Sorry, I don’t use adhesive spray, though I’ve had great success with very careful use of barrier rings and very careful wafer application. You may well have done all that, of course! Since this is a cancer forum, you may not get a ton of response to this kind of request here (though I hope you get ...

Sorry Beach, one more question: Why do you believe the stable nodules are mets? Presumably because they are “stable,” they were there on prior scans. Do they have a history? From the other findings, it looks like you were a smoker at some point, and as I’m sure you know, nodules are very common in s...

Beach: No, I was just looking at your signature and it looked like you might have been MSI-H, so I thought I’d check. I misread it, I think.

I hope Germany lets you in as well. That seems like it may be a good approach for you. Maybe it helps that you’ve done it before?

One more thing: Does your signature indicate you are MSI-H?

Beach: Sorry to hear this, for sure! At least it seems very early in the disease process with these, so maybe you’ve got good time for options. Did you continue your ADAPT protocol throughout, or come off it after the laser surgery? That, of course, may influence your options going forward. I know y...

Ok, thanks for clarifying that. I think it may be important to see if future oncologists view your disease that way or as diffuse disease. From my perspective, it’s a discussion worth having. From what I’ve seen, there aren’t bright lines in circumstances like yours. I also think future conversation...

So it sounds as though you’ve got 6 likely pulmonary mets, distributed around the lungs. I also note that your thread title called your treatment “palliative therapy for oligometastatic colorectal cancer.” I’d be interested in who introduced those terms in the discussion and whether they were fully ...

So it sounds as though you’ve got 6 likely pulmonary mets, distributed around the lungs. I also note that your thread title called your treatment “palliative therapy for oligometastatic colorectal cancer.” I’d be interested in who introduced those terms in the discussion and whether they were fully ...

skb:

Can you advise where your nodules are—lung- and lobe-wise, I mean.

You may be able to combine surgery with SBRT or cryoablation, or even consider laser surgery (offered in Germany (at least)).

Also, FOLFIRI plus Avastin should at least be discussed.

jts: I’ve never had an ileostomy. I never did the TME. When I got a ncCR to chemorad, I elected to do a trans-anal excision of the tumor bed. Thus I kept my rectum for five years. In the end, that didn’t preserve it, because cancer in one lymph node appears to have survived radiation unexpectedly. B...

Thanks, Mark. Appreciate the support, it’s always helpful and welcome. I was trying to put something out there on my recent ostomy experience as well, as my personal experience is pretty out of sync with much of the negative, scary stuff out there.

I have seen studies that conclude that CRC pulmonary metastases are seeded many years before they are detectable. Further, from your signature, you do not appear to have had a local recurrence. While those two points are certainly not decisive (there may be complicating factors with both), they sugg...

Stu: That is a win of epic proportions! Reasonably regarded, she beat Stage IV CRC, and on her terms. Yes, it may technically have played a role in her death, but I think nearly all of us would’ve taken an 82-yr. run if offered at the start (of life, not cancer), and clearly she enjoyed it nearly to...

[Posted this a couple of minutes ago on the STAGE IV thread, but re-posting in a new thread because of the ostomy angle. Enjoy!] So to keep it as short as possible, after my LUL lobectomy in July of ‘23, I worked back up to running 2-3 miles 4-5 times a week, with life otherwise normal. I knew, howe...

The recent activity on this thread has inspired me to update my own situation, mostly in support of, and solidarity with, Paige (for starting this thread) and the others posting here. So to keep it as short as possible, after my LUL lobectomy in July of ‘23, I worked back up to running 2-3 miles 4-5...