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by Peregrine
Thu Nov 24, 2022 4:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 2538

Re: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback

...My father lives in non-EU country in Europe .... However I live in Germany... Ron – Since your dad will be starting the FOLFOX + Cetuximab chemo regimen soon, it occurred to me that he might want to make contact with a Naturopath doctor or an Alternative Medicine practitioner to get some advice ...
by Peregrine
Wed Nov 23, 2022 2:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 2538

Re: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback

... In light of current events, the Monday's ultrasound revealed bladder wall thickening. The urologists suggested a rigid cystoscopy for taking biopsy samples from the bladder, which is done under general anesthesia and 24 hours hospitalisation, it might also cause some hematoma for several days. ...
by Peregrine
Tue Nov 15, 2022 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 2538

Re: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback

Unfortunately, placing a port-a-cath was not possible because my dad's blood INR was pretty high (1.61) and he could be at high risk of hematomas. His oncologist was not sure about using a PICC line or Midline, therefore the oncologist decided to go for CAPOX/XELOX . She said both FOLFOX and CAPOX ...
by Peregrine
Mon Oct 31, 2022 10:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 2538

Re: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback

5. Is your mother available to give your father some emotional support? My mother is a born optimist. Ron - It's great to hear that your mother has such a positive attitude. As you might imagine, it's very important for caregivers to reduce their own stress in these uncertain times. Here are some a...
by Peregrine
Sat Oct 29, 2022 12:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 2538

Re: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback

... I have asked for a 2nd opinion in one the top 10 Hospitals, Comprehensive Cancer Center (CCC) which is NCI alike. Hopefully I'll get an appointment next week. I'll also ask on another CCC well known University Hospital a week or two weeks later... Ron - It's good that you're getting some second...
by Peregrine
Fri Oct 28, 2022 8:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 2538

Removal of ileocecal valve ?

Ron - Another question: Did they remove the ileocecal valve when they did the extended right hemicolectomy? If so, other digestive problems are likely to emerge and require specialized treatments. Permanent SIBO due to removal of ileocecal valve https://connect.mayoclinic.org/discussion/permanent-si...
by Peregrine
Fri Oct 28, 2022 7:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 2538

Special procedures for dealing with mCRC mets to the peritoneum

Ron - In case the malignant pelvic ascites actually become peritoneal mets, here are some references to procedures for dealing with peritoneal mets: Special procedures for dealing with mCRC mets to the peritoneum Pressurized Intraperitoneal Aerosolized Chemotherapy (PIPAC) https://www.webmd.com/canc...
by Peregrine
Thu Oct 27, 2022 10:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 2538

Re: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback

Earlier I forgot to mention the problem with high doses of paracetamol and possible liver damage. Paracetamol, a pain medication, is also known as acetaminophen and is marketed as Tylenol, or Panadol etc., etc. in other countries. You can read about this problem in the links below: https://coloncanc...
by Peregrine
Wed Oct 26, 2022 8:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 2538

Re: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback

Ron -- As everybody has mentioned so far, time is of the essence right now. It's important to act quickly and do something effective now before things get really out of control. But you need to have good advice to begin with. How are you doing on finding good doctors and good cancer hospitals near w...
by Peregrine
Wed Oct 26, 2022 7:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 4 year cancerversary from stage IV
Replies: 19
Views: 1625

Re: 4 year cancerversary from stage IV

... I need coffee!!!! ... Coffee??? Is coffee on your list of recommended supplements??? I would be interested in knowing what the various NDs think about it. Or maybe coffee is carcinogenic. Who knows what could be in the realm of possibility . . . It’s official! Coffee causes cancer (except when ...
by Peregrine
Wed Oct 26, 2022 6:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 2538

Re: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback

"...Oct-2022: KRAS test on the way, in order to add Cetuximab... Ron - You probably already know that you can't add Cetuximab unless there are no KRAS mutations in the tumor, i.e., unless the tumor is coded by the pathologist as KRAS-'wild type'. However, what I wanted to ask right now is whet...
by Peregrine
Sun Oct 23, 2022 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 2538

Re: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback

Hi Ron, Welcome to the forum, and I 'm sorry to hear about your dad's situation. Here are some of my thoughts on the situation. ⋅  Assessment of comorbidities In order to determine if your dad can handle the strong chemo treatments recommended by rp1954 and MadMed, I think that a prior ass...
by Peregrine
Sat Oct 22, 2022 11:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phase 3 trial question
Replies: 12
Views: 1568

Re: Phase 3 trial question

Hi Rob, I'm sorry to hear that your clinical trial possibility evaporated so quickly. Maybe there will be better opportunities coming along soon. You can search for them yourself with the MSS CRC Trial Finder below. ⋅  The opportunity : If your tumor is MSS (not MSI-H), you can find a clin...
by Peregrine
Fri Oct 21, 2022 7:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How Often Post Recovery Colonoscopy? Aspirin?
Replies: 8
Views: 1019

Re: How Often Post Recovery Colonoscopy? Aspirin?

⋅  Colonoscopy: When and Why Would You Need to Follow Up https://www.colonoscopy.com/conditions/colononoscopy-when-and-why-would-you-need-to-follow-up . ⋅  Aspirin Use to Prevent Cardiovascular Disease: Preventive Medication https://www.uspreventiveservicestaskforce.org/uspstf/r...
by Peregrine
Wed Oct 19, 2022 11:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phase 3 trial question
Replies: 12
Views: 1568

Re: Phase 3 trial question

Some thoughts... 1.How long do you expect treatment to last? - Until first Grade 3 (serious) or Grade 4 (life threatening) adverse event? - Until there is evidence of progression while on treatment? - Until the standard dose can no longer be tolerated? - Until the end of the study (2025)? 2. Are che...

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