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by beach sunrise
Tue Jan 31, 2023 11:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 72
Views: 33986

Re: PET/CT tomorrow

Claudine, it is helpful information about folfiri/avastin experience of your husband. Yall have been thru alot and also on top of things. Rp, for my mind heavy chemo means side effects and toxicity to my body. Lowering immune system and the other side effects that can be terribly unpleasant and may ...
by beach sunrise
Tue Jan 31, 2023 4:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 72
Views: 33986

Re: PET/CT tomorrow

CONCLUSION: 1. Stable appearing indeterminate solid nodules within the bilateral lung fields, both measuring up to 5 mm and exhibiting nonspecific low level radiotracer uptake, however evaluation is limited due to size. Same for other tiny RUL and LUL nodules. Recommend close attention on follow-up ...
by beach sunrise
Mon Jan 30, 2023 1:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 126
Views: 51873

Re: Beginning TIL Therapy at NIH Next Week

The good results so far is a WIN!!!
You have been thru hell so great attitude you have now.
by beach sunrise
Mon Jan 30, 2023 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 72
Views: 33986

Re: PET/CT tomorrow

They are reported as nodules. So, now I am confused if it means lymphnodes or something different? You are giving me super great information to digest and have better discussions with consults. Thank you!!! one of the nodules, 5mm, is not growing but lit up on PET/CT. Second nodule went from 5 mm to...
by beach sunrise
Sun Jan 29, 2023 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 72
Views: 33986

Re: PET/CT tomorrow

RML nodule is to deep and very close to a bronchial tube. So its difficult. Could take right middle lobe but suggestion is not to, just go for SBRT for now. RLL nodule is in a valley. So its difficult too. I had two more consults. Both suggested heavy chemo and see what happens. One of them did say ...
by beach sunrise
Sun Jan 29, 2023 12:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 72
Views: 33986

Re: PET/CT tomorrow

It is reassuring that WBCs could increase later. Nodes re indeterminate but suspect at this time. Right middle nodule 5mm lit up with SUV 1.3. It has been there a while with no change in size. Not sure how long but around 2 years. Lower right node stated out 4mm. then 6x4mm and now meaures 5mm. It w...
by beach sunrise
Sat Jan 28, 2023 9:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 72
Views: 33986

Re: PET/CT tomorrow

Most definiely their heads would spin and explode at yalls success. I am no where near what yall have successfully accomplished and they look at me like I am an alien or something. They only know what they know. I would say 90% of my cancer treatment is what I have done to help myself based on resea...
by beach sunrise
Fri Jan 27, 2023 4:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 72
Views: 33986

Re: PET/CT tomorrow

After appt today with ND I have decided if not a Rolles candidate I will still wait instead of jumping on SBRT. NLR sits at 7.2 which indicates cancer, inflammation or both. We added All Inclusive Great Tonify to hopefully lower NLR. It is a mix of Dang Gui, peony and Astragulas and should lower IL-...
by beach sunrise
Thu Jan 26, 2023 5:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 72
Views: 33986

Re: PET/CT tomorrow

I am so frustrated and extremely mad right now. Got a call from Germany to tell me all scans have been reviewed BUT the most recent very important PET/CT scan from Dec 2022 was not with it. I specifically made sure they knew that was the main one I needed and to add all the previous ones. They did n...
by beach sunrise
Thu Jan 26, 2023 5:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 72
Views: 33986

Re: PET/CT tomorrow

I am so
by beach sunrise
Tue Jan 24, 2023 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver mets are back; what’s next….
Replies: 17
Views: 743

Re: Liver mets are back; what’s next….

Hi mwalker
Research orthomolecular.org for info on vitamin C since your wife has kRAS.
by beach sunrise
Sun Jan 22, 2023 4:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 72
Views: 33986

Re: PET/CT tomorrow

Reply from Germany was they have not received packet. It is somewhere in the nets blackhole I guess. So sent hard copies thru DHL on the 13th. They will receive it Monday. So, another wait. Hopefully decision can be made fast. Consults here have all been pretty much the same so far. If it is in fact...
by beach sunrise
Sun Jan 22, 2023 4:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV RC GUYS AND GALS
Replies: 19
Views: 1046

Re: STAGE IV RC GUYS AND GALS

Your update makes me happy you successfully had met removed!!! Feels good don't it!
by beach sunrise
Wed Jan 11, 2023 11:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 72
Views: 33986

Re: PET/CT tomorrow

Appt with onc. His take on all the lung stuff is he is not convinced its CRC cancer still, it could be a new primary (lung cancer maybe). The ground glass lucincy could be inflammation/infection also instead of cancer. Whew Lung surgeon wants SBRT asap but onc wants to wait until another scan in Mar...

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