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by beach sunrise
Tue Feb 07, 2023 4:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 75
Views: 34258

Re: PET/CT tomorrow

Hi Claudine, yes just a few indeterminate nodules based on scans but we all know its mets. SOC sucks when dr's generally won't make a move until proof thru a scan. Blows my mind. SBRT might not be on the table as of this morning. Got a call from lung surgeon saying tumor board advised against it unt...
by beach sunrise
Tue Feb 07, 2023 2:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC Stage IV mets to LV and LN - what can we do more?
Replies: 23
Views: 362

Re: mCRC Stage IV mets to LV and LN - what can we do more?

You can make up to three batches of tea with the same roots. So, don't throw them away after first use. Lay them on a towel to air dry and reuse up to three times.
by beach sunrise
Tue Feb 07, 2023 1:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC Stage IV mets to LV and LN - what can we do more?
Replies: 23
Views: 362

Re: mCRC Stage IV mets to LV and LN - what can we do more?

I agree, info can be so much to absorb. It is always a good thing to record all medical appts to review later. Mederi Center Astragulus tea recipe Cheap/easy way to get the most out of this very safe, nourishing, adaptogen Once you have your Bulk Raw sliced Astragalus  Take 1 handful (about 15-30g)...
by beach sunrise
Mon Feb 06, 2023 7:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC Stage IV mets to LV and LN - what can we do more?
Replies: 23
Views: 362

Re: mCRC Stage IV mets to LV and LN - what can we do more?

Have you had the IL's, CTL (Astragulus, PSK),CDs (Butyrate, Reishi), NKTs (Astragulus, Cytokin Suppress, Beta Glucan 1,3 1,6)) ect measured by bloodwork? My target list is based on bloodwork. Faith42 brings up a good suggestion if available. The Block Center in Chicago uses IV C, ALA and CoQ10 toget...
by beach sunrise
Sun Feb 05, 2023 5:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 13 years cancer free
Replies: 3
Views: 204

Re: 13 years cancer free

This is a great update! Congrats to you.
by beach sunrise
Sun Feb 05, 2023 5:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: “We’re still here”
Replies: 4
Views: 258

Re: “We’re still here”

Great news and wonderful boost for hope to others! Congrats to you.
by beach sunrise
Sun Feb 05, 2023 5:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 year scan
Replies: 4
Views: 244

Re: 5 year scan

I know you are happy as can be with a clean 5 year scan!!!! Congrats and celebrate.
by beach sunrise
Sun Feb 05, 2023 5:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 75
Views: 34258

Re: PET/CT tomorrow

Thank you RR, you give me things to think about and discuss. I really appreciate it.
I appreciate all the advice and opinions that everyone has contributed to my case.
by beach sunrise
Sun Feb 05, 2023 5:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC Stage IV mets to LV and LN - what can we do more?
Replies: 23
Views: 362

Re: mCRC Stage IV mets to LV and LN - what can we do more?

Very good advice you have been given. Your immune supplements are great. I like to add that for T cells , Reishi and Astragalus root to keep the good T cells high and other immune support on a deeper level. Cordyceps for kRAS kill. Can I ask who your ND is? What is the dosage level of your immune pr...
by beach sunrise
Tue Jan 31, 2023 11:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 75
Views: 34258

Re: PET/CT tomorrow

Claudine, it is helpful information about folfiri/avastin experience of your husband. Yall have been thru alot and also on top of things. Rp, for my mind heavy chemo means side effects and toxicity to my body. Lowering immune system and the other side effects that can be terribly unpleasant and may ...
by beach sunrise
Tue Jan 31, 2023 4:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 75
Views: 34258

Re: PET/CT tomorrow

CONCLUSION: 1. Stable appearing indeterminate solid nodules within the bilateral lung fields, both measuring up to 5 mm and exhibiting nonspecific low level radiotracer uptake, however evaluation is limited due to size. Same for other tiny RUL and LUL nodules. Recommend close attention on follow-up ...
by beach sunrise
Mon Jan 30, 2023 1:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 126
Views: 52066

Re: Beginning TIL Therapy at NIH Next Week

The good results so far is a WIN!!!
You have been thru hell so great attitude you have now.
by beach sunrise
Mon Jan 30, 2023 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 75
Views: 34258

Re: PET/CT tomorrow

They are reported as nodules. So, now I am confused if it means lymphnodes or something different? You are giving me super great information to digest and have better discussions with consults. Thank you!!! one of the nodules, 5mm, is not growing but lit up on PET/CT. Second nodule went from 5 mm to...
by beach sunrise
Sun Jan 29, 2023 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 75
Views: 34258

Re: PET/CT tomorrow

RML nodule is to deep and very close to a bronchial tube. So its difficult. Could take right middle lobe but suggestion is not to, just go for SBRT for now. RLL nodule is in a valley. So its difficult too. I had two more consults. Both suggested heavy chemo and see what happens. One of them did say ...
by beach sunrise
Sun Jan 29, 2023 12:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 75
Views: 34258

Re: PET/CT tomorrow

It is reassuring that WBCs could increase later. Nodes re indeterminate but suspect at this time. Right middle nodule 5mm lit up with SUV 1.3. It has been there a while with no change in size. Not sure how long but around 2 years. Lower right node stated out 4mm. then 6x4mm and now meaures 5mm. It w...

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