Search found 162 matches

Go to advanced search

by roadrunner
Thu Sep 16, 2021 11:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Anxiety
Replies: 6
Views: 312

Re: Scan Anxiety

Paige: I’ve got a 90-day scan in about 3 weeks as well, and looking at our signatures there’s at least a little similarity between our situations. I am in a “watch & wait protocol,” so I have scans and exams basically all the time. I have been able of late to mostly cabin anxiety to the drive ov...
by roadrunner
Thu Sep 16, 2021 7:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does FOLFOX turn your hair to straw?
Replies: 11
Views: 572

Re: Does FOLFOX turn your hair to straw?

Pretty sure it was longer than 3 months for me. I’m now over a year from it and it may still be improving. It’s a little hard to say as it’s been a slow change for color and thickness. Maybe I recall starting to see a change at 6 months, could have been a little shorter or a little longer. The hair ...
by roadrunner
Wed Sep 15, 2021 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bone density question and mental health issue ramblings
Replies: 7
Views: 412

Re: Bone density question and mental health issue ramblings

Here’s a good, really comprehensive article on cancer therapy and bone density. I didn’t see a specific discussion of FOLFOX, but I believe the discussion is likely at least generally applicable based on the mechanisms that are discussed. I have also seen articles describing significant effects on b...
by roadrunner
Tue Sep 14, 2021 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does FOLFOX turn your hair to straw?
Replies: 11
Views: 572

Re: Does FOLFOX turn your hair to straw?

My hair did fall out as well—noticeably thinner, large amounts in the comb. However, it came back nicely, and mostly dark! Had been white with gray (and a little black), turned pretty much 100% white on chemo, then came back mostly dark. Weird.
by roadrunner
Sat Sep 11, 2021 12:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 years since diagnosis
Replies: 24
Views: 2929

Re: 2 years since diagnosis

Catstaff: Yeah, I meant to include a :) with the point about math vs. formal logic. Tonal miscue on my part. Sorry :) On the “fighting hard,” thing, I guess we’ll have to agree to disagree. It’s certainly a personal thing—some cancer patients may find it inspiring or uplifting to talk about “fightin...
by roadrunner
Fri Sep 10, 2021 4:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 years since diagnosis
Replies: 24
Views: 2929

Re: 2 years since diagnosis

For what it’s worth, I don’t think it’s a productive way of thinking or talking to say that one will be more likely to survive if one “fights hard.” (Perhaps that’s why you hesitated?) That makes it sound like those who die gave up, or were weak, or were somehow at fault. I think it’s better to thin...
by roadrunner
Sun Sep 05, 2021 1:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NED: Let's hope third time is a charm!
Replies: 10
Views: 922

Re: NED: Let's hope third time is a charm!

Gina: I hope so too! You’ve fought long and hard for this high ground. I hope you enjoy it and claim it for always. And don’t worry about paying it forward—you already have! I have followed your story since I was diagnosed over two years ago, and you have been an inspiration to me in dark times. In ...
by roadrunner
Wed Sep 01, 2021 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 554
Views: 250847

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I would be concerned about taking this relaxed an approach. The standard in most practices is 90 days. Even so, some studies show that recurrences happen in 15%+ percent of cases. Approximately 85% of these are “salvageable,” but the earlier they are caught, the better—there is less risk of an unsal...
by roadrunner
Wed Aug 25, 2021 12:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Problems with bowels after covid
Replies: 8
Views: 794

Re: Problems with bowels after covid

I have seen information indicating that up to 57% of COVID patients (I think that’s symptomatic patients) have GI symptoms (though most put it at a smaller, but significant, number). It is therefore very possible, or even very likely, that the virus affected your GI tract. You didn’t say when you go...
by roadrunner
Thu Aug 19, 2021 1:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pissed off with my GI!!
Replies: 9
Views: 1168

Re: Pissed off with my GI!!

Sorry, I mistakenly wrote “oncologist” when I meant “gastroenterologist.” I echo O Stoma Mia’s suggestion that you consider one of the other two gastroenterologists if at all possible.
by roadrunner
Wed Aug 18, 2021 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pissed off with my GI!!
Replies: 9
Views: 1168

Re: Pissed off with my GI!!

Sorry if I missed this before, but this oncologist’s approach sounds really bad and even potentially negligent. You said there were “3 [there].” Is there a reason the other two are actually worse than this one, or unavailable for some other reason? Not trying to be aggravating (if I recall right you...
by roadrunner
Tue Aug 17, 2021 4:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3rd covid vaccine
Replies: 9
Views: 904

Re: 3rd covid vaccine

I would stress that is is MSK’s interpretation of the CDC guidance only. So it’s guidance on guidance. It is very carefully written so as not to be exclusive (“Those cancer patients who are considered considered immunocompromised include . . ..”). “[I]nclude,” not “are.”) This is a very uncertain an...
by roadrunner
Tue Aug 17, 2021 1:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment For Multiple Lung Nodules In Europe?
Replies: 24
Views: 1546

Re: Treatment For Multiple Lung Nodules In Europe?

It’s reassuring to hear your oncologist is recommending a path you favor as well. Did he/she express a rationale for waiting?
by roadrunner
Mon Aug 16, 2021 1:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment For Multiple Lung Nodules In Europe?
Replies: 24
Views: 1546

Re: Treatment For Multiple Lung Nodules In Europe?

You are the captain of your own ship, so I’ll step back on this, but I feel compelled to give this last cautionary note on the subject: Cavitation can show central necrosis, and you’re right that it can appear (at least according to one study) as a treatment effect. However, it also appears to have ...
by roadrunner
Mon Aug 16, 2021 11:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment For Multiple Lung Nodules In Europe?
Replies: 24
Views: 1546

Re: Treatment For Multiple Lung Nodules In Europe?

Prayingforccr: If it were me, I’d ask my team about this. Cavitation appears to occur in about 10% of pulmonary metastases of CRC (one study), and various processes appear to be linked to it. I think the question of what it means for prognosis is complex and may be dependent of the circumstances of ...

Go to advanced search