon withdrawn antibiotic for refractory bronchitis, I had ri...
by rp1954
Tue Jan 31, 2023 7:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 75
Views: 34255

heaviness

Looks like you’re always on top of things beach sunrise! I just wanted to add that my husband did Folfiri/Avastin for his many small lung nodules (I think the largest one was 5mm), he finished systemic chemo over 3 years ago and his lungs have been clear since, no recurrence there, so there’s somet...
by rp1954
Sat Jan 28, 2023 5:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 75
Views: 34255

Re: PET/CT tomorrow

Lung surgeon wants SBRT asap but onc wants to wait until another scan in March to see if these 5mm nodes have grown. He mentioned again tapering off xeloda and I said NO NO NO. He said he's never had a patient so unusual. . Lungs and Xeloda are, of course, different than my wife's para-aortic LN wi...
by rp1954
Fri Jan 27, 2023 11:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver mets are back; what’s next….
Replies: 21
Views: 989

Re: Liver mets are back; what’s next….

"Also keep in mind that I’m not asking for medical advice; I’m just searching for clues. Anything that can trigger additional questions for her specialists." Several consults are always a good idea, lots of spread in information getting to thorough coverage. I tend to try to grill some for...
by rp1954
Tue Jan 24, 2023 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver mets are back; what’s next….
Replies: 21
Views: 989

parameters

what were the shot timings on her covid vaccination series? what was the original story on not using Avastin before the PE? (obviousoy there 6 week zones for surgery etc) what d-dimer and hypercoagulability data/dates do you have? There is a lot of crucial and incremental treatment information possi...
by rp1954
Sat Jan 21, 2023 12:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV RC GUYS AND GALS
Replies: 19
Views: 1116

Re: STAGE IV RC GUYS AND GALS

Early lung mets often are not particularly large contributors to CEA levels vs interferences. Also your CEA may not be your best marker. Clearly your CEA range is lower than the CRC average. There are several directions for making blood work more meaningful, or to at least clarify the story. 1. Moni...
by rp1954
Fri Dec 23, 2022 5:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly Diagnosed- Stage IV
Replies: 12
Views: 1081

Re: Newly Diagnosed- Stage IV

Rp, I need to get back on chronomodulated. I tired it but it for a month but was beginning HFS I think? Weird foot sensations and hands began with some skin peeling. Never experienced that before so ya it freaked me out. You're plowing though the HFS grades and need to start sooner. https://www.onc...
by rp1954
Thu Dec 22, 2022 5:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly Diagnosed- Stage IV
Replies: 12
Views: 1081

Re: Newly Diagnosed- Stage IV

Chronomodulated xeloda could be an important aspect of ADAPT+++ (ADAPT++++?), to deliver more chemo, better. Chronomodulation also allows higher daily doses, taken in 2-3 unequal doses, aimed for more cancer inhibitory timing. The best +'s combined allow xeloda doses that ordinary oncology simply ca...
by rp1954
Tue Dec 20, 2022 4:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly Diagnosed- Stage IV
Replies: 12
Views: 1081

Re: Newly Diagnosed- Stage IV

Do you have any recommendations as to what additional testing/data needs to be obtained? see my Initial Recommendations posts. Should we consult with an Integrative Medicine specialist on this? average is probably consulting several ND for supplements, use 1-2; an oncologists, and have 1-2 other MD...
by rp1954
Sun Dec 18, 2022 6:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly Diagnosed- Stage IV
Replies: 12
Views: 1081

Re: Newly Diagnosed- Stage IV

Be sure what conditions that they'll operate on the liver mets and/or lymph nodes, with both present initially. Otherwise you get an unnecessary chemo vacation if they balk before surgery, that loses ground more quickly to mets and progression. Normally they don't operate with multisite mets but som...
by rp1954
Fri Dec 16, 2022 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need surgeon recommendations - stage 4c
Replies: 8
Views: 763

Re: Need surgeon recommendations - stage 4c

First, you do have to find surgeons that do, do more difficult surgeries, These can be regional and national stars that are hospital, department or program heads. On another track, some are younger more ambitious with some kind of track record. You have to hunt and ask around. Second, patients need ...
by rp1954
Wed Dec 14, 2022 9:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda dosing
Replies: 18
Views: 9310

Re: Xeloda dosing

How far back do your various inflammation series go? e.g. CRP, ESR, fibrinogen, D-dimer, IL6, IL8, ceruloplasmin, ferritin

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