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by Siti
Wed Mar 10, 2021 8:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on daily Xeloda?
Replies: 8
Views: 1935

Re: Anyone on daily Xeloda?

My husband was on xeloda 2 weeks on, 1 week off. He suffered very bad HFS and occasional tummy cramps/ diarrhoea so he has switched to Teysuno. Side effects are much milder but still present.
by Siti
Wed Mar 10, 2021 8:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Moving to every 6 months, port removal
Replies: 17
Views: 2255

Re: Moving to every 6 months, port removal

Such wonderful news! Happy early birthday to Nicholas!
by Siti
Tue Mar 09, 2021 7:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Birthday to Me!
Replies: 5
Views: 809

Re: Happy Birthday to Me!

Such wonderful news Amy! Happy birthday to you :))
by Siti
Tue Mar 09, 2021 7:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scan & deporting (stage IV)
Replies: 15
Views: 2050

Re: Clear scan & deporting (stage IV)

Such amazing news!! Really happy for you Rob! It’s also wonderful that the pandemic is controlled so well down under! My Aussie friends have been enjoying their freedom and I hope you will too. My husband’s oncologist has proposed a 3 months scan instead of 2 since my husband has been NED for more t...
by Siti
Sat Mar 06, 2021 11:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mum needs prayers
Replies: 14
Views: 1907

Re: My mum needs prayers

So sorry to hear the news. Miracles do happen, please don’t lose faith. Stay strong and sending prayers your way.
by Siti
Sat Mar 06, 2021 11:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo/radiation - tablets or iv infusion?
Replies: 8
Views: 883

Re: Chemo/radiation - tablets or iv infusion?

Hello Jess My husband was on capecitabine and it has been effective. He downloaded an app to ensure that he doesn’t miss a dose plus we try to ensure he takes it at consistent time of the day. We’ll have dinner every day at the same time and then he takes the pills an hour after. He did suffer bad H...
by Siti
Fri Mar 05, 2021 3:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 24550

Re: Covid 19 vaccine

So both myself and my sons got the AstraZeneca vaccine. Was surprised to feel quite ill for 24 hours . My parents had the same one and were fine . Anyway just grateful to have it and there is talk of a third top up in Autumn. The Strain identified in Brazil has arrived in Scotland but contained jus...
by Siti
Fri Mar 05, 2021 3:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New stage 4 colon cancer diagnosis
Replies: 25
Views: 4921

Re: New stage 4 colon cancer diagnosis

Hi Bpaint, Glad your husband is responding well to chemo. I just replied to another post with regards to distant lymph nodes — for my husband, he visited 2 hospitals in Singapore and Netherlands, plus offline consultation from an Oncologist in Belgium, unfortunately all recommended maintenance chemo...
by Siti
Fri Mar 05, 2021 3:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence in retroperitoneal nodes, spine
Replies: 18
Views: 3216

Re: Recurrence in retroperitoneal nodes, spine

Other types of resectable mets are routinely removed, but our local hospitals don't do so for lymph nodes. I am also considering a request to go to a larger cancer center than our local one. My husband visited 2 hospitals in Singapore and Netherlands, plus offline consultation from an Oncologist in...
by Siti
Fri Mar 05, 2021 3:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence in retroperitoneal nodes, spine
Replies: 18
Views: 3216

Re: Recurrence in retroperitoneal nodes, spine

Hi Catstaff, I had a surgery in Sept 2020 to remove Para-aortic lymph nodes. First PET scan after was clear but my most recent in February showed more lymph nodes active. They would only do the surgery because they believed they had a chance to remove all the cancer (sadly not so). It does and can ...
by Siti
Fri Mar 05, 2021 3:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7.5 years stage 4B; now NED for 21 months!
Replies: 15
Views: 3758

Re: 7.5 years stage 4B; now NED for 21 months!

Wonderful news and thanks for sharing!!
by Siti
Wed Mar 03, 2021 4:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid-19 vaccine advice
Replies: 5
Views: 706

Re: Covid-19 vaccine advice

My husband was told by the doctor that the lymph nodes indeed might swell but it’s mainly around the arm/breast area near the injection site. He says best to inform the radiologist.
by Siti
Sun Feb 28, 2021 5:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 24550

Re: Covid 19 vaccine

I have been keeping a close eye on our cancer forums . Vast majority have already had the vaccine. Just finding a suitable point in their treatment . Their partners in most cases too! Have actually not heard of anyone complaining of side effects . The only people to have hit my radar are frail elde...
by Siti
Sun Feb 28, 2021 1:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 24550

Re: Covid 19 vaccine

Hello Siti, I received both doses of the Pfizer vaccine last month and I didn’t have any side effects other than minor arm soreness at the side of injection. I am on active chemo( 5-fu and avastin). Some of my colleagues who don’t have cancer experienced fever, chills and myalgia after their second...
by Siti
Thu Feb 25, 2021 12:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 24550

Re: Covid 19 vaccine

Thanks for the feedback roadrunner & horizon. My husband will proceed with the trial. His oncologist fully supports it. He will get his first dose of Moderna this Saturday! I will update on side effects (if any), and any interesting data. Looking forward to the world to resume some normalcy soon...

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