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by roarR40s
Tue Apr 01, 2025 4:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring type, just starting out
Replies: 1
Views: 1029

Re: Signet Ring type, just starting out

Hi there, I'm so sorry your husband has been diagnosed, as a caregiver I can completely understand how uncertain and terrifying this is. My late husband had a mucinous-type that is rare like Signet Ring. When you have discussions with Oncologist, remember that EVEN with Signet Ring types, the cancer...
by roarR40s
Thu Feb 06, 2025 8:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lonsurf Experiences
Replies: 30
Views: 57638

Re: Lonsurf Experiences

Hi Crikklekay, Have you tried seeking a second opinion of surgeons specialising in Peritonectomy/HIPEC/Cytoreductive surgery. My late husband had a a total colectomy - his entire colon was removed, along with a whole heap of stuff - under this specialised surgery. General surgeons often don't have t...
by roarR40s
Fri Dec 06, 2024 12:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intramuscular mass
Replies: 2
Views: 620

Re: Intramuscular mass

Hi Marf, Intramuscular / Intrabdominal masses are common in peritoneal metastasis. They can happen from seeding during surgery or in your case may be present to start with. Peritoneal mets are easily missed on scans due to their diffuse nature, but is also a bit of a speciality. I would recommend se...
by roarR40s
Sun Dec 01, 2024 8:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: chemo or not at almost 83
Replies: 7
Views: 1080

Re: chemo or not at almost 83

Hi Ruth, Cancers that start from the appendix are much rarer, and may have a different treatment path to those starting elsewhere in the colon. Your cancer may or may not be mucinous. But mucinous types typically don't respond well to chemo. I would try to find out from your oncologist on how much c...
by roarR40s
Fri Oct 04, 2024 3:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfiri
Replies: 8
Views: 2167

Re: Folfiri

Hi Mark, Greetings from Australia, and really hope your treatment is going well as it can be. My late husband was also on FOLFIRI, prior to that FOLFIRI with BEV, and he was really prone to bad nausea on those regimes but not to point of vomiting 4/5 times a day. I second all the advice given before...
by roarR40s
Sat Jul 13, 2024 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can the diagnosis on the CT scan be a false positive, and how can it be rechecked? Peritoneal Carcinomatosi
Replies: 2
Views: 3605

Re: Can the diagnosis on the CT scan be a false positive, and how can it be rechecked? Peritoneal Carcinomatosi

Hi there, My late husband was diagnosed with Peritoneal Metastasis. He had a colonoscopy that discovered a bowel obstruction. And the peritoneal Mets were confirmed during his initial surgery. The staging CT scans prior to surgery did call out extensive peritoneal Mets. In our experience CT scans we...
by roarR40s
Thu Jul 11, 2024 7:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rock Robster
Replies: 18
Views: 14955

Re: Rock Robster

Thanks for posting Bianca. This is so devastating for him, his wife, family & friends. I was worried about Rob after not hearing from him for so long. He was so kind, empathetic and intelligent. He also had such mental toughness and really addressed his personal thoughts and demons on death. He ...
by roarR40s
Wed Jul 10, 2024 3:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Flare Up
Replies: 6
Views: 4393

Re: CEA Flare Up

HI, I believe this article should help: https://www.annalsofoncology.org/article/S0923-7534(19)39216-6/fulltext#:~:text=Seventy%2Deight%20of%20670%20(11.6,range%204–61%20days). CEA flare is a real phenomenon, occurring in roughly 11% of patients. Sample size cited is ~670 Patients were studied longi...

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