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by ASTEPHENS33
Sun Dec 15, 2024 3:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cryo-ablation side effects
Replies: 0
Views: 502

Cryo-ablation side effects

A friend had a cryo-ablation procedure about a week ago. A carcinoma on the posterior side of the Left kidney was ablated. The procedure went fine and the lesion was removed. However, the day after surgery, she started having numbness of her upper Left Quadricep, and her lower abdomen (diaphragm to ...
by ASTEPHENS33
Wed Jun 28, 2023 4:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colopgaurd positive
Replies: 3
Views: 1292

Colopgaurd positive

What do you people know and recommend if you get a positive cologuard? Have a colonoscopy scheduled. Am thinking of a CEA blood test.
by ASTEPHENS33
Mon Aug 29, 2022 12:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post-surgery bowel movement again
Replies: 2
Views: 1753

Post-surgery bowel movement again

I know there are lots of posts on this topic, but too many for me to correlate right now (surgery last Thursday), so thought I would just re-post again and ask for advise. Does this seem safe? Any other suggestions? - Miralax - 17g/standard dosage - twice a day - take mroe or less? - Ducosate sodium...
by ASTEPHENS33
Tue Aug 23, 2022 11:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SBR for metasticized colon cancer in lung
Replies: 6
Views: 3061

SBR for metasticized colon cancer in lung

Anyone hae experience with this? Side effects? Any tips on how to handle it? Colon cancer had gone into the lungs and after 3 years has started to grow. The plan is to do SBR radiation and then chemo. Thanks.
by ASTEPHENS33
Thu Sep 16, 2021 2:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Have a direct impact on the future of colorectal cancer.
Replies: 0
Views: 6920

Have a direct impact on the future of colorectal cancer.

If you have ever been diagnosed with colorectal cancer, join a nationwide movement of patients to contribute your samples, your medical records, and your voice to colorectal cancer research. Together, we can speed the development of future therapies. History and Milestones Count Me In (CMI) began wi...
by ASTEPHENS33
Sat Jun 05, 2021 11:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Metastisis Testing
Replies: 3
Views: 1476

Re: Lung Metastisis Testing

It has grown. Talking to the doctor on Wednesday about next steps. Hope you’re ok, too. I’m posting for a friends actually
by ASTEPHENS33
Sat Jun 05, 2021 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Metastisis Testing
Replies: 3
Views: 1476

Lung Metastisis Testing

8mm tumor on lung. Do they normally do a biopsy or just monitor?
by ASTEPHENS33
Sat Aug 25, 2018 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diet, Exercie, and Recurrence/Prevention
Replies: 7
Views: 2108

Diet, Exercie, and Recurrence/Prevention

https://academic.oup.com/jnci/advance-article-abstract/doi/10.1093/jnci/djy098/5038128?redirectedFrom=fulltext - I saw this article and thought it was really good. You probably have seen it. I know there is a correlation with good diet and exercise, but haven't seen such a thorough study before. Loo...
by ASTEPHENS33
Sat May 05, 2018 11:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA increasing trend
Replies: 14
Views: 4643

Re: CEA increasing trend

My oncologist tested my cea each time they did blood work during chemo. I think it often goes up during chemo as the cells are giving off antigens. It’s measured as an indicator not as an absolute diagnostic. My cea got up to about 7 and it stayed up longer than is normal. It’s now under 1 and I’ve ...
by ASTEPHENS33
Sat May 05, 2018 5:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA increasing trend
Replies: 14
Views: 4643

Re: CEA increasing trend

I am not sure why the Cologaurd test is not used in these situations. Cologuard is used for general colon screening. You send in your poop and it measures the DNA to say if there is cancer in your system. For high risk people, its not a good way to screen, as once cancer is detected its not good. Bu...
by ASTEPHENS33
Sat May 05, 2018 10:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemotherapy Sensitivity and Resistance Assays
Replies: 7
Views: 1905

Chemotherapy Sensitivity and Resistance Assays

Has anyone had any experience or thoughts on tumor testing to see if its worthwhile doing chemotherapy? From https://csn.cancer.org/node/145884: Chemosensitivity assay is a laboratory test that determines how effective specific chemotherapy agents are against an individual patient's cancer cells. Of...
by ASTEPHENS33
Fri May 04, 2018 10:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 845
Views: 478219

Re: For Stage III's: NED for how long now?

I was diagnosed in 2005 and am still NED. I do have colonoscopies every year and endoscopies every 3-5 years. I had genetic testing done, and I do have the mutation for AFAP. Glad to see ALL the survivors!
by ASTEPHENS33
Mon Jul 17, 2017 8:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Prepopik - colonoscopy prep
Replies: 4
Views: 2327

Re: Prepopik - colonoscopy prep

The pills are called osmoprep. I have yearly colonoscopies and is what I use. They are reasonably easy to swallow and then you drink lots of water. Insurance doesn't cover most of the cost, though. I'm out of pocket about $200, but its worth it to me. Might try the prepopik next time. More expensive...
by ASTEPHENS33
Sun Jul 16, 2017 1:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Prepopik - colonoscopy prep
Replies: 4
Views: 2327

Prepopik - colonoscopy prep

http://www.prepopik.com/?utm_source=goo ... =DTC_Brand - I just heard about this from someone else that gave it high marks. I need to have colonoscopies yearly, so am always interested in easier preps. Anyone else have experience?

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