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by MadMed
Sun Aug 14, 2022 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A new idea: feedback requested
Replies: 14
Views: 1058

Re: A new idea: feedback requested

I sent a LinkedIn connect request.
by MadMed
Thu Aug 11, 2022 12:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A new idea: feedback requested
Replies: 14
Views: 1058

Re: A new idea: feedback requested

I largely agree with JJH, wanted to reinforce the statement about access without requirements. I do not have a Facebook account and are largely disconnected from a lot of useful sites that require Facebook.
I'll spare you the reasons.
by MadMed
Sun Aug 07, 2022 11:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 598
Views: 275906

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Congratulations on the 3 years Jolene. Just had my first colonoscopy post treatment. All is ok so far. Clean CT, MRI and colo. Yikes on your scare, nose?? That’s a weird one. Glad it’s nothing. I had a scare like that on my CT, slightly enlarged mediastinal lymph node. Weird to go from RC straight t...
by MadMed
Sat Aug 06, 2022 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 16
Views: 1017

Re: Beginning TIL Therapy at NIH Next Week

Good to see things progressing pccr. This is a good plan.
by MadMed
Thu Aug 04, 2022 12:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Prognostic value of first negative Signatera test performed two yeras after surgery
Replies: 3
Views: 396

Re: Prognostic value of first negative Signatera test performed two yeras after surgery

Excellent, i think you're in even better shape. Using the tissue is even more precise than blood biopsy. I believe you are in a great spot. You have certainly done everything to protect yourself.

Good luck!
by MadMed
Thu Aug 04, 2022 10:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA again
Replies: 14
Views: 695

Re: CEA again

Yea, I really don’t know why he is still even having me do cea tests. I am always trying to solve the mystery of why it isn’t as low a some people I see on here, and why it bounces so much. The only thing I can think, is that it is from gastritis which I do have. Who knows ?! Ksue Well, yeah, numer...
by MadMed
Thu Aug 04, 2022 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Prognostic value of first negative Signatera test performed two yeras after surgery
Replies: 3
Views: 396

Re: Prognostic value of first negative Signatera test performed two yeras after surgery

I think you are as well informed as possible. With all the caveats you listed, it's a good sign. One thing I wonder is about the initial signatera draw. They need to have a biopsy of some kind (tissue or liquid). Did you have that done ? Edit: I saw your other post, so you had the first draw with th...
by MadMed
Thu Aug 04, 2022 10:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Humor or Just Foggy from Anesthesia?
Replies: 7
Views: 1468

Re: Humor or Just Foggy from Anesthesia?

When things go decently with a surgery, I seem to find it therapeutic to post a humorous (to me, at least) aspect of the experience. Here goes: P.S. For Father’s Day, I added to my previous advice to my sons (“Don’t get cancer.”). New maxim is: “Don’t have operations on your butt.” LOL! Ok, i'll fi...
by MadMed
Wed Aug 03, 2022 2:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA again
Replies: 14
Views: 695

Re: CEA again

I think you're like me, CEA is not a good indicator of anything. I met with my oncologist yesterday and she pretty much told me that. Yours is around 3.4. When you had full blown T3 it was 6.1. Check what might be causing inflammation in your life, you event went to 4.6 in 2020 and nothing happened ...
by MadMed
Wed Aug 03, 2022 11:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Biopsy is in!!! Stage 3 Very Unexpected
Replies: 8
Views: 737

Re: Biopsy is in!!! Stage 3 Very Unexpected

As usual, I agree with RR and Andre. My sense is that moderation in googling is a good thing. I went through phases where it was not healthy, more obsessive than useful. The key is to know what to google and what not to google. Anything prognosis is not useful. Details about treatment,side effects, ...
by MadMed
Wed Aug 03, 2022 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ April 20/2022
Replies: 313
Views: 157382

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ April 20/2022

Thank you for everything CRguy, you are truly an institution on this board, helped numerous people through this ordeal and serve as a guide in this chaos of a diagnosis.
I went to your first post in 2008 and it was immediately helping others! :D
by MadMed
Sat Jul 30, 2022 7:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 16
Views: 1017

Re: Beginning TIL Therapy at NIH Next Week

Outstanding pccr, good luck, this is a good plan. I hope for you and all of us this works. Please let us know how it goes, we’re all rooting for you.
by MadMed
Tue Jul 26, 2022 10:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another spot… ablation ahead
Replies: 18
Views: 2573

Re: Another spot… ablation ahead

Outstanding on both counts. May this be it and may you have a clean, NED life forward.
by MadMed
Fri Jul 22, 2022 9:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy 18 year Cancerversary to me!!!
Replies: 6
Views: 808

Re: Happy 18 year Cancerversary to me!!!

HAPPY CANCERVERSARY! Thank you for the support and hope. Lots of stage 4 are desperate for this kind of sharing!
by MadMed
Wed Jul 20, 2022 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo every 2 weeks vs 3 weeks
Replies: 9
Views: 926

Re: Chemo every 2 weeks vs 3 weeks

I don’t think anybody knows. From my treatment and my conversations with my oncologist, chemo takes almost 1 week to run through your system. When I had to delay chemo, 3 weeks gap was no problem. My friend who is stage 4 goes on multiple 2-week cycles and then takes a break for a few months. She’s ...

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