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by roadrunner
Fri Jul 30, 2021 7:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: On Folfox, just learned I was exposed to covid
Replies: 4
Views: 93

Re: On Folfox, just learned I was exposed to covid

A few things: (1) When was your last dose of vaccine? Were you already in treatment? (2) In general, solid tumor cancer patients—even those on chemo—mount a decent response to the mRNA vaccines. Not quite as strong as healthy controls, but decent. That said, everyone is different, and the Delta vari...
by roadrunner
Thu Jul 22, 2021 11:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 103
Views: 30819

Re: Covid 19 vaccine

This is great to hear, and I doubt too many folks on here need a note of caution in this area. But perhaps it’ll be useful for someone. With respect to immune response to vaccines, including the wonderful mRNA vaccines, responses are very variable, so one person’s case is mostly relevant for that pe...
by roadrunner
Wed Jul 21, 2021 10:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 29F. Just got a colonoscopy. They found something and I’m scared.
Replies: 50
Views: 2680

Re: 29F. Just got a colonoscopy. They found something and I’m scared.

I don’t know if there’s a particular set of information that he’s “supposed to” give you. Jacques has suggested many good questions, but surgeons often have a basic “pitch,” and read the patient or respond to the patient’s questions for the rest. Given that your surgery is imminent, you may want to ...
by roadrunner
Tue Jul 20, 2021 10:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 29F. Just got a colonoscopy. They found something and I’m scared.
Replies: 50
Views: 2680

Re: 29F. Just got a colonoscopy. They found something and I’m scared.

TiredandTroubled: It is a really good idea to figure out how to do a signature with specific details (or as specific as you can do (and fit within the character limit!)). It’s not too hard. This will really help the folks on here cut to the chase.
by roadrunner
Tue Jul 20, 2021 10:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 29F. Just got a colonoscopy. They found something and I’m scared.
Replies: 50
Views: 2680

Re: 29F. Just got a colonoscopy. They found something and I’m scared.

Thank you everyone. Sharing another update: The nurse called me to review the CT scan results and said they did not see anything in my liver or lungs (a huge relief). However, they also said they couldn’t even see the mass in my colon? (Which is definitely there…) should I be concerned? Can I final...
by roadrunner
Tue Jul 20, 2021 5:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Anxiety- Update
Replies: 13
Views: 906

Re: Scan Anxiety- Update

Here you go. I haven’t read enough in this area to evaluate this much, and just looked at it quickly, but it seems on topic.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5484968/
by roadrunner
Tue Jul 20, 2021 4:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Anxiety- Update
Replies: 13
Views: 906

Re: Scan Anxiety- Update

So as I understand it, the only progressing nodule is the one that went from 4mm to 6mm, right? And there were other nodules, but they are gone or not progressing? If that’s right, it may well be that the surgeon will want to take this growing nodule out. It’s still pretty small though, so I would a...
by roadrunner
Tue Jul 20, 2021 3:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Grieving my past life and no one understands
Replies: 16
Views: 927

Re: Grieving my past life and no one understands

I totally understand this. I was much older than you (55) when diagnosed, but had recently run a decent half-marathon, had run 4 marathons before that, had (still have) a great, demanding career, was doing the occasional singer-songwriter gig, was writing my first novel, and had (still have) two awe...
by roadrunner
Tue Jul 20, 2021 10:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 29F. Just got a colonoscopy. They found something and I’m scared.
Replies: 50
Views: 2680

Re: 29F. Just got a colonoscopy. They found something and I’m scared.

I am sorry you got this news. That said—and I recognize this may sound a little discordant right now—based on what you have shared so far, your situation appears good and there seems to be a high likelihood of a full and complete recovery. The key is what Rock Robster said above. Your initial scans ...
by roadrunner
Sun Jul 18, 2021 1:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Recurrence Treatment Plan
Replies: 19
Views: 2992

Re: Lung Recurrence Treatment Plan

I’m not sure that I’m adding much value at this point, so I will be brief. I think: (1) You seem super engaged and astute. I wonder if you could get into the actual meetings? Of course, I understand that patients themselves make this call, and parents are often protective and don’t feel comfortable ...
by roadrunner
Sun Jul 18, 2021 12:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Recurrence Treatment Plan
Replies: 19
Views: 2992

Re: Lung Recurrence Treatment Plan

Sorry, 2 more things: You say your father’s oncologist said he wanted to use Xeloda “because it worked well on the primary.” But that was in the context of chemoradiation, no? How does he know the Xeloda caused any reduction, and not the radiation? Second, how many cycles of adjuvant FOLFOX were used?
by roadrunner
Sun Jul 18, 2021 12:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Recurrence Treatment Plan
Replies: 19
Views: 2992

Re: Lung Recurrence Treatment Plan

I think you are correct that the nodules are likely below the PET size/sensitivity threshold (at least the smaller ones). It also sounds like the “moves” may be too big to be explained just by scanning “noise,” even at this small size, but I don’t think that’s 100% clear. (By the way, were all the C...
by roadrunner
Sat Jul 17, 2021 9:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Recurrence Treatment Plan
Replies: 19
Views: 2992

Re: Lung Recurrence Treatment Plan

I am not certain there are definitive and/or comprehensive answers here. There are such things as transient pulmonary nodules, and they can grow or shrink and disappear on their own. I’m also not sure that growth (or reduction) was ever definitively established or well-quantified in some/all of thes...
by roadrunner
Fri Jul 16, 2021 8:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 29F. Just got a colonoscopy. They found something and I’m scared.
Replies: 50
Views: 2680

Re: 29F. Just got a colonoscopy. They found something and I’m scared.

Just to underline Boxhill’s perspective on survival statistics: Not only do these percentages reflect older information, but the easiest ones to find—or worse, the ones that are “generally known”—are very high level, whereas cancer is almost perfectly individual. So while a certain percentage of *al...
by roadrunner
Thu Jul 15, 2021 11:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 29F. Just got a colonoscopy. They found something and I’m scared.
Replies: 50
Views: 2680

Re: 29F. Just got a colonoscopy. They found something and I’m scared.

In my view, the initial steps are determination of whether the mass contains cancer and whether any cancer is limited to that location. Everything else will flow from that. Genetic testing my be offered if a malignancy is established by pathology, but it becomes far more important if the cancer has ...

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