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by crybaby
Tue Aug 09, 2022 10:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When gas and stools won't pass for hours
Replies: 0
Views: 49

When gas and stools won't pass for hours

So like 5-6 days ago, my dad started having that problem again when he was unable to pass gas or stools. The last that happened was probably during his radiation treatment in April. But this time was kinda bigger problem, his uneasiness this time was quite big. So had to go hospital at 2 am and afte...
by crybaby
Tue Aug 09, 2022 9:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How did you treated those bone/spine mets
Replies: 2
Views: 365

Re: How did you treated those bone/spine mets

I commented on the scan timing on your other post so I won’t repeat myself. However I’ve not heard of using IMRT for bone mets - more commonly I think this would be SABR/SBRT (of which CyberKnife is one brand). Though perhaps given the need to also deliver pelvic radiation this was also a factor. I...
by crybaby
Tue Aug 09, 2022 9:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Doc hated second opinions & some more questions about treatment
Replies: 3
Views: 495

Re: Doc hated second opinions & some more questions about treatment

I always recommend second opinions. When I was diagnosed in 2004, a lot of doctors gave me no hope. You don't state where you live, but if you have Stage IV, I totally recommend you go to one of the very top hospitals. If you live in the US, these are MD Anderson, Mayo, Memorial Sloan Kettering. I ...
by crybaby
Mon Aug 01, 2022 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How did you treated those bone/spine mets
Replies: 2
Views: 365

How did you treated those bone/spine mets

My dad completed 25 radiations (45 Gy) to sacral S1 mets + pelvic recurrence in May. The doc then asked for a PET scan just 1 month later (in June) and told us to redo the test the 3 months later since the disease was stable in last report. But now we also need to change the doc since our last doc k...
by crybaby
Sat Jul 30, 2022 11:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Doc hated second opinions & some more questions about treatment
Replies: 3
Views: 495

Doc hated second opinions & some more questions about treatment

Complete timeline of my dad's treatment 03/30/17 - Colonoscopy revealed circumferential polypoidal rectal growth starting 8 cm from anal verge upto 15cm. 04/05/2017 - CEA 5.16 04/10/17 - Underwent LAR + TME with brooke ileostomy slow recovery, developed fistula leak. 09/17 - Finished FOLFOX-4 10/17 ...
by crybaby
Wed Jun 22, 2022 4:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Disease increased after radiation?
Replies: 4
Views: 1107

Re: Disease increased after radiation?

Sorry to hear the news. Of course it would have been great to see regression of disease across the board. I have two general thoughts here, not sure if very useful: 1. I had been told that a PET within 2 months of surgery or radiation is not particularly useful, due to the high levels of inflammati...
by crybaby
Wed Jun 22, 2022 4:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Disease increased after radiation?
Replies: 4
Views: 1107

Re: Disease increased after radiation?

So my dad went 25 fractions of radiation (45 Gy) for pelvic radiation and sacral met which he finished on 11 May, 2022. Last PET scan was done in Mar 2022 and the recent PET scan was just done yesterday in (June 2022). ill defined soft tissue lesion in pelvic cavity (SUVmax 8.54 vs 8.16, 46x43 vs 4...
by crybaby
Tue Jun 21, 2022 3:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need guidance (lots of) with sacral mets and pelvic recurrence
Replies: 15
Views: 2320

Re: Need guidance (lots of) with sacral mets and pelvic recurrence

Peregrine wrote:
crybaby wrote:...I have been trying hard to be offline and just focus on my exams that are starting tomorrow...

Good luck on your exams !!

Take care ...

i have made a new post about the pet ct scan. they don't look so good.
by crybaby
Tue Jun 21, 2022 3:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Disease increased after radiation?
Replies: 4
Views: 1107

Disease increased after radiation?

So my dad went 25 fractions of radiation (45 Gy) for pelvic radiation and sacral met which he finished on 11 May, 2022. Last PET scan was done in Mar 2022 and the recent PET scan was just done yesterday in (June 2022). ill defined soft tissue lesion in pelvic cavity (SUVmax 8.54 vs 8.16, 46x43 vs 45...
by crybaby
Mon Jun 20, 2022 11:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need guidance (lots of) with sacral mets and pelvic recurrence
Replies: 15
Views: 2320

Re: Need guidance (lots of) with sacral mets and pelvic recurrence

... What questions should I need to ask my doc?... ● MSI status of primary tumor / new pelvic mass (needed for evaluating possible targeted immunotherapy now) ● KRAS/NRAS/BRAF testing result for tumor / new pelvic mass. (needed for evaluating possible targeted immunotherapy now) Your dad needs to a...
by crybaby
Mon Jun 13, 2022 1:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need guidance (lots of) with sacral mets and pelvic recurrence
Replies: 15
Views: 2320

Re: Need guidance (lots of) with sacral mets and pelvic recurrence

Hello crybaby - Your other main issue is: ... I just want someone to tell me if we are following the correct procedure. What questions should I need to ask my doc?.... To address this question we would need to have more information about the technical details from the original biopsies, pathology r...
by crybaby
Sun Jun 12, 2022 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need guidance (lots of) with sacral mets and pelvic recurrence
Replies: 15
Views: 2320

Re: Need guidance (lots of) with sacral mets and pelvic recurrence

It’s a little difficult to offer an opinion on why one doctor is using the term “curative” while the other is using “palliative,” not least because I am in the US and this kind of question involves cultural as well as personal factors as far as the doctors go. But here’s my overall take: I would tr...
by crybaby
Sun Jun 12, 2022 8:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need guidance (lots of) with sacral mets and pelvic recurrence
Replies: 15
Views: 2320

Re: Need guidance (lots of) with sacral mets and pelvic recurrence

... But there is my another worry now, the main MD wrote on paper that the treatment was complex curative. But the radio onco wrote it as palliative process. Though on his radiotherapy discharge paper is written as Complex Curative Technique. My dad actually met the MD just today and he asked to do...
by crybaby
Sun Jun 12, 2022 3:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need guidance (lots of) with sacral mets and pelvic recurrence
Replies: 15
Views: 2320

Re: Need guidance (lots of) with sacral mets and pelvic recurrence

My dad was diagnosed with colorectal cancer in 2017. .... He went for surgery in April 2017 for that and had a temporary ileostomy on right. He also developed an infection of some sort so another bag was added to the left side of abdomen... Hello crybaby - Welcome to the forum. I'm sorry to hear ab...
by crybaby
Sat Jun 11, 2022 5:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need guidance (lots of) with sacral mets and pelvic recurrence
Replies: 15
Views: 2320

Need guidance (lots of) with sacral mets and pelvic recurrence

My dad was diagnosed with colorectal cancer in 2017. Actually I always wanted to avoid talking about this but now I am really scared. The tumor was 8cm from anal verge upto 15cm. He went for surgery in April 2017 for that and had a temporary ileostomy on right. He also developed an infection of some...

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