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by IM64
Wed May 10, 2023 5:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC Stage IV mets to LV and LN - what can we do more?
Replies: 112
Views: 15887

Re: mCRC Stage IV mets to LV and LN - what can we do more?

Thanks a lot for all warm words and support. I'm praying for all of you. Please win your battles and be safe. You can do it.
by IM64
Mon May 08, 2023 7:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC Stage IV mets to LV and LN - what can we do more?
Replies: 112
Views: 15887

Re: mCRC Stage IV mets to LV and LN - what can we do more?

Today is the worst day in my life - my wife passed away and our cancer journey was ended too short... We tried all what we can, but unfortunately I couldn't save her. Just 3 days ago, she was full of energy, felt great and in a great mood. We made our plans and enjoyed the dinner. But on Friday star...
by IM64
Fri May 05, 2023 5:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: highly suspicious mets to lung
Replies: 18
Views: 3432

Re: highly suspicious mets to lung

Looks as a good decision - stay under the control all the time.
by IM64
Tue May 02, 2023 9:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC Stage IV mets to LV and LN - what can we do more?
Replies: 112
Views: 15887

Re: mCRC Stage IV mets to LV and LN - what can we do more?

beach sunrise wrote:I am sorry. I just corrected post above about niacin and turmeric dosage.
It's T.I.D not B.I D.

Thanks. Will try your doses from Tomorrow.
by IM64
Tue May 02, 2023 9:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC Stage IV mets to LV and LN - what can we do more?
Replies: 112
Views: 15887

Re: mCRC Stage IV mets to LV and LN - what can we do more?

In a "normal health" person, a typical nausea value (daily divided limit) for niacinamide might be ~3000 mg/d, but less for chemo and extensive liver mets. Thanks for info. Taking into consideration the liver condition, we won't climb to very high numbers right now. Will try to increase N...
by IM64
Tue May 02, 2023 9:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC Stage IV mets to LV and LN - what can we do more?
Replies: 112
Views: 15887

Re: mCRC Stage IV mets to LV and LN - what can we do more?

Rock_Robster wrote:I also take 1,000 mg Niacinamide per day, but in the evening. Haven’t noticed any side effects at these levels.

Do you take it to fight inflammation?
by IM64
Tue May 02, 2023 6:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC Stage IV mets to LV and LN - what can we do more?
Replies: 112
Views: 15887

Re: mCRC Stage IV mets to LV and LN - what can we do more?

To chime in here I take 1000mg Niacinamide right after breakfast, then 500mg niacin B.I.D This is what ND suggested. Thanks beach sunrise, your adviсe are always helpful. So your dose is double of our (2g total). Looks like it make sense to try, because our "anti-Inflamation set" can't do...
by IM64
Mon May 01, 2023 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC Stage IV mets to LV and LN - what can we do more?
Replies: 112
Views: 15887

Re: mCRC Stage IV mets to LV and LN - what can we do more?

We take Niacin and Niacinamide 500mg each. I think it's too small for therapeutic purposes. Do you have any experience with large doses? MCV (ref 80-95 fL): 91.4, 93.2, 92.5 RDW (ref 12-14.9 %): 19.5, 19.3, 19.0 Platelets (ref 150-400 x10^9/L): 244, 251, 294 Albumin (ref 35-55 g/L): 35, 29, 39 Fibri...
by IM64
Sat Apr 29, 2023 5:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC Stage IV mets to LV and LN - what can we do more?
Replies: 112
Views: 15887

Re: mCRC Stage IV mets to LV and LN - what can we do more?

Good on the CEA decrease so far. Yes, but honestly we'd like to decrease the size) What anti-inflammatories is your wife taking? First of all IVC 3-4 times x 80 gram per week - about 1 kg per month. Also vit D3 30K/daily, celecoxib 400 mg, Boswellia 2.5g, Turmeric 3g, Fish oil 5g, MSM 1500 mg, Berb...
by IM64
Sat Apr 29, 2023 12:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC Stage IV mets to LV and LN - what can we do more?
Replies: 112
Views: 15887

Re: mCRC Stage IV mets to LV and LN - what can we do more?

Quick (actually not) update. We continue with Folfiri chemo 6th cycle on Monday. CEA still dropping, but not as much as it was in the first cycles. From March 3 (first Folfiri cycle) we are down from 616 to 257 now. In Oct. 2022 CEA was 4163. Unfortunately recent CT didn't show any decrease in size ...
by IM64
Sat Apr 29, 2023 7:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: highly suspicious mets to lung
Replies: 18
Views: 3432

Re: highly suspicious mets to lung

I believe and hope that surgery will put the final point in your long journey. Will you stay 4 weeks in Germany between surgeries?
by IM64
Fri Apr 07, 2023 8:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC Stage IV mets to LV and LN - what can we do more?
Replies: 112
Views: 15887

Re: mCRC Stage IV mets to LV and LN - what can we do more?

The more you get better healthy results the more it helps your body fight not to mention the great immune boost you are achieving. Absolutely agree. No chance to win without help from immune system. Save it during systemic chemo is one of the main goal all complementary treatments as I think. I not...
by IM64
Fri Apr 07, 2023 4:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC Stage IV mets to LV and LN - what can we do more?
Replies: 112
Views: 15887

Re: mCRC Stage IV mets to LV and LN - what can we do more?

We continue preparation for high doses vitamin D. From last week my wife takes 30K iu/day, week before was with 20K iu/day. Had a blood work yesterday to check how it's going on. - PTH (Parathyroid Hormone) is at low border - 13.2 pg/mL (preference 10-66 pg/mL), but I'm not sure it's only vit D work...

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