Hi Sara, Really sorry hear your story. I'm not sure I can give you any helpful advice because we also just started this unwanted journey. My wife was diagnosed about month before you and our cases quite similar - also adenocarcinoma with multiple lung and liver metastases. CEA was 4163 and 417 now, ...
beach sunrise wrote:No, they all work with you remotely. It stinks Belanger can't. Maybe some others can.
Actually, we also didn't expect refusal. I found that many docs don't want to continue when hear about advanced stage 4. That is their right, we will look for others.
Thanks, will check it. I spend a lot of time reading old posts (tons of useful information in one place!) and found post with list of ND/ID that looks very promising - viewtopic.php?p=513823#p513823
If it were me in your situation I could call Dr. Belanger in MA and at least get a consult. He might very well be able to advice and help you being in Canada. Got answer from Dr. Belanger executive assistant - Unfortunately they unable to treat patients who live outside the U.S. Anyway thank a lot ...
One key to this may be how far you are willing and able to go (bi)weekly, monthly, or even once. e.g. NYC, Boston, Houston, etc. Of course we will try to find options in Canada for plan B. As minimum we have a thoracic oncologist who was agree to do SBRT to remove all/most LN nodules (we have about...
I haven't tried but I suspect that seeking a new oncologist under OHIP would be troublesome unless you have moved a significant distance from your current location. Our oncologist often repeats you are always welcome to find another MD. I believe he will be happy if we move to another onc. And we h...
A boy scout ("be prepared") would still be ready to make the ADAPT/capecitabine switch after 1-2 cycles Folfiri, with capecitabine + celecoxib in hand. Actually celecoxib is already in hand (prescribed for me by 3rd party doc). Need to research about capecitabine. As I understand it may b...
Just to add to this one - I’m working with a couple of trial doctors/researchers, and their general rule is that any kind of progression on any line of treatment is reasonable point to consider enrolling in a trial. They all have different eligibility criteria - some you can’t have had too much che...
If you’re interested and able to do so, research into clinical trials should not be delayed. Thanks for reminding about trials. I definitely need to keep an eye on that to not miss possible options. One more thought about clinical trials - when I asked our oncologist about it, he said its too early...
Thank you rp1954 for summarizing the results and the proposed plan. Our goal #1 is stop the progression (if it was, because the CT scan says no) and reverse CEA trend from Up to Down. Goal #3 is a "Plan B", and we absolutely agree with it. We understand it will not be easy to find doctor(s...