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by Rock_Robster
Wed Feb 14, 2024 9:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Re: New guy with old questions.
Replies: 35
Views: 2675

Re: New guy with old questions.

This was the main source I was looking at when convincing my surgeon to complete a lymphadenectomy of the celiac nodes. Encouraging results but only a quite small cohort unfortunately. https://www.sciencedirect.com/science/article/pii/S1015958415001244 This is also a good piece I referenced which co...
by Rock_Robster
Mon Feb 12, 2024 12:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Re: New guy with old questions.
Replies: 35
Views: 2675

Re: New guy with old questions.

I guess everyone has to make their own decision here based on risk and benefit, but I’m inclined to agree with RP that a 2-3 month chemo break before surgery is more risk than I’d probably be prepared to take on. A month is quite normal, and I’d probably be ok with stretching it a couple of weeks fu...
by Rock_Robster
Sat Feb 10, 2024 8:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please critique my protocol
Replies: 7
Views: 380

Re: Please critique my protocol

Well it’s quite personal as you need to make your own decision based on the benefits vs risks, and what you’re prepared to commit to both in terms of pill burden and financially (some of those are not particularly cheap, especially the compounded meds). But I’d say they’re all worth looking at. For ...
by Rock_Robster
Fri Feb 09, 2024 6:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please critique my protocol
Replies: 7
Views: 380

Re: Please critique my protocol

All looks very reasonable to me. You might be interested in some of the studies around fasting, which suggested that ~13 hours was the point at which they saw potential impacts on cancer outcomes (studied in breast cancer). I don’t know if moving more toward a 16/8 is practical for you? Have you gi...
by Rock_Robster
Thu Feb 08, 2024 11:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please critique my protocol
Replies: 7
Views: 380

Re: Please critique my protocol

All looks very reasonable to me. You might be interested in some of the studies around fasting, which suggested that ~13 hours was the point at which they saw potential impacts on cancer outcomes (studied in breast cancer). I don’t know if moving more toward a 16/8 is practical for you? Have you giv...
by Rock_Robster
Mon Feb 05, 2024 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea after surgery
Replies: 4
Views: 513

Re: Cea after surgery

Mine was ~14 pre-op and had dropped to <2 when we tested a couple of months after surgery (maybe 8 weeks?), but that does mean I can’t tell you exactly how fast it got to ‘normal’. Of course surgery itself is a highly inflammatory process so this could also confound CEA results. Are you tracking CRP...
by Rock_Robster
Sun Feb 04, 2024 8:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pleural effusion management
Replies: 3
Views: 598

Re: Pleural effusion management

Gosh, Wish I could contribute (especially after all the help you've provided for me), But i just don't know enough ... I did a bit of research and tried to find something but everything just seems to what you already know , diet, exercise, breathing exercises, also read acupuncture could help if sy...
by Rock_Robster
Sun Feb 04, 2024 8:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung mets cough
Replies: 16
Views: 5502

Re: Lung mets cough

I hope your cough is better. I suffer from dry cough, use 4L of oxygen at night and have at least three areas of atelectasis. I use oral hydrocodone when sick but find the most relief from my ultrasonic humidifier with breathing friendly organic essential oils. I can’t sleep without it now. It is a...
by Rock_Robster
Sat Feb 03, 2024 4:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pleural effusion management
Replies: 3
Views: 598

Pleural effusion management

So last scan results were pretty good, albeit a bit hard to interpret as the radiologist reported against the wrong comparison scan which meant an extra month off-treatment was included at the start of the interval. So we need to get that fixed. But overall, nothing too threatening at present and th...
by Rock_Robster
Thu Feb 01, 2024 9:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurring
Replies: 20
Views: 3578

Re: Recurring

Thamks, utahgirl! I was reviewing scan report again and noticed something I've never seen noted ever before. Stated: Backgound normal hepatic SUVmax (based upon bodywieght gm/ml: 1.8. This is noted before the reading of scan. Lesional SUVmax noted below if relevent. Anyone else ever seen this prere...
by Rock_Robster
Thu Feb 01, 2024 11:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Average time on folfiri avastin
Replies: 3
Views: 589

Re: Average time on folfiri avastin

The median time to progression on FOLFIRI+Bev is more like 10 months, but that’s a pretty meaningless figure as there are a decent cohort of patients who are able to stay on it for several years (and indeed some that unfortunately progress within a few months or don’t respond at all). The issue here...
by Rock_Robster
Fri Jan 26, 2024 6:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To set a goal or not set a goal; that is the question.
Replies: 7
Views: 875

Re: To set a goal or not set a goal; that is the question.

My wife and I make plans or perhaps ‘ambitions’ rather than goals. The key difference being recognising where the locus of control truly lies, and making sure you aren’t setting yourself up for disappointment if you’re unable to do something in spite of your best efforts. Bigger things - we book a l...
by Rock_Robster
Fri Jan 26, 2024 8:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Re: New guy with old questions.
Replies: 35
Views: 2675

Re: New guy with old questions.

Also it’s a small thing but I’m going to be pedantic as accuracy matters with these things - worth checking if you’re doing FOLFIRINOX or FOLFOXIRI. It’s the same drugs but the dosages are different; the former is usually used in pancreatic cancer and the latter more so in colorectal cancer.
by Rock_Robster
Thu Jan 25, 2024 6:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Joint pain whilst on Avastin?
Replies: 6
Views: 839

Re: Joint pain whilst on Avastin?

I’m not aware of any hard rule that says you have to stop Avastin with a clot, although its use can certainly increase the risk of a clot forming. If the clot is not large then the usual treatment is just to start daily blood thinners, which stop its growth such that the body can then break it down ...
by Rock_Robster
Thu Jan 25, 2024 4:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Joint pain whilst on Avastin?
Replies: 6
Views: 839

Re: Joint pain whilst on Avastin?

Hi lovely people Hope everyone is doing alright. My partner has been experiencing ankle pain intermittently over the past few weeks. I’ve read that Avastin can cause joint pain. Wondering if anyone has experienced similar and any advice to alleviate the pain? Is he only on Avastin? It depends a lot...

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