I'm going to call myself a survivor now. Here is journey so far. My story. Misdiagnosed with Ovarian cancer 4/2010. Debulking surgery, colectomy, hysterectomy, appendectomy. 20 cm tumor on ovary, colon, adominal wall, 13/16 lymph nodes positive, omentum positive for adenocarinoma. Stage IVb CT/PET p...

Hello everyone, I had a successful liver resection and the removal of a nodule in the pelivs. Clear margin on the liver, indeterminate margins in the pelvis, due to amount of scar tissue. I was most concerned about spread over the three years since my last surgery, however the surgeon found nothing ...

hi all, I am feeling overwhelmed and afraid. I am dealing with a recurrence in my liver and also a nodule/node in pelvis. I was Dx in 4/2010, surgery/debulking and year and a half of chemo...I know I have been lucky to have had no progression for 3 years. I am scheduled for surgery to remove both th...

Thank you all so much for your responses. I really needed to hear some encouragement. I am so grateful to this board and the knowledge here. I wanted to mention that I did ask for a resection after chemo, but my onc told me they would not resect because there was nothing to indicate a met was ever t...

Greetings to all, Well, the other shoe has dropped for me. I've had no progression/recurrence for 3 years. Just got my CT/Pet results. The 14 mm liver met at diagnosis, that disappeared with chemo, is now back. It's about the same size --1.5cm with an SUV of 8.4. They also identified "something...

I have not yet had a recurrence. Jan 2013 marks 2 year NEDs. No progression or new disease for almost three years. Stage IVb.

31 months since diagnosis....23 months of NED.....12 months of no treatment since I've been on chemo.....

My CT this week was clear! and I'm able to go to six months between scans......

Hi Theresa,

I'm getting treatment in Denver. I'll help if I can. You can PM if you like....

Sue

Hi all, I'm having a hard time getting insuranceAetna to approve my PET/CT. The insurance guidelines are saying PET is not indicated for follow up/surveillance.... When CEA is not a good indicator (latest results were .9)....What is a good indicator for surveillance???? I am just so frustrated! Anyo...

Hi Sunny, I'm so sorry to hear about your diagnosis. I know how terrifying it is. Same thing happened to me in April 2010. Same story, stage IV, my oldest is 13 and my twins are 10. I am now 28 months from my original DX. I did folfox avastin for the first six months. I worked all the way through it...

Hi Blue,

I have a similar story. Started chemo in May '10 and by July '10 there was no evidence that it ever existed on the ct/pet. Lymph nodes took longer to fade out, but were gone by Jan '11 scan. Clear scans ever since. Still scanning every three months.

Mine has done this a couple of times also. I typically run around 1.8 and it jumped over 6 a couple of times last year. During both those jumps I was dealing with alot of chemo related pain in my upper arms (so painful I could not lift my arm over my head---very wierd). Each time it dropped back dow...

Hi all,

I don't post very often, but am just so happy I could spit!

Just had my 11th Good news scan since my Dx in 4/2010. I'm still NED. Woot!

Sue

I so appreciated this post after reading about the drama today. Thank you

I Really love your post! Cheers