Many thoughts to you and yours, Stu. This is pretty amazing, what your mom did, keeping cancer at bay for so long with minimum treatment! Someone posted somewhere (apologies if it was on this forum and one of you recognizes themselves!) that "unless the proverbial bus hits you, eventually your ...

Thank you for giving us some news, Utahgal. It sounds like treatment was a success, congratulations on making it through rehab! I agree about the difficult summer. For me it started a while back when Rikimaroo left us. We're 6+ years into this fight and sometimes it's better for my mental health not...

Hi Knitty gurl, My husband has had bone mets (lumbar spine) since the beginning over 6 years ago (that's how he was diagnosed, extreme back pain). He's had a lot of radiation, which unfortunately has resulted in loss of nerve function to his quadriceps, but he's still here, quality of life ok; thing...

Beach sunrise, Prayingforccr left on your birthday; Skimom left on mine...

Rock Robster, Prayingforccr, Skimom... This has been a tough summer
But you strong warriors keep on fighting, that's what they would have wanted.

Whaaat? I really, really was hopeful for him, with his promising treatment, his careful research. This is very sad indeed

Quickly checking in after a while off the forum and finding this very, very sad news... My heart goes to his loved ones

Wow Beach, that's wild - is it based on where one lives, which pharmacy one uses? So far DH has had no problems getting access to Xeloda, and his is $28 monthly (2 weeks of it, since he's on a week on/a week off cycle). This just makes no sense to me; the difference in accessibility and cost within ...

PET/CT scan is all clear. Sending to Germany for their opinion on what they see. Waiting game is on again according to CEA and other markers. The scan does give me more time to beat it down as long as possible. DH's onc always says, "we treat tumors, not numbers". Great news on the clear ...

What a hard thing to read. I'm so sorry the trial didn't work for you, Rock. It's been a few weeks, how are you doing now?

Hey JP66, My husband is 2 years post rectum surgery, 20 months post ileo reversal. He had terrible LARS the first year; following the surgeon's suggestion, he would take a LOT of fiber gummies - the equivalent of 30mg/day. Turns out it was a really bad idea for him, he completely stopped taking thos...

DH also has BCBS, and is also taking Xeloda on its own, but we haven’t received anything (yet). Different BCBS I guess? Since they wouldn’t cover Lonsurf, hopefully they’ll keep his Xeloda coverage. It seems to be working (last week’s scan showed lymph node decreased in size and everything else stab...

I've thought about contacting Germany to see if they could offer cheaper and see if it would cross the border or not. Worth a try; I have a friend who gets her meds from Canada (not cancer though). I was off with the amount of Xeloda; it will be 3000mg daily (twice 1500), one week on, one week off....

Back in December, when DH did his first Lonsurf cycle, copay was waived and it cost us nothing. When the onc sent the prescription for cycle 2 though, it wasn't the same deal. We tried 5 different specialized pharmacies; 4 are asking monthly copays varying from $8000 to $10,000/month; one (Lumicera)...

Well, my husband did 18 3-week cycles, and never developed resistance. He stopped it to get surgery (the point was to reduce the size of his adrenal met, and eliminate micro lung mets), and could get back on it, if need be. I must say, though, that side effects (especially fatigue) became worse towa...