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by Blakeacw
Mon Mar 11, 2024 12:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bit anxious
Replies: 5
Views: 651

Re: Bit anxious

Pagola I just have my 4th annual CT scan since I ended chemo in early 2021 - Like you , I was a stage 3b. The CEA is a good indicator , I also use Singaterra every 3 months - it mapped by tumor DNA and looks for any traces , so you can get an earlier warning - this may help you if you have anxiety a...
by Blakeacw
Mon Oct 24, 2022 1:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How Often Post Recovery Colonoscopy? Aspirin?
Replies: 8
Views: 2157

Re: How Often Post Recovery Colonoscopy? Aspirin?

I had a colonoscopy a little a year after my resection and about six months after I finished my chemo ( folfox) They found a few minor polyps - snipped them , biopsied ( all good ) - and told me to come back in two years. Don't love the prep - but would rather have the piece of mind. I have seen the...
by Blakeacw
Mon Sep 12, 2022 10:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Were you worried about losing your job at diagnosis?
Replies: 11
Views: 4562

Re: Were you worried about losing your job at diagnosis?

Here comes my rant: I was very fortunate that after an investment event the year before in 2019 - I had very secure employment as a C level executive and didn't even need to work if I didn't desire to ( both huge blessings ) My surgery and chemo started in the first year of the pandemic and our comp...
by Blakeacw
Mon Mar 14, 2022 12:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 837
Views: 405701

Re: For Stage III's: NED for how long now?

Hi Everyone - Update here - got my CT scan on Friday 3/11 - NED -

Just glad to continue to hit each milepost.

Hope this encourages others in their individual battles.....
by Blakeacw
Thu Sep 02, 2021 3:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TWELVE YEARS NED AFTER STAGE 4
Replies: 11
Views: 2494

Re: TWELVE YEARS NED AFTER STAGE 4

Congratulations and Thanks for Sharing ! - very inspiring

Hope to be able to keep sharing similar news as well
by Blakeacw
Mon Aug 02, 2021 2:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: People
Replies: 23
Views: 3804

Re: People

I was pretty open with my cancer situation once I was staged and had the resection. I didn't want to hide it from others and wanted to be OK saying I didn't feel great. But I wanted to be normal , exactly as you described - not make it the centerpiece of everything. A close friend was going through ...
by Blakeacw
Mon Mar 08, 2021 11:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin induced ototoxicity (hearing problems)
Replies: 8
Views: 2827

Re: Oxaliplatin induced ototoxicity (hearing problems)

I just completed 10 rounds of folxfox - we cut off the oxy after 7 rounds. I noticed the same thing with the tinnitus - it became much more frequent and stronger, especially at night , as things quieted down. I asked the oncologist and he hadn't heard of it , but I read it is a rare side effect from...
by Blakeacw
Mon Mar 01, 2021 12:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3B - Chemo Ended Today
Replies: 3
Views: 1497

Stage 3B - Chemo Ended Today

Hello Forum Have good news to share today. I have completed my adjuvant FOLFXO chemo - I got through 7 full cycles with OXY and then 3 more with 5-FU. Cancelled the last two treatments , based on neuropathy in fingertips and toes - and in the Doctor's own words - benefit does not outweigh the toxici...
by Blakeacw
Thu Feb 18, 2021 9:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: kick'n ass cancer's ass
Replies: 9
Views: 3922

Re: kick'n ass cancer's ass

Thanks for posting this - it is super encouraging to hear the story in detail and read the roller coaster of emotions many of us ride - this gives all hope - and you're still playing hockey !
by Blakeacw
Sun Jan 03, 2021 11:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin Dosage - Call Off
Replies: 24
Views: 5045

Re: Oxaliplatin Dosage - Call Off

Thank you everyone for your responses - extremely helpful and provides some perspective for me moving forward.
by Blakeacw
Tue Dec 29, 2020 1:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin Dosage - Call Off
Replies: 24
Views: 5045

Oxaliplatin Dosage - Call Off

Good Afternoon and Happy Holidays Everyone on this board is informative and looking through the archives provides a range of perspective and assistance in navigating our battles here I'm a stage 3 B - had the resection and doing folfox I am on round 7 right now At round 5 - they tweaked the dosage b...
by Blakeacw
Sat Dec 05, 2020 11:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3, likelihood of recurrence after resection & chemotherapy
Replies: 89
Views: 51562

Re: Stage 3, likelihood of recurrence after resection & chemotherapy

I just finished round 5 of FOLFOX this week - Colon Caner adjuvant. He will weather the side effects - just be patient and talk with the doctors each round , I had a one week break between round 4 and 5 and that helped my body a ton. The cold sensitivity is no fun , I'm avoiding being outside right ...
by Blakeacw
Tue Nov 24, 2020 9:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3B Colon Cancer - Lurking Here - Have some questions
Replies: 6
Views: 1532

Re: Stage 3B Colon Cancer - Lurking Here - Have some questions

Thanks everyone for the replies so far. My Round 5 got delayed a week yesterday - platelets and neuropathy - they are going to reduce the oxi next round a little bit to avoid permanent nerve damage Love the term - scanxiety - the certainty is desired but not realistic Green Tea - very helpful on the...

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