Search found 504 matches

Go to advanced search

by prayingforccr
Sun Mar 26, 2023 1:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Within the Family
Replies: 22
Views: 5504

Re: Within the Family

Alex When I went through my journey, I found that cancer makes people very uncomfortable. Everyone tries to be supportive and say the right things, but cancer is always the elephant in the room. Although I didn't need a big support group I couldn't imagine a person having to fight cancer on their o...
by prayingforccr
Sat Mar 18, 2023 11:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cured of MCRC after 12 years
Replies: 10
Views: 465

Re: Cured of MCRC after 12 years

Congratulations,sophy!!

What treatments/protocols did you pursue?
by prayingforccr
Mon Mar 13, 2023 1:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 148
Views: 57251

Re: Beginning TIL Therapy at NIH Next Week

There are differences regarding the IL-2 and keytruda

Sent you my phone #
by prayingforccr
Sun Mar 12, 2023 6:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Updated Alternative Protocol Until My Scans In 8 Weeks
Replies: 3
Views: 318

Re: My Updated Alternative Protocol Until My Scans In 8 Weeks

5 clicks ivermectin What unit or conversion is a click here? Not a kilometer. They come in these tubes that are meant for horses lmao I’m currently 203 and calculated my dose to be 5 or 6 horsey clicks. Ill be back with conversion when I can. The half life of ivermectin is 72 hours and the dissolut...
by prayingforccr
Sun Mar 12, 2023 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Updated Alternative Protocol Until My Scans In 8 Weeks
Replies: 3
Views: 318

My Updated Alternative Protocol Until My Scans In 8 Weeks

2000 mg fenbendazole dissolved in scant dmso and topped with grapefruit juice 3000 mg liposomal vitamin c 2000 mg liposomal curcumin 25 grams full spectrum cbd oil 1/2 teaspoon black seed oil (yuck) 200mg cimetidine taken twice a day hours AWAY from other supplements 2 teaspoons mushroom extract pow...
by prayingforccr
Sun Mar 12, 2023 7:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 148
Views: 57251

Re: Beginning TIL Therapy at NIH Next Week

WOW!! Congratulations @prayingforccr! You have given me and I'm sure many others a reason for hope and optimism. Thank you for your willingness to share your story. I am enrolled in a clinical trial in Pittsburg. I am due to receive my TIL infusion in May. (fingers and toes are crossed) How intense...
by prayingforccr
Mon Mar 06, 2023 9:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I don’t know what to think
Replies: 4
Views: 562

Re: I don’t know what to think

I usually get PET scans which say right at the top, “no evidence of metastatic cancer”. This time, my insurance would only pay for a CT scan because my signitara has been negative and my previous scans have been unremarkable. The CT scan showed a hypoenhancing lesion on my kidney. It is currently t...
by prayingforccr
Sat Mar 04, 2023 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 148
Views: 57251

Re: Beginning TIL Therapy at NIH Next Week

Where’s the dancing emoji?? So happy for you PFCCR! cea bounced up to 1.6 but no one seemed to care very much Not out of the woods yet. Don’t think Ill ever be fully out :( But good news is good news. Hope can be a great thing. The dx seems like it was yesterday. It’s been a helluva three and a hal...
by prayingforccr
Fri Mar 03, 2023 8:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 148
Views: 57251

Re: Beginning TIL Therapy at NIH Next Week

That is fabulous news! Certainly well-earned given what you went through to get this treatment. Did you discuss where it all goes from here? Is there an expectation that you’ll likely continue to see progressive benefit, or are you in uncharted waters? If the latter, are there next steps you can co...
by prayingforccr
Thu Mar 02, 2023 3:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 148
Views: 57251

Re: Beginning TIL Therapy at NIH Next Week

That is fabulous news! Certainly well-earned given what you went through to get this treatment. Did you discuss where it all goes from here? Is there an expectation that you’ll likely continue to see progressive benefit, or are you in uncharted waters? If the latter, are there next steps you can co...
by prayingforccr
Thu Mar 02, 2023 2:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 148
Views: 57251

Re: Beginning TIL Therapy at NIH Next Week

Sending out some good news to everybody…….todays scans show the lesions in my lungs are 40% smaller in size/80% smaller in volume than they were 6 weeks ago…..Doctor said its one of the most impressive responses he’s seen…..not spiking any footballs yet, but the news could not be better……thank you s...
by prayingforccr
Wed Mar 01, 2023 9:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 148
Views: 57251

Re: Beginning TIL Therapy at NIH Next Week

Jacques wrote:
In January 2023, prayingforccr wrote:... scans first week of March....

This is the first week of March ...

Any news?


Headed to maryland today.

Scans/results/meetings tomorrow.
by prayingforccr
Mon Feb 27, 2023 5:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about second opinion
Replies: 9
Views: 667

Re: Question about second opinion

I would pretend that doctor doesn’t exist, research specialists, and start over.

This site is a wealth of information.

Go to advanced search