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by DeeMeee
Tue Jun 15, 2021 3:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello All - First Post Please Share Your Thoughts
Replies: 27
Views: 6870

Re: Hello All - First Post Please Share Your Thoughts

My brother went to urgent care on Sunday, he and I both thought he was for certain dehydrated. Second CT in three days,this one chest to pelvic, looking for blockage and source of r/s pain and severe bloating, causing him not to eat. No visible blockage, immense amount of new disease and growth, esp...
by DeeMeee
Thu Jun 10, 2021 8:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello All - First Post Please Share Your Thoughts
Replies: 27
Views: 6870

Re: Hello All - First Post Please Share Your Thoughts

Hey there guys, I was wondering if anyone could say, if this experience is a sign good bad or otherwise. My brother has had persistent ongoing diarrhea to constipation with abdominal pain and bloat, since his right hemi surgery 3/19. His diarrhea has become much less frequent of late, maybe once in ...
by DeeMeee
Mon Jun 07, 2021 8:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 15 year colon anniversary
Replies: 3
Views: 1483

Re: 15 year colon anniversary

Helen098, Go You! Surely it is a celebratory moment for you, even if you can only muster a subdued, lower decibel woot woot! You are a Helen afterall, so no surprise, every one I have ever known has been a quietly strong and methodical doer goddess. Wishing you continued anniversaries and the best o...
by DeeMeee
Tue Jun 01, 2021 8:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The end of the road
Replies: 39
Views: 10588

Re: The end of the road

Hi Paola,
I wish you all the little things, that bring you smiles.
And with all the strength you have kept up, through each step of your dance with this beast, let that same energy now fill your moments with both tranquil and exciting experiences.
Peace and Prayers to you, and those who love you.
by DeeMeee
Fri May 14, 2021 12:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello All - First Post Please Share Your Thoughts
Replies: 27
Views: 6870

Re: Hello All - First Post Please Share Your Thoughts

Yay, Keytruda! Keeping all appendages crossed that he responds well--and quicckly! I'm sure you aware at this point that there is a possibility of false progression in the first few months, as the T cells rushing into tumors and cancerous lymph nodes can bulk them up. And it can definitely take lon...
by DeeMeee
Thu May 13, 2021 9:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello All - First Post Please Share Your Thoughts
Replies: 27
Views: 6870

Re: Hello All - First Post Please Share Your Thoughts

Notes on Keytruda (pembrolizumab) for today's meeting with the oncologist. Hello Green Tea, Apologies for the week+ response, a few unrelated family emergencies have surfaced. My brother had his conference with oncologist on Monday 5/3, as planned. The decision was kept to, beginning Pembrolizumab....
by DeeMeee
Mon May 03, 2021 5:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello All - First Post Please Share Your Thoughts
Replies: 27
Views: 6870

Re: Hello All - First Post Please Share Your Thoughts

Thank you so much for thinking of my brother today, Green Tea!

Scurrying to get on the road.
Will update you later tonight.

Hoping for a Best Day Possible!

Take Care
Dee
by DeeMeee
Fri Apr 30, 2021 8:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello All - First Post Please Share Your Thoughts
Replies: 27
Views: 6870

Re: Hello All - First Post Please Share Your Thoughts

Good Morning Green Tea, It’s so nice of you to think of my brother, on the day of his appointment. It was a looonnng day, appointments were backed up and the 1 hr 25 minute just to get into the office was not making my brother calm and fuzzy. He didn’t get any troubling news, so I take it as a long,...
by DeeMeee
Tue Apr 27, 2021 1:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC vs EPIC Experience and Thoughts Please
Replies: 4
Views: 1110

Re: HIPEC vs EPIC Experience and Thoughts Please

Thank you Green Tea, for the articles, they are very informative. My brother would fall into EPIC protocol if his cancer is deemed colon origin. Not based on which may medically be more effective for him, which I always want for him what will give him his best outcome. But, solely on what is offered...
by DeeMeee
Tue Apr 27, 2021 11:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC vs EPIC Experience and Thoughts Please
Replies: 4
Views: 1110

Re: HIPEC vs EPIC Experience and Thoughts Please

Hi there MCT2021, I appreciate your taking the time to share your brothers discussion on HIPEC with his oncologist team. Yes, his blockage oncology surgeon explained it similarly, all based on shrinkage and good reaction to first 2 months of treatment. Surgeon consult Thursday is with a surgeon high...
by DeeMeee
Tue Apr 27, 2021 11:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello All - First Post Please Share Your Thoughts
Replies: 27
Views: 6870

Re: Hello All - First Post Please Share Your Thoughts

Thanks Green Tea! My brother would soooo rather your tips on preparing for his CT/PET Scan! I read what foods he should avoid day before, and he was not happy with my no’s! I said, nothing that will irritate and cause inflammation, in case that inflammation hides a possible node or smaller tumor! It...
by DeeMeee
Mon Apr 26, 2021 5:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mum needs prayers
Replies: 27
Views: 6693

Re: My mum needs prayers

Mercy110,

Sympathies on the loss of your mom.
Strength and prayers to your Dad, and to you and your family.

Dee
by DeeMeee
Mon Apr 26, 2021 8:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC vs EPIC Experience and Thoughts Please
Replies: 4
Views: 1110

HIPEC vs EPIC Experience and Thoughts Please

Hi All, Looking for personal experience with HIPEC or EPIC, whether you have had the surgery or been presented with the options. My brothers initial blockage surgical oncologist,spoke of the plan , if he were to become a candidate shortly after treatment start. His medical oncologist now is strongly...
by DeeMeee
Sun Apr 25, 2021 1:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello All - First Post Please Share Your Thoughts
Replies: 27
Views: 6870

Re: Hello All - First Post Please Share Your Thoughts

Here's my unvarnished opinion, based on my own experience of being diagnosed with Stage IV MSI-H cancer with KRAS mutation. I am not a doctor. Cases that are MSI-H with a KRAS mutation, like your brother and me, are LESS LIKELY to respond to FOLFOX; however, they are MORE LIKELY to respond to immun...
by DeeMeee
Sun Apr 25, 2021 8:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello All - First Post Please Share Your Thoughts
Replies: 27
Views: 6870

Re: Hello All - First Post Please Share Your Thoughts

Thank You Green Tea, Yes, I researched the chemotherapy treatment combinations available. My brother had that discussion plan with his medical oncologists, first and second opinion, at his initial appointments. Immunotherapy was presented as a strong “IF“ option, pending results of next generation s...

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