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by rp1954
Sat Jul 31, 2021 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: On Folfox, just learned I was exposed to covid
Replies: 9
Views: 172

Re: On Folfox, just learned I was exposed to covid

I would consider doing ivermectin and higher dose vitamin D3 to reduce inflammation, viral activity, spike protein effects, and improve immunity, but you'll likely need an outside doctor with specialized interests for that. Some patients and drs may have relevant prior 5FU/folfox - ivermectin experi...
by rp1954
Sat Jul 31, 2021 8:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Examples where size doesn’t equal stage?
Replies: 9
Views: 399

Re: Examples where size doesn’t equal stage?

After the local penetration for T, staging for spread characterized by N and M reflects mets local and distant is formal pathology. Molecular features can be more informative or determinative about mets than initial size of the primary tumor. There are various correlations of stage for various blood...
by rp1954
Fri Jul 16, 2021 4:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New research into the effects of 5-FU
Replies: 4
Views: 685

Re: New research into the effects of 5-FU

So - There might still be life in this old drug yet, especially if they manage to fine more ways to tune its activity by using these findings. Perhaps they will be able to test precisely when this will become no longer effective. Maybe add another drug that makes it so again by inhibiting another p...
by rp1954
Tue Jul 13, 2021 8:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 Months of Capox completed
Replies: 3
Views: 633

Re: 6 Months of Capox completed

If I'm understanding your tx, it's 3 three week cycles of Capox and about 5-6 three week cycles of capecitabine, trying to get an effective dose intensity of capecitabine up to 4500 mg to burn out the last cancer cells. So question is what were your CBC results at dx, after surgery/before chemo, and...
by rp1954
Fri Jun 25, 2021 6:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?
Replies: 59
Views: 5410

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

So I sit, wait, fret, and panic. I won’t do any treatment that is deemed palliative. I would do chemo/surgery/immunotherapy if it was curative. You ask for too many definitive answers in a gray world where real answers take work and time - are slow, and error prone. But (low cost, high QoL) continu...
by rp1954
Fri Jun 25, 2021 1:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?
Replies: 59
Views: 5410

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Is going from ZERO to NINE lung mets unusual in 6 months time, with no other signs of cancer? Can no one answer this question? Well, here's a somewhat similar story with 22 lung lesions popping up fast, and a happy ending - but still some ambiguity on whether they were artifacts or not. My feeling ...
by rp1954
Thu Jun 24, 2021 6:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?
Replies: 59
Views: 5410

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

I am taking vitamin d3. Life extension 125mcg 5000 icu. You might want to check your blood levels of 25 hydroxy vitamin D. A lot of colorectals are deficient without special effort, even grossly deficient, often requiring 10,000+ iu per day to simply normalize their levels into the low 30s ng/mL (3...
by rp1954
Thu Jun 24, 2021 9:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost two years war strategy learning curves
Replies: 3
Views: 736

Re: Almost two years war strategy learning curves

Congratulations on your tenacity and improvements.

It is amazing how time just goes by with good support and good formulation without the usual side effects.
Just keep grinding out the data one test at a time, making improvements as possible, or needed.
by rp1954
Wed Jun 23, 2021 6:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A series of unfortunate events
Replies: 16
Views: 2215

Re: A series of unfortunate events

IMO, try to take better blood work every 5-8 weeks for the first year, spreadsheet it, list it here, and decide on some kind of anti-cancer, immune enhancing chemistry, and if you feel uncertain, be early on the "annual" scan. A lot of the blood work will be messed up the first year, but a...
by rp1954
Mon Jun 21, 2021 6:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?
Replies: 59
Views: 5410

wildcards

The time to fight cancer is now, with whatever chemistry/tx packages you choose. The last minute saves are increasingly difficult, and rare, albeit a little bit more common here. Two specific last chance examples are the keytruda examples for specific biology, and Sleen's TIL trial for the 1%. For u...
by rp1954
Mon Jun 21, 2021 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?
Replies: 59
Views: 5410

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Is it odd/rare to go from ZERO to NINE small (3-5mm) lung nodules, in all lobes, within 6 months? There have been apparent similar examples both ways here, from false alarm or successful alt immunochemistry tx, to bad news. Do you not like the Tippens Protocol for a specific reason? I haven't seen ...
by rp1954
Sat Jun 19, 2021 5:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Better scans maybe
Replies: 19
Views: 2092

Re: Better scans maybe

I seem to be running aground with finding information! It seems it’s a research MRI and has some clinical use but it does not specify what ! The one at cancer centre is only £100000 away from being funded and hopes to do more but again they don’t give away to many details . I will need to find out ...
by rp1954
Sat Jun 19, 2021 12:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?
Replies: 59
Views: 5410

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Our trials for alternative adjuncts' performance were faster, mostly around broad, sensitive blood work for us. Some tissue work. Nonperformance has to be factored in, how to recognize it, and what to do about it soonest. CEA may not be sensitive enough for your situation, alone (needs more series d...
by rp1954
Fri Jun 18, 2021 3:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: colonoscopy, the 3rd generation
Replies: 1
Views: 669

colonoscopy, the 3rd generation

Since both a parent and a lineal grandparent died in their 50s of colon cancer, a colonoscopy is good idea for me. This was my fourth. I had two polyps removed in 2011. Today, 6 polyps and hyperplastic lesions. I usually blow off insurance, but this year went all out to get various labs done with so...
by rp1954
Wed Jun 16, 2021 11:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Better scans maybe
Replies: 19
Views: 2092

Re: Better scans maybe

"top" MRI - is that a 7T, 9T or 10.5T magnet?

A lot of the problem has to do with insurances as well as FDA.
Liability for the dr; payment affects both dr and patient.

A lot of stuff can be better overseas with less interference, but caveat emptor.

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