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by Markdale
Thu Aug 11, 2022 12:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung nodules
Replies: 4
Views: 277

Re: Lung nodules

Thank you for the replys, and thanks for the info too I had a thoracotomy and they managed to find one nodule that I didn’t know about and it was a met. The surgeon said he didn’t want to cut many bits out of a otherwise healthy lung. I was disappointed with this because the original surgeon I spoke...
by Markdale
Tue Aug 09, 2022 8:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung nodules
Replies: 4
Views: 277

Lung nodules

Hi everyone, I’ve had 5 lung nodules in my right lung. I had sabr to 2 of them that were most likely to be Mets, the other 3 are between 4 ~ 7 mm and one has grown 1mm in a year. I’m almost at 2 years since diagnosis and more than a year post chemo. Has anyone had experience with stable nodules that...
by Markdale
Tue Aug 02, 2022 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 13
Views: 710

Re: Beginning TIL Therapy at NIH Next Week

Hope you’re recovering well from the surgery. Treatment sounds very interesting, really hope it works
by Markdale
Wed Jun 29, 2022 6:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for the brains trust!
Replies: 9
Views: 1432

Re: Question for the brains trust!

Hey rob, because it’s spreading in the lymph nodes maybe getting chemo earlier is better to stop the spread and growth. Lung Mets grow slow and the chemo could have a good effect on them, if it doesn’t SABR the lung Mets once they’ve grown then you can get a possible immune response. If things conti...
by Markdale
Fri Mar 25, 2022 2:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver SBRT/SABR tips?
Replies: 4
Views: 1783

Re: Liver SBRT/SABR tips?

Hi rob, I had sabr to 2 lung nodules not long ago. I had a positioning appointment before the treatment date where they positioned me on something like a bean bag and sucked all the air out. They also put 4 little tattoos so they can reposition the exact same way for treatment. I had no after effect...
by Markdale
Fri Mar 18, 2022 4:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member: Leg Swelling After Surgery
Replies: 3
Views: 1387

Re: New member: Leg Swelling After Surgery

Hi, I think You should get it checked straight away. Could be a dvt. Did the surgeons prescribe clexane after surgery.

Mark
by Markdale
Fri Mar 04, 2022 8:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on treatment approach - stage IV recurrent
Replies: 59
Views: 10318

Re: Thoughts on treatment approach - stage IV recurrent

Sorry for the setback, On to plan b. You’ve got a lot of knowledge about CRC treatments Im Sure you’ll be able to advocate for another type of treatment after sabr.
by Markdale
Thu Mar 03, 2022 5:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on treatment approach - stage IV recurrent
Replies: 59
Views: 10318

Re: Thoughts on treatment approach - stage IV recurrent

Hope your surgery is successful, looks like you have the best possible chance of getting through tomorrow successfully.
by Markdale
Wed Dec 08, 2021 5:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on treatment approach - stage IV recurrent
Replies: 59
Views: 10318

Re: Thoughts on treatment approach - stage IV recurrent

Hey man, good you still have options. Looks like you have a bit of time time with the lung Mets. I recently had a vats/thoracotomy to get my lung Mets cut out, but they could only find one and didn’t want to risk cutting healthy lung tissue out that didn’t have cancer so they took a few lymph nodes ...
by Markdale
Thu Dec 02, 2021 4:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: VATS surgery/recovery
Replies: 26
Views: 3362

Re: VATS surgery/recovery

I had a thoracotomy. Soon as the drain tube is out start walking as much as possible, I was walking an hour twice a day it’ll help the lung expand. I haven't noticed much difference in lung capacity, however climbing stairs I noticed I was getting short of breathe in the first couple of months. Coug...
by Markdale
Thu Dec 02, 2021 3:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on treatment approach - stage IV recurrent
Replies: 59
Views: 10318

Re: Thoughts on treatment approach - stage IV recurrent

These are tough choices. My thinking is you need some systemic treatment, I hate to recommend chemo but it’ll probably be worth it. If it’s possible get sabr/sbrt to the liver lesion and the node first for control then chemo for another mop up. The surgeons probably are risk averse with going in for...
by Markdale
Tue Nov 09, 2021 1:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bugger - recurrence
Replies: 17
Views: 4050

Re: Bugger - recurrence

Hope it’s operable rob. I’ve been following your journey, you have the knowledge to push your case forward. Sabr is the way to go for lung Mets, I pushed for mine to be cut out but they could only find one and they went thoracotomy rather than vats. I have an appointment with a radiation oncologist ...
by Markdale
Thu Sep 16, 2021 5:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does FOLFOX turn your hair to straw?
Replies: 11
Views: 1568

Re: Does FOLFOX turn your hair to straw?

How long did it take for your hair to change once finishing chemo? During chemo my hair thinned and mostly turned grey and white. It’s been about 3 months since I finished chemo.
by Markdale
Tue Sep 07, 2021 5:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vats for lung nodules
Replies: 17
Views: 2843

Re: Vats for lung nodules

Thank you. They went straight for a thoracotomy rather than than the vats. I had the surgery a week ago. The worst part was when the drain tube was in, but after they took it out the pain has been manageable with nsaids and paracetamol. I havnt noticed much change in lung function but I havnt been r...
by Markdale
Fri Sep 03, 2021 5:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoracotomy
Replies: 2
Views: 1010

Thoracotomy

Hi, just an update on my journey. I had a thoracotomy on my right lung on 1/9/21Wednesday. I was hoping for just a vats but they said they needed to go thoracotomy because the Mets were to small and they needed to feel for it. They gave me a paravertebre block and an oxycodeine pca. After the surger...

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