Hello, So I don't know really were to start besides I feel so alone and it seems like my dad is continuing to get worse which I honestly don't know to deal with . Friends and family just seem to kind of accept it and tell me there is no reason to get upset which honestly just upsets me more .But I g...

So looking for new options for my dad seems like immunotherapy holds a lot of promise but it has never been mentioned for my dad . Looking for info about it like what kind of cancers is it used for ? Does someone have to have a certain mutation ?

Hi , Just wondered how your dad is doing ? Is he any further forward with his consultations ? Hope your holding up ok ! Thinking of you both ! Stu He has a lot of appointments coming up proton radiation Consult Oct 27th Nov 3rd out radiation oncologist Nov 7th another oncologist working on trails w...

Catstaff how does one go about finding these clincial trails ? oncologist suppose to have clinical trail people call us hasn't happened yet .

Also anyone have experience with photon radiation ? Got a appointment for my dad with a photon radiation center

Yep its called a local reaccurance I thought that was better then it spreading but seems i was wrong i got a call into a photon radiation place now .

If you can, I'd suggest you seek a second opinion. We were lucky enough to have had significant success with five cycles of folfiri+bev but they didn't stop it. It's only been suspended due to his small bowel obstruction (preparing for surgery on that now). Is this his only met? Proton-beam radiati...

Hello all , So the nightmare seems to continue my dad's chemotherapy has been stopped after only 5 cycles of folfiri cause oncologist says that's enough to know it's never going to work . I honestly think that's way to soon to stop it after last week when oncologist even told us he didn't expect muc...

Hi , Sorry to hear his tumour has grown ! That is very disappointing news ! However there is a subgroup of patients do respond to second line treatment ! I would expect they will consider switching or wait a bit longer on this chemo. Is there a surgical option ! Take care , Stu This is second line ...

Hello all , So my dad's scan showed his tumor is growing basically the same as it did before chemo which is heartbreaking news for us . I am sure someone has been in this situation should I expect the oncologist to cancel chemo weds ? It's only been 5 cycles we are hoping maybe it's just to soon to ...

beach sunrise wrote:For electrolyte balance I take Tri-Salts
For blood building I eat liverwurst

Liverwurst has been out of stock at all stores here you can still buy it ?

Hello all , My dad had his scan friday so we are all on edge for the results also he had alot of loose stools last week that finally seems to be getting better . However today I have noticed he has confusion problems and even fell one time . He has had five cycles of folfiri is on blood thinners I k...

My DH developed this side effect. He just had a CT two weeks ago and the met that could have been involved is nearly gone, so it is inflammation in his case and may be complicated by C. diff. He also has discharge which is indicative of inflammation. The onc prescribed a prescription cortisone crea...

The cancer can cause pain and the chemo can cause pain and inflammation. What do his imflammation markers look Like? Have they done the bloodwork for them? He gets bloodwork before every chemo treatment do you know what the inflammation markers are ? So I can check the bloodwork I have also my ques...

Hello all , My dad started folfiri about a month ago and the side effects have been manageable until the last week when his neuropathy is getting worse and he has bad pain in his butt . Sitting on a cushion or pillow seems to help and it's been when he is walking pain is so bad even his pain meds do...

I doubt it's the nephrostomy tube itself that causes much reduction in survival, though it does seem to require considerably more attention than a urostomy. It would be more related to _why_ such a tube is required. People who require them for non-malignant reasons can live with them for years if n...