Search found 452 matches

Go to advanced search

by roadrunner
Sat Mar 16, 2024 1:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member - Looking for Some Reassurane
Replies: 2
Views: 151

Re: New Member - Looking for Some Reassurane

Surgery leaves scars. It would be surprising if you did not have some residual change in sensation at the surgical site. I have had many surgeries, and each has left such symptoms behind. Here, you have reported zero factors indicating persistent disease in a background context of low risk. Unless y...
by roadrunner
Wed Mar 13, 2024 11:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pet scan
Replies: 10
Views: 766

Re: Pet scan

Should’ve added: I have seen other stories of long-term survival with CRC bone metastases. And that’s not just about “quality time”— therapeutic technology is moving very fast at present, faster than pharmaceutical development (though even there developments appear to be accelerating, and may well d...
by roadrunner
Tue Mar 12, 2024 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pet scan
Replies: 10
Views: 766

Re: Pet scan

Mark: I don’t know too much about this area, but I recall that Claudine from this forum has been down this road with her husband, and while I’m not sure they achieved remission of his bone met, I believe it’s been controlled locally for a number of years. You may want to reach out to her to see if s...
by roadrunner
Thu Mar 07, 2024 12:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Histotripsy
Replies: 11
Views: 1398

Re: Histotripsy

Sounds good! As far as the immune system goes, it’s def good to be female. Us men weren’t built to last like you are!
by roadrunner
Thu Mar 07, 2024 10:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Histotripsy
Replies: 11
Views: 1398

Re: Histotripsy

Well, the checkpoint inhibitor wouldn’t likely matter to you anyway, since you are KRAS. I assume you know this, but the success of this kind of therapy, at least when it comes to the potential abscopal effect, is optimized when your immune function is good. IMO that doesn’t necessarily mean “supple...
by roadrunner
Thu Mar 07, 2024 1:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Histotripsy
Replies: 11
Views: 1398

Re: Histotripsy

Skimom: This approach looks very interesting. As I am sure you know, it’s shown very good results in terms of local control but seems to have significantly enhanced abscopal effects as well, at least according to some studies. Are they using a checkpoint inhibitor with it? This looks really promisin...
by roadrunner
Mon Jan 22, 2024 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Re: New guy with old questions.
Replies: 40
Views: 3723

Re: New guy with old questions.

Sleeping with a pump is not an issue. Put it in a safe place with the line clear. Back sleeping is better, but side sleeping is fine—the lines can be adjusted to give you slack. Don’t do vigorous gymnastics whilst in bed. Even if something happens it will just beep, then you’ll go in and get it fixed.
by roadrunner
Tue Jan 16, 2024 12:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 《 The Times They Are a-Changin' 》
Replies: 9
Views: 2193

Re: 《 The Times They Are a-Changin' 》

FB is just a data mining/marketing engine, which leads to the issues cited by Rob above and other downsides. This forum is far, far superior because it has good motives and is not just a data mining operation, but it is difficult to compete with name recognition and “functionality.” I, too, have not...
by roadrunner
Sat Jan 13, 2024 12:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Bleeding after SBRT Radiation
Replies: 11
Views: 1816

Re: Rectal Bleeding after SBRT Radiation

Sorry, just realized one other thing. Your sig isn’t clear about your initial cancer or surgical procedure. You note RT and “colo-rectal surgery,” but usually those two process don’t leave a rectum behind, with most radiated tissue removed (most often via TME). That would be a different picture than...
by roadrunner
Sat Jan 13, 2024 11:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Bleeding after SBRT Radiation
Replies: 11
Views: 1816

Re: Rectal Bleeding after SBRT Radiation

Here’s a really good article on RP. Of course, I have to re-iterate that the in the Stage 4 context *everything* is more complex, so I wouldn’t just assume this is your problem, but the description and your doctor’s attitude suggest that it may be. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC457537...
by roadrunner
Sat Jan 13, 2024 11:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Bleeding after SBRT Radiation
Replies: 11
Views: 1816

Re: Rectal Bleeding after SBRT Radiation

The most likely candidate here is radiation proctitis. It is common after rectal RT. There are acute and chronic presentations, with this sounding like the latter. It can start years after therapy. I was diagnosed with it after my IMRT, and it continues years later. Fortunately for me, mine is limit...
by roadrunner
Sun Jan 07, 2024 7:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurring
Replies: 21
Views: 4395

Re: Recurring

Sorry to hear this, Beach. I know you’re an informed, active participant in your treatment and will get on top of this asap. I hope you get the best possible resolution of this current uncertainty and have good luck from there!
by roadrunner
Thu Dec 28, 2023 1:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV RC GUYS AND GALS
Replies: 70
Views: 22175

Re: STAGE IV RC GUYS AND GALS

Rob: Agree, but why run the test if you’re not going to treat? (Assuming monitoring will be the same, anyway.) My only point was that that decision made me question the oncologist’s strategic perspective generally.
by roadrunner
Thu Dec 28, 2023 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV RC GUYS AND GALS
Replies: 70
Views: 22175

Re: STAGE IV RC GUYS AND GALS

Utahgal7: For what it’s worth, and while I’m a big proponent of perioperative chemo in the Stage 4 context (did it big time with my recent lobectomy), its value is not fully confirmed, and it is definitely not viewed as curative by most, even in the oligometastatic context (w/surgery). So I wouldn’t...
by roadrunner
Thu Dec 21, 2023 9:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery.
Replies: 21
Views: 5387

Re: Surgery.

Don’t know if you’re one for the studies, but here’s one from 2020 (of course, every person is different, so at most this is something to talk over with your oncologist):

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7039839/

Go to advanced search