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by Nor Cal
Thu Aug 11, 2022 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A new idea: feedback requested
Replies: 14
Views: 1058

Re: A new idea: feedback requested

Great idea. Seems to me that the best use of social media would be to drive viewers to your site. Maybe do some exclusive posts for those platforms, but ultimately have it be about one location that is free and viewable by all. Just my 2 cents...
by Nor Cal
Tue Aug 09, 2022 12:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo every 2 weeks vs 3 weeks
Replies: 9
Views: 926

Re: Chemo every 2 weeks vs 3 weeks

I'm on the 3-week XELIRI cycle. A lot easier for me to tolerate vs the 2-week FOLFIRI. Irinotecan really knocks me for a loop so nice to have that extra week, whereas the Xeloda is more tolerable over a longer period.
by Nor Cal
Mon Aug 08, 2022 3:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: KRAS Mutant Stage IV colorectal Cancer
Replies: 6
Views: 476

Re: KRAS Mutant Stage IV colorectal Cancer

Thoughts go out for your mom. I had avastin through about 15 cycles and we've seen great results. What to attribute to the avastin? Who knows? For side effects, I'd have regular nose bleeds but very minor, and three or four superficial blood clots that could have been the avastin or the chemo. We've...
by Nor Cal
Thu Aug 04, 2022 8:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Biopsy is in!!! Stage 3 Very Unexpected
Replies: 8
Views: 737

Re: Biopsy is in!!! Stage 3 Very Unexpected

Folfox is in my future , the research I have done says I should be prepared to be sick!!! I see most of you have been there and done that. How do I prepare emotionally? What do I need to do at home to prepare? You'll definitely want to be prepared for the Oxaliplatin side effects. I was extremely s...
by Nor Cal
Tue Jul 12, 2022 3:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 14 yrs later: alive but metastatic: Radiation tomorrow
Replies: 8
Views: 1337

Re: 14 yrs later: alive but metastatic: Radiation tomorrow

If I recall, the Keytruda for use on MSS patients was based on people with a "medium" Tumor Mutational Burden. If you know your TMB% that may help with research. Sorry not to be more helpful. There was also a thread recently about a trial for other immunotherapy drugs on MSS patients. You ...
by Nor Cal
Thu Jun 30, 2022 1:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Progress in Immunotherapy for MSS
Replies: 7
Views: 1407

Re: Progress in Immunotherapy for MSS

Thanks for the clarification. Makes sense.
by Nor Cal
Thu Jun 30, 2022 10:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Progress in Immunotherapy for MSS
Replies: 7
Views: 1407

Re: Progress in Immunotherapy for MSS

MadMed wrote:
Seems that this is useful for non liver mets.



Could you expand on this? I don't see anything in the link regarding the liver.
by Nor Cal
Mon Jun 27, 2022 6:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another spot… ablation ahead
Replies: 18
Views: 2574

Re: Another spot… ablation ahead

Great blog post, Gina. I got a lot out of it. Best of luck with your next treatment.
by Nor Cal
Wed Jun 08, 2022 5:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To the newly diagnosed
Replies: 7
Views: 1490

Re: To the newly diagnosed

Great stuff Mike, and thanks for sharing. One point to pick would be that not all oncologists are ego maniacs playing god. Mine is very up front about what chemo can and cannot do, the likelihood based on the lit, exploring all of our options, presenting my case regularly at the tumor board, getting...
by Nor Cal
Thu May 19, 2022 11:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic mutations
Replies: 44
Views: 5363

Re: Genetic mutations

I believe a 2nd opinion is a good decision for everyone. They'll likely confirm your current treatment plan, and if so, should give a little more confidence in the approach (at least worked that way for me). Plus I think it's good to be on people's radar in case you need to discuss your case further...
by Nor Cal
Thu May 19, 2022 11:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: About 4 years ago...
Replies: 13
Views: 2338

Re: About 4 years ago...

Happy for you, and thanks for posting.
by Nor Cal
Fri Apr 22, 2022 10:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Interesting Article/Trial
Replies: 7
Views: 1662

Re: Interesting Article/Trial

Thanks for posting. Interesting stuff. Makes me want to turn up my stereo and tell the neighbors "doctor's orders!" :D
by Nor Cal
Sat Apr 09, 2022 7:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Distant lymph nodes braf
Replies: 4
Views: 1834

Re: Distant lymph nodes braf

Awesome. Have fun!
by Nor Cal
Fri Feb 04, 2022 8:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When/if chemo break?
Replies: 1
Views: 837

When/if chemo break?

Hi all - Got the results of my latest liver MRI and chest/abdomen Ct, and there were no visible lesions in my liver nor from the primary tumor. That's the 4th straight set of scans where this is the case (dating to April 2021). My liver is still a bit of a mess - fibrosis due to the treatment and or...

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