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by roadrunner
Wed Sep 21, 2022 4:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 40
Views: 5157

Re: Beginning TIL Therapy at NIH Next Week

I’m going to echo Claudine and argue for “the glass is (at least) half-full” here. I totally get that your TILs need to make the grade, so clearly we’re all rooting for that. Beyond that, though, the other options all seem to hold promise. If the immunotherapy works, you’ve got at least regression a...
by roadrunner
Tue Sep 20, 2022 4:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update after 2nd opinion discussion
Replies: 24
Views: 1926

Re: Update after 2nd opinion discussion

Riki: I wish you good fortune in getting to the 4th treatment to see where things stand and maybe start turning things around. I also wish you strength in these current difficult times.
by roadrunner
Sat Sep 17, 2022 7:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 21
Views: 1188

Re: PET/CT tomorrow

My thoughts aren’t likely to be that useful (sorry!), but here goes: While I agree that the rise in CEA is concerning (though yours has been at least somewhat elevated for years, and this rise over 10 is recent (I’d want to rule out alternatives, like infection (including COVID, which can be asympto...
by roadrunner
Sat Sep 17, 2022 3:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET/CT tomorrow
Replies: 21
Views: 1188

Re: PET/CT tomorrow

Beach: Perhaps I’m missing something, but don’t the small size, zero growth (admittedly limited predictive value here because just a month) and sub-2.5 SUV indicate that these are likely benign? I can’t recall—have you had separate indicators of malignancy (say, growth over time)? I do understand th...
by roadrunner
Sat Sep 17, 2022 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When it rains...
Replies: 16
Views: 930

Re: When it rains...

Sorry you and your husband are going through this again. Good luck with his recovery from COVID and with the next steps in addressing the cancer. It’s great that the surgery went well and you guys have a plan.
by roadrunner
Fri Sep 16, 2022 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 years since diagnosis
Replies: 7
Views: 960

Re: 2 years since diagnosis

Mark: Sorry you got this news. It sounds like you have very limited disease even if it is a recurrence, though, which is good. I couldn’t quite tell from your post, but wouldn’t there still be surgical options as well as SBRT and other ablations (e.g. cryoablation or radio frequency ablation)? If no...
by roadrunner
Mon Sep 12, 2022 10:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rise in CEA
Replies: 45
Views: 9789

Re: Rise in CEA

Was the metastasis removed?
by roadrunner
Sun Sep 11, 2022 3:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Were you worried about losing your job at diagnosis?
Replies: 10
Views: 1510

Re: Were you worried about losing your job at diagnosis?

A bit of a rant coming here, so you may wish to avert your eyes. I have a fairly senior corporate position. When I was diagnosed, I was concerned about whether I’d be able to keep my job. I liked the senior leaders of my company, and they liked me, but as many of us know, cancer tests everything. Th...
by roadrunner
Tue Sep 06, 2022 4:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 years since diagnosis
Replies: 7
Views: 960

Re: 2 years since diagnosis

Markdale: An interesting topic. I’m a little over 3 years out from diagnosis and am in an uncertain but hopeful state on the issue you mention. I am by no means certain, or even optimistic, that I’m out of the woods, but am for now NED and feel as good as I ever have. I wouldn’t say that cancer ever...
by roadrunner
Fri Sep 02, 2022 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update after 2nd opinion discussion
Replies: 24
Views: 1926

Re: Update after 2nd opinion discussion

Great to hear this! I hope you are rewarded for your courage and perseverance. Good luck!
by roadrunner
Sat Aug 27, 2022 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Understanding high grade dysplasia
Replies: 3
Views: 1885

Re: Understanding high grade dysplasia

I’m a little confused by your reference to “a portion of your upper colon” in this context. Was a polyp removed and examined? If so, what size was it? What was its nature, e.g., tubular or villous? If not a polyp, what were the clinical signs that attracted attention? Was there ulceration or an infl...
by roadrunner
Thu Aug 25, 2022 10:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SBR for metasticized colon cancer in lung
Replies: 6
Views: 2005

Re: SBR for metasticized colon cancer in lung

Rob: Just for the record, SBRT to the lungs is indeed quite a lot easier than what you describe for the liver. At least in my experience. While YMMV, there were virtually zero side effects. I believe there’s a short hit to WBCs (because they cycle through the beams), but then the immune system is of...
by roadrunner
Wed Aug 24, 2022 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SBR for metasticized colon cancer in lung
Replies: 6
Views: 2005

Re: SBR for metasticized colon cancer in lung

ASTEPHENS33: There are a lot of people on this board who have had SBRT for pulmonary metastases, and quite a few threads can be found easily. However, each situation is unique, and there are several potential alternatives. If you’re looking for general info, threads like those forwarded by Jacques m...
by roadrunner
Wed Aug 10, 2022 5:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung nodules
Replies: 4
Views: 1461

Re: Lung nodules

I’ve seen many studies that use 120 days as the top end for VDT of pulmonary CRC mets. I’ve also seen individual reports where it was as much as 139. Keeping in mind that as inter-observer variability can be as much as 1.7mm, and there are other variables, there is some “play” here (especially given...

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