Nor Cal,

I play 2-4 hours of pickleball most days
and disc (frisbee) golf on a regular basis too.
Have had my port for 3y10m with no issues.

And in the same Nor Cal climate as you

And another year has passed for this weary traveler :lol: and I'm still here, still The last year has been fun (sort-of). I guess the good news is that I still feel good and am active every day. The efficacy of FolFiri+Avastin finally came to an end around August last year. Then I got Covid, and got...

Hi all, I'm changing my chemo meds next week and the new thing will be Lonsurf. As an oral drug, it says to take with the morning and evening meals. But, I don't have a morning meal! I eat lunch between 12:30 and 1:30; and dinner between 6:30 and 8:00. I've talked with my Dr about this and he's look...

I can tell you from personal experience that Oxaliplatin causes neuropathy in many people. If you're getting it, I would recommend discontinuing it at the very first, very slight sign of any tingling of your toes or fingers. The neuropathy is generally permanent and a life changer. I have friends on...

... because I didn't post for a few years, I thought I would drop a line (as plastikos recently did) to say "I'm still here" too. I always wonder/worry when people in groups like this just disappear. It's all to easy to think they are gone for good. Well, I'm still here. When last I posted...

Thanks all for the great suggestions, but it turns out Xeloda is no longer the treatment plan. My CEA is still climbing so Xeloda is out, and FOLFIRI+Avastin is the regiment henceforth. This will be much like the FOLFOX I did before so I pretty much know the trials and tribulations with this cocktai...

Sorry to hear this and that tech had no business saying anything. That is frustrating. Hopefully your onc puts you on Folfiri and it knocks it back. Keep on moving forward. -Brenda Ehh, at least I’ve learned to not trust such sources so I never took it seriously. Got my CEA number back too, more ba...

WriterGirl1969 wrote:Everyone has their own reactions and journeys, but I hope this info is helpful!
Smiles, hugs and prayers,
Tracy

Thx Tracy, very good to know. Sounds a lot like my starting point too.

I had my CT Scan today and the tech kinda screwed up by actually commenting on it to me a bit. Surprisingly she said I only had a cyst on my liver and not a cancer tumor... hummmmmm. But, until I hear that from the official reviewing doctor I'm going to assume she was wrong and there is still a tum...

horizon wrote:I took the Xeloda immediately after dinner

Are you taking it every 12 hours? I.e. does this mean your morning dosage is really early in the morning?

Thanks RP , I will be reviewing all my supplements for Folic Acid sources. My diet is mostly meat and cheese (Keto/Carnivore) from grass fed happy (till the end) cows so any Folic Acid from there would at least be all natural. Chronomodulation is an interesting topic, I've sent a message to my oncol...

Question 1: how critical is food with Xeloda and how much food is really needed? Question 2: What's with the "don't exercise after taking" instructions... and is 30 min enough time after taking to address this? Additional Question 3: Has anyone seen an increase in their Nueropathy with Xe...

I’ve never heard the no-exercise thing before though. What’s the source for this one?

The pharmacist. She said to give it 30 mins before exercising. Since I have a 30 min drive, that seems to work out.

Hi all, TLDR; Question 1: how critical is food with Xeloda and how much food is really needed? Question 2: What's with the "don't exercise after taking" instructions... and is 30 min enough time after taking to address this? Long Version; It's been 6 months since I was last here. Ended my ...

beach sunrise wrote: A forum member here said it was neuropathy. Oxaliplatin is rough stuff to say the least.

Yep, that's exactly what it is... cut off the Oxaliplatin after round 9, finished [last] round 12 3 weeks ago and now get to see if the neuropathy magically goes away or not. Time will tell.