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by Claudine
Wed Dec 22, 2021 10:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mets to pelvis for brother
Replies: 4
Views: 981

Re: Mets to pelvis for brother

A colleague of mine has been living with cancer for maybe 12 years now? She has an inoperable met in her pelvis area. Keeps it in check via chemo. Enjoys great quality of life :)
by Claudine
Wed Dec 22, 2021 9:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET scan, finally...
Replies: 8
Views: 1146

Re: PET scan, finally...

DH met with his onc today. As expected he's recommending a colonoscopy, but since the CEA is still dropping (now at 51), and everything else is stable, he doesn't seem to be too worried. I guess we'll take it as a positive!
by Claudine
Sat Dec 18, 2021 4:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: is this odd ?
Replies: 11
Views: 1303

Re: is this odd ?

The only other comment I’d make is that CT is not a particularly good modality for imaging the rectum itself I had no idea. This makes me even more glad that DH finally had a PET scan instead of the standard CT! If they’d stuck with that procedure, I wonder if it would have been yet another « nothi...
by Claudine
Sat Dec 18, 2021 4:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET scan, finally...
Replies: 8
Views: 1146

Re: PET scan, finally...

My mum is now doing research into long term survival.


That’s so interesting, Stu! Please keep us posted on the findings!
by Claudine
Fri Dec 17, 2021 2:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET scan, finally...
Replies: 8
Views: 1146

Re: PET scan, finally...

Always so uplifting, Stu :D
Thank you! We went to see a local jazz group last night, that was the best thing to do to take DH's mind off the results :)
by Claudine
Fri Dec 17, 2021 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High AST, ALT, B12?
Replies: 7
Views: 1185

Re: High AST, ALT, B12?

It is so hard to resist (going to Dr Google), isn't it? I'm sorry about the abnormal values - I've got no knowledge though, hopefully your oncologist has some explanation, or can prescribe tests that will shed some light on what's going on. Hopefully nothing serious. I hope you manage to relax for t...
by Claudine
Thu Dec 16, 2021 4:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET scan, finally...
Replies: 8
Views: 1146

Re: PET scan, finally...

Thanks MadMed! I guess I'm putting the cart before the horse, since we're not sure exactly what's there, but with an SUV value of 11.9 I can't really imagine that it's something benign. But I believe DH will prefer the notion of surgery over more chemo.
by Claudine
Thu Dec 16, 2021 1:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET scan, finally...
Replies: 8
Views: 1146

Re: PET scan, finally...

At least it's upper rectum and doesn't seem to be very large (if I'm reading this right?). That's a better place for surgical removal than closer to the anus, isn't it?
by Claudine
Thu Dec 16, 2021 1:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET scan, finally...
Replies: 8
Views: 1146

PET scan, finally...

After many CT scans showing nothing, but a high CEA, DH finally had a PET scan. Results just got posted. Main findings: + New hypermetabolic focal nodular wall thickening in the left posterior upper rectum concerning for underlying neoplasm or polyp. Recommend colonoscopy for further evaluation. + L...
by Claudine
Wed Dec 08, 2021 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage lll now stage IV, looking for guidance
Replies: 11
Views: 1925

Re: Stage lll now stage IV, looking for guidance

Onc said it would be harder and supports time off work this time (he never missed a day on folfox but it was hard) Welcome to the forum, I'm so sorry about the recurrence, but the liver has one advantage over other sites - it can be chopped off and it'll regrow! Re. Folfiri/Avastin, that's interest...
by Claudine
Wed Dec 08, 2021 1:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan and Updates
Replies: 31
Views: 9295

Re: CT Scan and Updates

Glad to hear it went well. Hopefully you can enjoy some nice holiday food once you've recovered a bit more from the surgery!
by Claudine
Thu Dec 02, 2021 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CAP CT scan results
Replies: 14
Views: 1524

Re: CAP CT scan results

This is great news! Now you can enjoy the holiday season :D
by Claudine
Thu Dec 02, 2021 2:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation this week at MSK
Replies: 5
Views: 1483

Re: Radiation this week at MSK

My husband had SBRT for his L4 met (3 fractions), nothing to report beside fatigue and nausea (but liver may be different?). Burn, baby, burn!!
by Claudine
Tue Nov 16, 2021 9:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning Radiation/Immunotherapy Combination For Lung Mets
Replies: 40
Views: 3548

Re: Beginning Radiation/Immunotherapy Combination For Lung Mets

That is fantastic news :D :D :D
Kudos for being so proactive and finding someone ready to go after the multiple mets. I’ll be looking for updates as the treatment progresses, hoping for a complete cure for you!
by Claudine
Tue Nov 09, 2021 11:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan and Updates
Replies: 31
Views: 9295

Re: CT Scan and Updates

So he is going to do everything he can to fix me up. November 30th, wish me luck.


Here's to a successful resolution to your problems - you may not be able to gorge for Thanksgiving yet, but hopefully you can enjoy eating again for the Holiday season!

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