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by deanfromuk
Sat Nov 10, 2018 6:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RED, irritated face with Irinotecan + Vectobix
Replies: 6
Views: 979

Re: RED, irritated face with Irinotecan + Vectobix

Ask for doxycycline (also supposedly it has a reasonable anti cancer effect due to targetting mitochondria) and just try natural moisurizing creams until you find one that suits him. My mom was given Pliazone cream which worked OK then she switched to a wide variety and is still settling on a favour...
by deanfromuk
Sat Nov 10, 2018 5:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV to NED in 9.5 months!
Replies: 12
Views: 2021

Re: Stage IV to NED in 9.5 months!

Wonderful for you, a blessing and a half!
by deanfromuk
Sat Nov 10, 2018 5:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4. Anyone experienced failure of Folfiri but a good response with Folfox / 2nd line?
Replies: 1
Views: 744

Stage 4. Anyone experienced failure of Folfiri but a good response with Folfox / 2nd line?

Hi everyone hope you are doing well, my mom is stage 4 large adenocarcinoma on her ascending colon with metastasis throughout her abdomen, nothing liver or lung. She started folfiri with cetuximab / erbitux but after 3 rounds she had severe back pain (turnd out a small spinal met caused a minor vert...
by deanfromuk
Mon Sep 10, 2018 3:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How Much Did You Sleep After Chemo? Chemo experiences :)
Replies: 7
Views: 1455

Re: How Much Did You Sleep After Chemo? Chemo experiences :)

I would get chemo on Wednesday’s. I felt good on Wednesday and Thursday because of all the steroids they gave me. I pretty much slept from Friday afternoon until Monday morning. Chemo is very hard on the body. I would sleep 10 hours, and be exhausted after being awake an hour and sleep like 6 more ...
by deanfromuk
Mon Sep 10, 2018 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How Much Did You Sleep After Chemo? Chemo experiences :)
Replies: 7
Views: 1455

How Much Did You Sleep After Chemo? Chemo experiences :)

So my dear old mum 58, stage 4 adenocarcinoma on her ascending colon with mets around her abdominal cavity and a lesion on her sigmoid colon had her first chemo Friday (folfiri and cetuximab) she took it well until Sunday where she felt a bit strange, some metallic taste in her mouth and bit of chem...
by deanfromuk
Sun Aug 26, 2018 7:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folic acid / folate and 5FU dangers, L-glutamine and asian mushrooms - some questions
Replies: 8
Views: 1434

Re: Folic acid / folate and 5FU dangers, L-glutamine and asian mushrooms - some questions

Our usage is somewhat different, 24x7 oral 5FU, intensified by other milder drugs and natural molecules, rather than 5FU cyclical with iri- or oxi-. We don't use as much glutamine as oncologists recommend for Folfiri patients do. It isn't needed in such great quantitities - covered also by IV vitam...
by deanfromuk
Sun Aug 26, 2018 7:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folic acid / folate and 5FU dangers, L-glutamine and asian mushrooms - some questions
Replies: 8
Views: 1434

Folic acid / folate and 5FU dangers, L-glutamine and asian mushrooms - some questions

Thanks to a heads up by rp1954 i have been reading up on his monumental journey with her partner and also the dangers of folate with 5FU and how it drastically cuts the potency of the chemo https://www.ncbi.nlm.nih.gov/pubmed/27175995 and the aforementioned toxicity. I have read through many of the ...
by deanfromuk
Sat Aug 25, 2018 5:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mum Just Diagnosed Stage 4 - folfiri + cetuximab soon, sage advice please about supplements and diet
Replies: 7
Views: 1496

Re: Mum Just Diagnosed Stage 4 - folfiri + cetuximab soon, sage advice please about supplements and diet

Hi , Form what you have quoted from the report I would be linking in with one of the HIpec centres . Christies has some very experienced surgeons in that field and will give her a consultation. That would be our starting point . To be honest I am not sure how you go about getting other blood panels...
by deanfromuk
Fri Aug 24, 2018 5:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mum Just Diagnosed Stage 4 - folfiri + cetuximab soon, sage advice please about supplements and diet
Replies: 7
Views: 1496

Re: Mum Just Diagnosed Stage 4 - folfiri + cetuximab soon, sage advice please about supplements and diet

Thanks for the warm welcomeguys and great news about your mum Court , mine can walk about a mile (to her gp) and get up the stairs but exercise is out of the question for a while, pain from her stoma and the operation lingering a bit. Calories def an issue for us too, smoothies are a good source and...
by deanfromuk
Fri Aug 24, 2018 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mum Just Diagnosed Stage 4 - folfiri + cetuximab soon, sage advice please about supplements and diet
Replies: 7
Views: 1496

Mum Just Diagnosed Stage 4 - folfiri + cetuximab soon, sage advice please about supplements and diet

Hi all, just found this forum and have to say what a godsend to know such a supportive and knowledgable place exists my head has been spinning last few weeks. My mum is 58 and was diagnosed with IBS but after being rushed to hospital early July they found a cancerous adenocarcinoma 2-3 inches in siz...

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