It’s been insanely stressful these past few weeks. Here’s a brief update: My husband’s CT scan after four rounds of Lonsurf was very bad. Lonsurf was discontinued, and we were faced with three choices. 1. Regorafenib (bad side effects, little benefit) 2. Rechallenge FOLFOX (terrible neuropathy hasn’...

My husband’s CAT scan results look very bad. We don’t see the doctor for another week, but the results were posted in MyChart about two hours after the test. We fed all the info into ChatGPT, and outlook is bleak. But we will just have to see what the doctor says about it. I have no idea what happen...

Hi. My husband has finished four cycles of Lonsurf chemo. Tomorrow morning (yes, on a Sunday morning!) he is getting his first CAT scan since starting Lonsurf in January. I’m nervous. His CEA level is higher than it was back in December, but it may be due to a different infection that he currently h...

How is your husband doing with his Lonsurf schedule? My husband is starting his third round today. His WBC count was very low when he went in for blood test on Friday, so the gave him injections for the past three days and now it’s at an acceptable level. Here are the biggest problems that he has be...

Hi. I am new here, and have never posted. But I have been looking at other members’ posts to get information from others going through similar experiences. I “friended” Crikkelkay because I was hoping to send a direct message, but the site won’t allow that (I need to make a couple of posts first). M...