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by Claudine
Wed Jul 20, 2022 1:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: About 4 years ago...
Replies: 13
Views: 2338

Re: About 4 years ago...

Thanks Riki! Luggage supposed to be delivered any minute, phew!

Can’t say much regarding your 2 vs 3 weeks Folfiri - DH had it every two weeks I believe, we were never aware 3 was an option.
by Claudine
Wed Jul 20, 2022 2:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: About 4 years ago...
Replies: 13
Views: 2338

Re: About 4 years ago...

Quick update. DH finished his 5.5 weeks of chemoradiation. Overall it went fine, except the last week when radiation irritated something in his back causing unbelievable pain (akin to when he was first diagnosed with his lumbar met). To the point that the radiation oncologist scheduled an MRI, she w...
by Claudine
Wed Jul 20, 2022 1:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for hope
Replies: 35
Views: 10662

Re: Looking for hope

Dear Husbandworried, I understand your feelings, but remember that CEA, like any blood measurement, varies, and 0.8 is still very much within the normal range which is < 3! Hopefully the upcoming scan puts all worries at rest and you get good news from it :D
by Claudine
Wed Jul 20, 2022 1:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Current Protocol——-All Thoughts/Criticism Welcomed
Replies: 173
Views: 22685

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Wow I haven’t been on the forum for a while and it looks like I missed a lot, especially with regards to pfccr’s treatment - I thought he was about to start some very promising things?? Do I understand right that they won’t be available unless he agrees to some chemo? This is such a personal decisio...
by Claudine
Tue Jun 21, 2022 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Increasing CEA
Replies: 26
Views: 4065

Re: Increasing CEA

Was you husbands tumor in a new location or was it a recurrence? We'll never know! His primary tumor wasn't found when he was first diagnosed 4+ years ago, so this rectal one could either be a second primary (the onc's opinion), or it could be the original primary that finally became large enough t...
by Claudine
Tue Jun 21, 2022 1:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Increasing CEA
Replies: 26
Views: 4065

Re: Increasing CEA

Hi Dennis, Sorry about the increase... It's so nerve wrecking :( One thing I'd ask your doc is whether you should get a PET scan instead of the usual CT. My husband had a series of "clear" CT scans despite high CEA values, and it took a PET to find a tumor in his rectum - it was most likel...
by Claudine
Mon Jun 20, 2022 9:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Children Monitoring
Replies: 11
Views: 1409

Re: Children Monitoring

That's a really good thing to do; my daughter has digestion issues and given her dad's history (Crohn's disease and now rectal cancer) I think she should get a colonoscopy/meet with a GE doc sooner than later. I hope your daughter's tests come back clear!
by Claudine
Thu Jun 16, 2022 5:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Current Protocol——-All Thoughts/Criticism Welcomed
Replies: 173
Views: 22685

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

That's great, this looks like a very promising approach, I really hope it works for you!
by Claudine
Thu Jun 16, 2022 5:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic mutations
Replies: 44
Views: 5362

Re: Genetic mutations

Hi Lo-oc, My husband is smack in the middle of this (finishing week 3 out of 5). He gets IMRT radiation every morning 5 days/week and takes 3 capecitabine pills twice a day (once morning once evening). So far it hasn't been too bad, he had Xeloda before which caused hand-and-foot syndrome but that h...
by Claudine
Tue Jun 14, 2022 9:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Current Protocol——-All Thoughts/Criticism Welcomed
Replies: 173
Views: 22685

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

I'm so sorry your alternative protocol didn't work out, pfccr, albeit not completely surprised - when you see that even pure poison (aka chemo) is often not enough... BUT it seems like you've got a good plan in place, SBRT works very well on lung mets. I am not familiar with opdivo/yervoy, hopefully...
by Claudine
Mon Jun 13, 2022 1:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Current Protocol——-All Thoughts/Criticism Welcomed
Replies: 173
Views: 22685

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Thinking of you today prayingforccr, I hope you get good scan results XXXXX
by Claudine
Thu Jun 09, 2022 11:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To the newly diagnosed
Replies: 7
Views: 1486

Re: To the newly diagnosed

Do not give up hope. Stage 4 cancer diagnosis is not a death sentence. To me, being NED is part of the waiting game. Keep a cancer recurrence at bay as long as possible until newer and better treatment becomes available. Be prepared to play 'wack-a-mole' with recurrences until a cure happens. We're...
by Claudine
Thu Jun 09, 2022 10:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage3B - first year review
Replies: 19
Views: 3504

Re: Stage3B - first year review

Fantastic news, you're on the right track :D :D :D
by Claudine
Fri May 20, 2022 10:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: About 4 years ago...
Replies: 13
Views: 2338

Re: About 4 years ago...

Thanks all! Yes, living with cancer isn't easy, but it is still living, and thank goodness there are enough wonderful moments to balance the more challenging ones. Riki, I concur with your wife; so far sexual intimacy hasn't been an issue for us but should it become difficult for DH to "perform...
by Claudine
Fri May 20, 2022 10:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 15 year anniversary clean!
Replies: 10
Views: 2657

Re: 15 year anniversary clean!

Fantastic :D :D
Thanks for dropping by!

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