sending you good positive vibes!

After he became stage 4 and finished his chemo cycle (plus some extras), he was on maintenance Avastin until he suddenly became severely anemic. Assuming he had internal bleeding, he went off Avastin and was off for months as his health deteriorated and we finally figured out he had a new tumor cau...

You mentioned his CEA dropped but also his CEA went up first few cycles? Mum just finished one cycle and her CEA shot up really high. The Oncologist did not seem to concerned but we were all shocked it would go up that high. Over she's tolerated the first cycle well. She's gained a few pounds, eati...

John is in the middle of his third round and just started adding Avastin back in. He's tolerating it well, just some tiredness and fatigue, and his CEA has dropped twice so hopefully that is a trend and not a fluke. Not sure when he will get another scan, but she just sent off a signatera test to se...

So we met with the onc today and he wanted to switch mum from Folfox + FUDR to Lonsurf + Avastin. About 2 weeks ago developed an issue with Folfox (Drop in Blood Pressure) which makes the ONC more hesitant to retry. Can anyone give some insight on Pros/ Cons with this specific treatment ? I was told...

May I ask why Avastin was not part of the treatment plan ? My moms situation at the moment is waiting for a Guardant test to check for mutations and then proceed with possibly rechallenging Folfox + Vectibix or Lonsurf + Avastin. CEA has also been a good indicator for her as well

Sorry for the delayed response My HAI pump was surgically installed early in May 2024. I have so far had it filled with 6 treatments of FUDR. The 6th is still going as I type this Next CT scan is next week. Major scanxiety which brought me here. I'm sure you'll be fine! Mum will have her 2nd treatm...

Thanks all. May I ask how long you have been on the pump ? Any side effects ?

Has anyone here experienced the HAI Pump ? Mum was just installed with one and we're not sure what to really expect!

Thank you ! Yes, obviously I'd rather not stress but as a caretaker, there's always a bit of anxiety due to the unknown.

So my mom rechallenged Folfox - Avastin and just finished round 3. The first time she had done Folfox she was on a reduced dosage due to age (79) but this time her Onc said she can use the full dosage since she's able to handle the chemo fairly well. Few questions in regards to the Folfox affecting ...

Zephyr, my Mom was also diagnosed Stage 4 about 2 years ago and yes, its been a roller coaster ride to say the very least. Are you betting treated in states and if so , where? We are at City of Hope and I was just thinking if you are at the same center perhaps I can pm you on which doctors you've ha...

Thanks for the feedback CRGuy!

Can testing positive for Covid also cause a rise in CEA?

Hi Everyone, Question in regards to CEA "Flare". Is it common for CEA to spike on Folfox + Avastin? Mom's CEA was 7.5 last month and after 2 infusions of Folfox her CEA is now 17. Her ALT / AST / ALK also went up really high ( first time ever in 2 years) but ALT + AST are back to normal. A...