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by beach sunrise
Sun Sep 25, 2022 1:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 21
Views: 1191

Re: PET/CT tomorrow

Rp, Thank You! I have two papers I think they will at least read, ha. I need to convince them with all the bloodwork history, scans, mild SUV - all pieces that point to one but most likely two lung mets. I got to get my act together to get what I need to get this out of my body! If you or anyone els...
by beach sunrise
Wed Sep 21, 2022 3:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 21
Views: 1191

Re: PET/CT tomorrow

No No NO! Surgeon says PET CT is clear, watch and wait. WHAT!?! He did not set up appt with lung surgeon.
I will have to do this on my own. Appt with surgeon not scheduled til mid Oct.
I am beyond mad. I will not sit between the cracks to fall thru at some point.
by beach sunrise
Wed Sep 21, 2022 3:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 40
Views: 5161

Re: Beginning TIL Therapy at NIH Next Week

Goodness! Not sure what it all means but seems like you still have an option if the other doesn't work?
by beach sunrise
Wed Sep 21, 2022 3:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update after 2nd opinion discussion
Replies: 24
Views: 1934

Re: Update after 2nd opinion discussion

I admire you very much for being so open about your cancer, side effects and personal hell!
I think about you every day and am so happy you post updates.
Hopefully you will turn the corner soon and treatments works to lessen the struggles.
by beach sunrise
Tue Sep 20, 2022 11:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 21
Views: 1191

Re: PET/CT tomorrow

So far so good on chemo 7 days a week. Bloodwork isn't suffering to much in the critical areas. Some panels I have to work on a little differently based on last draw. If I had not slipped on 2-3 blood draws due to personal things I would have caught the off levels. It is what it is! YES, curative su...
by beach sunrise
Sun Sep 18, 2022 1:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 21
Views: 1191

Re: PET/CT tomorrow

Peregrine,
NCI-Nagourney Cancer Institute
TM-Tetrathiomolybdate

RR, Good points. Taking notes for appts.
by beach sunrise
Sat Sep 17, 2022 4:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When it rains...
Replies: 16
Views: 935

Re: When it rains...

Goodness, Claudine!
This damn disease is relentless. You all have stayed on it like a hawk and that is what it takes.
by beach sunrise
Sat Sep 17, 2022 4:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 21
Views: 1191

Re: PET/CT tomorrow

RR, CEA is a very reliable marker for me. It was 13 in May, 16.x in June and now 26. Super high! Only thing ever showing up is the dang lymphnode. But now another very tiny one is there. This is why they need to come out. I know it is a met based on SUV, CEA and expanded bloodwork. I have more thoro...
by beach sunrise
Sat Sep 17, 2022 9:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 21
Views: 1191

Re: PET/CT tomorrow

Thank you, DE!
Results are posted. SUV 1.3 on Basal Right Middle Lobe, size 6x4mm last month, 5mm now. Unchanged. Also another tiny node concerning in right lobe, very low uptake.
So, most definitely need them out of there.
by beach sunrise
Sat Sep 17, 2022 4:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 21
Views: 1191

Re: PET/CT tomorrow

Thank you, Luna18! Madmed and pccr, yep! Whole removal is my goal. High dose vitamin C in the hospital along with xeloda within 24hrs after surgery. My surgeon agreed to it so he better not back track. Plan B in back pocket. Odd thing: scan reports are available day they are done if I have an in per...
by beach sunrise
Thu Sep 15, 2022 11:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 21
Views: 1191

PET/CT tomorrow

Scan tomorrow to see if lung node has grown more and get more answers.
Whether it lights up or not I am pushing for whole removal. If hospital doesn't agree then I will most definitely look elsewhere. This thing is a grenade and CEA proves it.
by beach sunrise
Wed Sep 07, 2022 8:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 40
Views: 5161

Re: Beginning TIL Therapy at NIH Next Week

I will wave as you fly over my house, ha
by beach sunrise
Tue Sep 06, 2022 5:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 years since diagnosis
Replies: 7
Views: 962

Re: 2 years since diagnosis

I hope for you to have a clear scan. Keep us posted.
I have to say even though cancer hangs over us we all should live life the best we can and not let cancer in on everything we do.
by beach sunrise
Tue Sep 06, 2022 5:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 40
Views: 5161

Re: Beginning TIL Therapy at NIH Next Week

Great attitude going forward!
I am always cheering for you.
by beach sunrise
Tue Sep 06, 2022 5:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update after 2nd opinion discussion
Replies: 24
Views: 1934

Re: Update after 2nd opinion discussion

Best news ever, Riki!!!
I am so so so happy you found a working plan. Way to go researching and advocating for yourself.
Keep us in the loop with progress.

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