Hello members, I noticed this forum is getting really quiet — is there a new place where people are sharing stories or are people are just staying away to keep sane after the pandemic? For me is certainly the latter, I went on antidepressants last year as it was rough. We moved continents early Janu...

This is devastating news. I have learned so much from him, I just can’t comprehend that he’s gone. So many good people gone too soon

My husband wears 2 layers of gloves and it works for him. His PT found a way to lessen the friction on his hands by tying straps around his wrists to the weights. Maybe this could be an option for you too.

I thought this might be useful for anyone experiencing low platelet counts during chemotherapy. My husband resumed oxaliplatin after a year of addressing lymph node recurrence through radiotherapy and surgery. Midway through his chemo treatment, he had to reduce his dose and postpone one cycle due t...

Hi. This is my first post, having just joined the forum this morning. What a lot of great advice here! Several wonderful suggestions. Here are a few things that help me. If you are around animals at all, you observe that they respond to the moment. They enjoy sniffing the weeds, sleeping in a patch...

For us, it depends what the goal is. Holiday trips, marathons, a new hobby, buying a car/boat, celebrations etc is a no brainer… We went for it. For bigger commitments like buying a house, we hesitated in the first 2 years but decided to go for it, we ended up buying 2 properties in 2 different coun...

Howdy strangers! All is going well in my neck of the woods. Nicholas will be *5* in March. He starts school this fall. Idk what I'm going to do with myself. And to think, at one point we didn't think either of us would survive to even meet. Time is flying by and I'm savoring every minute of it. I h...

I have read some stories of people having some success on immunotherapy with widespread metastasis, but most of the immunotherapy trials we’ve looked at exclude those with liver metastasis in particular (including bot/bal) because the therapy has not worked for them. The results seem best for those...

Europe has not approved immunotherapy for high TMB so it will have to be within either a test study or trial. I feel like there’s so much of politics even in the world of saving lives. Urg! Anyway let’s see how it goes the next months. I really hope we get some good news soon… my poor husband has be...

Where is his disease currently? He spoke with his oncologist today and she said there are many options on the table but first, he’ll continue maintenance chemo (TS1 + Bev) until the next PET scan in 2-3 weeks. If there is no new tumours, he will continue maintenance but if there is, then back to Ox...

Of course the bot/bal trial is randomised too, including a rego/Lonsurf control (which I wouldn’t normally suggest doing), so it’s not a guaranteed novel treatment - may want a plan B for this case anyway. I really need to get up to speed with the terminology of trials. Does randomised trial mean t...

Inspired by @Jack&KatiesMommy journey, I asked my husband’s oncologist if we could do another genome sequencing for my husband’s recent recurrence. CEA was never an indicator for him but since spring last year it was. I suspect it could be due to mutations and interestingly, his results came bac...

I can eat something and within MINUTES I have diarrhea. How can food travel that fast? How can I slow down my stomach to act normal? Thank you I think eating triggers the entire GI track. It’s the same with my husband and it seems like a permanent problem. He takes Imodium at the beginning of the d...

I was just wondering if anyone had experienced that specifically. Usually in my partners case the growth has been slow whilst off treatment and waiting for surgical interventions, but during the latest progression it seemed to grow quickly whilst waiting for chemo to restart. He’s responding though...

Hey everyone, First of all, Happy New Year! I hope that you had a good break during the holidays with your loved ones :) We just got back from the hospital, quick update on my husband: - He had a PET scan on 7 Nov (after a lot of persuasion). Good & bad news: the radiotherapy worked very well, t...