Thanks so much for your reply. I just had Y90 done, which should hold the tumors in check during and after the PVE. Sorry I didn't put that in the original post. I stopped doing my 3rd round after 3 treatments since I was having progression. Folfox worked great the first 2 times I did it, just not t...

Hello all, still kicking. Its been over 3 years since my Stage 4 diagnosis and I'm still going. Unfortunately the latest round of chemo didn't help, so now its time to make some tough decisions. A liver resection has always been a maybe option for me because the majority of the tumors are on the rig...

Hello, I am 3 years into my Stage 4 diagnosis, and have been doing Folfox with Cetuximab, due to me being KRAS wild. The results have been really positive other than the rash. My CEA is back into normal range, and tumors are calcifying. Just stopped Folfox and have been doing Cetuximab and Xeloda. J...

The Erbitux rash is quite the irritant, and happens with all EGFr inhibitors, MABS as well as small molecule drugs in that class. I was involved in developing this class of anticancer drugs off and on for some time in the late 80's through the 90's. The first such drug was called Canertinib (CI-103...

The closest one is a 5 hour drive. The prospect of doing that every 3 weeks is daunting.

Hey Guys Im still here. Going into year 3 of fighting the monster. In the lst 6 months I have had Y90 and my gangrenous gallbladder removed. Was on Xeloda/ Avastin mantinence, unless I started having some growth. On my 2nd line of Folfox, and this time they have added Erbitux since Im Kras Wild. I a...

Hello all, I just had this testing done, and my oncologist didn't really cover it with me. I know the basic Kras, Braf, etc but the muts are a little confusing. Would any of you take a look at this and offer me you opinion? Thanks in advance https://www.keepandshare.com/doc11/29014/imflrxfxrxp1-2-ti...

I can share my mum’s experience and what I observed if that helps . Way back in 2009 my mum had a spread from segments 4 through to 8 . She had six cycles of chemo and a brilliant response. One tumour alone was 5 cm . She had a combined bowel resection and four wedge resections in her liver . After...

Hello all, I have 35 liver METS covering roughly 60% of my liver. The other 40% has just a few small ones that can be ablated. I am about 9 months out from doing 9 cycles of Folfox with a 40% reduction in growth. I currently am taking Xeloda as maintenance. My largest met is about 1.4cm, most are un...

Hello, havent updated my profile in a while, but started taking Xeloda about 2.5 months ago for maintenance after Folfox caused 40% shrinkage in my multiple liver tumors and a MRI showed them inactive or dead. I started taking 4000mg per day, Im 5'11 230lbs, I had no nausea whatsoever, developed one...

On this forum, most of the Y90 posts are found under the keyword "SIRT". (Please note that on this forum you cannot simply search for Y90 since the keyword "Y90" does not have the required minimum four characters. You have to search for SIRT instead.) Selective Internal Radiatio...

Its been a pretty wild 7 days. After my scans earlier in the month showed a 40% decrease in tumor size(35 tumors) my Oncologist suggested that I wouldbe eligible for a liver resection. This gave me a lot of hope as it changes the 5 year survival rate from 11% to aound 50%. I talked to my liver sugeo...

Looks like my oncologist was a little hopeful telling me I would probably qualify for a resection. The surgeon still didn't like the amount of liver I would have left so it was a no go. He suggested Y90, which I've been told before from a Interventional Radiologist that I would be a candidate. All o...

Thanks so much for the replies. Glad to see you're doing well.

Hello, Just finished 3 months of FOLFOX, and had about a 30-40% reduction in all of my tumors according to the latest MRI. My liver surgeon had said a reduction in size would probably qualify me for a resection. 60% of my liver carries 33 of the 35 tumor, with 2 small ones in the 40%. He talked abou...