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by Peregrine
Tue May 23, 2023 1:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pre op vs post op “help”
Replies: 4
Views: 323

Re: Pre op vs post op “help”

Greetings- I was diagnosed 2 weeks ago with t2/t3 colon cancer. The surgeon wants to operate first but the radiologist wants to start chemo first. They essentially want me to decide. How did you go about making this decision if you were faced with something similar? Thanks Wdr - Welcome to the Foru...
by Peregrine
Thu Apr 06, 2023 6:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to Fourm saying Hello
Replies: 7
Views: 1051

Re: New to Forum saying Hello

Welcome to the Forum. I'm sorry to hear about your diagnosis, but there are resources here that may help you along the journey. " Cancer: 12 nouveaux commandements pour avoir encore de meilleures chances de guérison " Here is a 12-point checklist based on an article published recently in E...
by Peregrine
Sat Dec 10, 2022 1:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recently diagnosed
Replies: 16
Views: 7633

Re: Recently diagnosed

Hi all, I just learned about this board from people posting on Reddit and thought I’d introduce myself as I welcome any and all advice and look forward to chatting with people that also have colon cancer... Cheers, FCR FCR - Welcome to our forum. If you are looking for someone to chat with about yo...
by Peregrine
Sat Dec 10, 2022 12:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 159
Views: 59340

Re: Beginning TIL Therapy at NIH Next Week

Good luck with your TIL's. I'm glad you were able to qualify for this procedure.

Take care ...
by Peregrine
Thu Dec 08, 2022 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Riki's Wife
Replies: 61
Views: 26583

Re: Update from Riki's Wife

Thanks for the update, Ruth. I hope you can continue to keep posting here from time to time. Just a short note to say that I'm sure it's OK to give away those kinds of unexpired, unopened supplies. That's exactly what I did after I had my ileostomy reversal. I was fortunate to find a local colon can...
by Peregrine
Thu Dec 08, 2022 11:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post-scope diet?
Replies: 3
Views: 4188

Re: Post-scope diet?

... If anyone has any tips on this let me know. Meanwhile I’ll see what my Dr says... Hi Deann - I would be very interested in knowing whether your doctor has anything useful to say on the matter. I'm mainly interested in evidence-based advice that has some published research to back up the recomme...
by Peregrine
Tue Dec 06, 2022 7:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Checklists for newly diagnosed Stage IV patients?
Replies: 9
Views: 4419

Re: Checklists for newly diagnosed Stage IV patients?

Hello Everyone - Just an update to say that I am still interested in coming up with a structured checklist designed especially for newly-diagnosed Stage IV patients, but I haven't done anything on it recently. However, now that there have been a number of suggestions here on this thread, as well as ...
by Peregrine
Sun Dec 04, 2022 10:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence of rectal cancer
Replies: 4
Views: 2273

Re: Recurrence of rectal cancer

Naturalna - The questions posed by both roadrunner and Rock_Robster are very good, in my opinion. This is because, in the U.S., the NCCN now lists Total Neoadjuvant Therapy (TNT) as the recommended strategy for treating rectal cancers. At least that is my understanding. Under TNT, all chemo and radi...
by Peregrine
Thu Nov 24, 2022 4:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 9501

Re: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback

...My father lives in non-EU country in Europe .... However I live in Germany... Ron – Since your dad will be starting the FOLFOX + Cetuximab chemo regimen soon, it occurred to me that he might want to make contact with a Naturopath doctor or an Alternative Medicine practitioner to get some advice ...
by Peregrine
Wed Nov 23, 2022 2:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 9501

Re: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback

... In light of current events, the Monday's ultrasound revealed bladder wall thickening. The urologists suggested a rigid cystoscopy for taking biopsy samples from the bladder, which is done under general anesthesia and 24 hours hospitalisation, it might also cause some hematoma for several days. ...
by Peregrine
Tue Nov 15, 2022 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 9501

Re: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback

Unfortunately, placing a port-a-cath was not possible because my dad's blood INR was pretty high (1.61) and he could be at high risk of hematomas. His oncologist was not sure about using a PICC line or Midline, therefore the oncologist decided to go for CAPOX/XELOX . She said both FOLFOX and CAPOX ...
by Peregrine
Mon Oct 31, 2022 10:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 9501

Re: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback

5. Is your mother available to give your father some emotional support? My mother is a born optimist. Ron - It's great to hear that your mother has such a positive attitude. As you might imagine, it's very important for caregivers to reduce their own stress in these uncertain times. Here are some a...
by Peregrine
Sat Oct 29, 2022 12:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 9501

Re: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback

... I have asked for a 2nd opinion in one the top 10 Hospitals, Comprehensive Cancer Center (CCC) which is NCI alike. Hopefully I'll get an appointment next week. I'll also ask on another CCC well known University Hospital a week or two weeks later... Ron - It's good that you're getting some second...
by Peregrine
Fri Oct 28, 2022 8:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 9501

Removal of ileocecal valve ?

Ron - Another question: Did they remove the ileocecal valve when they did the extended right hemicolectomy? If so, other digestive problems are likely to emerge and require specialized treatments. Permanent SIBO due to removal of ileocecal valve https://connect.mayoclinic.org/discussion/permanent-si...
by Peregrine
Fri Oct 28, 2022 7:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Carcinoma + Malignant Ascites, T4N3Mx - Looking for feedback
Replies: 25
Views: 9501

Special procedures for dealing with mCRC mets to the peritoneum

Ron - In case the malignant pelvic ascites actually become peritoneal mets, here are some references to procedures for dealing with peritoneal mets: Special procedures for dealing with mCRC mets to the peritoneum Pressurized Intraperitoneal Aerosolized Chemotherapy (PIPAC) https://www.webmd.com/canc...

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