May I ask why Avastin was not part of the treatment plan ? My moms situation at the moment is waiting for a Guardant test to check for mutations and then proceed with possibly rechallenging Folfox + Vectibix or Lonsurf + Avastin. CEA has also been a good indicator for her as well John had two surge...

He just finished his first round, which he weathered pretty well with only some fatigue. I know that will build up as the treatments go along, but I'm glad it's not too bad yet. His blood work looks OK considering (still has anemia, but it doesn't look worse which is good), but his CEA is still goin...

Hi. I am new here, and have never posted. But I have been looking at other members’ posts to get information from others going through similar experiences. I “friended” Crikkelkay because I was hoping to send a direct message, but the site won’t allow that (I need to make a couple of posts first). ...

I’m sorry it has been a hard few months. I can relate as I’m currently undergoing chemo treatment after another recurrence. In the fall of 2022 shortly after being diagnosed with stage 3 rectal cancer, I started taking Lonsurf as part of a trial. I was told that it was usually given to stage IV col...

Hi Crikklekay, Have you tried seeking a second opinion of surgeons specialising in Peritonectomy/HIPEC/Cytoreductive surgery. My late husband had a a total colectomy - his entire colon was removed, along with a whole heap of stuff - under this specialised surgery. General surgeons often don't have ...

It has been a very hard few months. Long story short, second reoccurrence of his cancer that is currently inoperable because they would need to remove most/all of his colon to get it and they are worried about further spread than they can currently see. The plan is to do treatment, hope it shrinks t...

It has been 6 years since my husband’s colectomy, and his was an emergency surgery due to a obstruction so I don’t think it will be a one to one with your experience. We were in the hospital for a total of two weeks, but they kept him longer because he was popping a mystery fever in the evenings. In...

We recently got the kind that installs under the toilet seat because my husband couldn’t properly wipe after surgery. If the pressure is the issue it does have an adjustable knob, though we only use it on the lowest setting as any higher and the pressure is intense! We haven’t noticed any issues, bu...

I’m just seeing this, I didn’t get an email showing a reply! I had read that somewhere at some point, but I didn’t know it could cause blood loss. He’s having surgery tomorrow so that will hopefully provide some answers. Thank you for the suggestion!

We’ve had a year. First severe iron deficient anemia out of nowhere, but couldn’t find the cause. We did a pill cam that got stuck and had to be removed with surgery, and that’s when the surgeon found a mesenteric mass stuck to the small intestines causing a narrowing which is why the pill cam got s...

My husband’s oncologist likes to remind us that he is a person not a number. She stresses to focus on John, and the goal of treatment with curative intent. Your husband is young, and hopefully in good health. He should be able to handle the surgeries and whatever treatment he receives after, unless ...

I'm back after two years, with not great news. My husband had sudden onset severe anemia so we've spent the last few months trying to figure out where the bleed is located. The last test was a pill cam to look at the small intestine and it got stuck. He even landed in the hospital with a bowel obstr...

Hello! Sorry to pop in on such an old thread, but I wanted to see how your husband is doing, and how you guys dealt with the proteinuria? We just landed in the same boat, and I'm terrified they will want to stop the Avastin. We're waiting to hear how his oncologist wants to handle it. The Avastin is...

John's MRI came back with a shadow on it, which he said could be something or could be nothing. He suggests continuing his chemo for another two months and then do a new MRI, if that one comes back looking good then switching him to Xeloda/Avastin for a few months since he says those two work well t...

This isn’t in human trials yet but exciting: https://news.rice.edu/news/2022/drug-fa ... ancer-mice