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by beach sunrise
Mon Mar 25, 2024 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: osteoarthrosis - platelet rich plasma and stem cell implant for oncologic patients?
Replies: 2
Views: 106

Re: osteoarthrosis - platelet rich plasma and stem cell implant for oncologic patients?

Are you in the USA? If so, I can give you a contact for a stem cell doctor, expert in this field. He has patients come to him from all over the USA. He might could give you some advice/guidance being a cancer patient NED.
by beach sunrise
Mon Mar 25, 2024 1:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance
Replies: 4
Views: 249

Re: Insurance

Claudine, thank you for your reply! Much appreciated.
Please let me know if you get a letter.
Our health care system is clown world absurd!!!
by beach sunrise
Sat Mar 23, 2024 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance
Replies: 4
Views: 249

Re: Insurance

Thank you for your thoughts on this, Rp. Much appreciated. I see sinister things fixing to happen within the next year mostly likely due to increasing profit over patient scenarios. Hands swiping hands.
BCBS also sent thr letter to my onc so our appt will be interesting.
by beach sunrise
Fri Mar 22, 2024 1:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung nodules and genetic testing
Replies: 10
Views: 296

Re: Lung nodules and genetic testing

My small one at dx showed up but not lit up. I have PET/CT scan every year. They didn't light up until the 3rd one, 3 1/2 yrs later. And even then only the 5 mm met lit up at 1.3 SUV. Went to Germany, had all 4 taken out and 3 were mets even though just one lit up. I have 3 CT scan per yr (3 month s...
by beach sunrise
Thu Mar 21, 2024 10:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung nodules and genetic testing
Replies: 10
Views: 296

Re: Lung nodules and genetic testing

Playbook answer per SOC is what you got. It's not them so of course they are not worried. I would push for 3-6 month scans and bloodwork. What is you CEA? Any panels high or low? I carried a lung met for 3 1/2 yrs (day 1 of dx) before it grew to 5 mm and by that time I had 3 more, One turned out to ...
by beach sunrise
Thu Mar 21, 2024 8:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance
Replies: 4
Views: 249

Insurance

OK, I got a letter from BCBS stating they put my capcetibine under review and it will be under review every year provided it be rx'd with in network provider. So, are they planning to exclude certain doctors outside of SOC? My onc is intergrative. I can see trouble coming with several scenarios for ...
by beach sunrise
Sun Mar 10, 2024 10:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thymus tapping
Replies: 2
Views: 331

Re: Thymus tapping

Supplements that support thymus function according to TCM dr that I take are; Zinc, Selenium (3 brazil nuts per day), vitamin C, vitamin D as DAK with extra K2 supplement, vitamin E and Rieshi mushroom is very good for T cells as well. Not much info about the Thymus on the net but TCM dr impressed m...
by beach sunrise
Sat Mar 09, 2024 12:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thymus tapping
Replies: 2
Views: 331

Thymus tapping

TCM dr told me about thymus tapping. He wanted me to trry it twice a day, tapping counter clock wise for 20 seconds or so.
Interesting after researching it.
Just thought I'd pass along this info if anyone wants to research the benefit of thymus tapping.
by beach sunrise
Fri Mar 01, 2024 7:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Histotripsy
Replies: 11
Views: 1594

Re: Histotripsy

Hey Dennyp, any updates?
by beach sunrise
Fri Mar 01, 2024 7:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Re: New guy with old questions.
Replies: 40
Views: 4185

Re: New guy with old questions.

Reading your post and comments I believe you are on the right track. For surgery I will say vitamin D levels drop dramatically so think about that. Inflammation can and most likely sky rocket so keep that in mind too. Both of these are important for recovery. I went to Germany for Rolles laser lung ...
by beach sunrise
Wed Feb 21, 2024 11:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: THREE YEARS PASSED - ALIVE and going....
Replies: 6
Views: 687

Re: THREE YEARS PASSED - ALIVE and going....

This is such great news!!! I needed good news today :)
Celebrate the milestone.
by beach sunrise
Wed Feb 21, 2024 11:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo induced anemia…
Replies: 2
Views: 478

Re: Chemo induced anemia…

Could it be a vitamin deficiency because of chemo he's on. If so, then I would suggest liverworst. It is full of b vitamins, folate, all the things good for healthy RBC's. I take it when Inotice mine are getting low and it brings it up. Tastes terrible but works in about 2-3 weeks you will see resul...
by beach sunrise
Wed Feb 21, 2024 11:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurring
Replies: 21
Views: 4620

Re: Recurring

Thanks for the support, Sunny and utahgal! It's exhausting day in day out but as you know we got to do what we got to do. To add, I broke my wrist and fractured 2 bones in the my arm plus a hip fracture 3 weeks ago. I tripped over a cord in the metal shop and bam the concrete floor was right there. ...
by beach sunrise
Tue Feb 20, 2024 7:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurring
Replies: 21
Views: 4620

Re: Recurring

Thank you. R_R! I was confused for sure.
Report from Germany is in. They see absolutely nothing on my recent PET/CT scan. Whew I am so happy about that!!!!
by beach sunrise
Sat Feb 17, 2024 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clinical trial thoughts
Replies: 2
Views: 1644

Re: Clinical trial thoughts

Hi skimom, from what I have been reading and watching on youtube about histotropsy is that if liver or ther approved organs are targeted that for now thought is it generates a huge immune response (a wake up call to reconize) to go after other mets such as lungs. I watched a video about it and they ...

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