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by lovelife789
Sun Sep 20, 2020 5:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery or no?
Replies: 23
Views: 4861

Re: Surgery or no?

Congrats Rachel!! You have worked so hard in the past year :) wish you speedy recovery after surgery!!!
by lovelife789
Wed Sep 16, 2020 6:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 375
Views: 92780

Re: My CRC with liver mets journey

I'm glad the new doctor works out for you. A lot of respect for your attitude on the potential "chemo for life" direction. I'm sure it is just what they see right now, everything changes so quickly and they don't have a crystal ball. I was also given by my Dr at MSK a 'definitely' chemo fo...
by lovelife789
Tue Sep 15, 2020 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stg 4 para aortic and Iliac Lymph Nodes
Replies: 41
Views: 9485

Re: Stg 4 para aortic and Iliac Lymph Nodes

I’m in recovery from surgery today. The PET scan just before showed the maintenance chemo had held me stable For three months. The surgeon said it went well and they removed a lot of nodes. I was reading up on surgical options for lymph nodes and found this example of a patient with multiple lymph ...
by lovelife789
Mon Sep 14, 2020 6:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda Avastin Maintenance Plan
Replies: 22
Views: 2562

Re: Xeloda Avastin Maintenance Plan

Hi Riki, I have no long term experience with XELODA to share. Glad that you can tolerate it well. But my experience with CEA can be of reference somehow. My CEA jumped during FOLFOX's second/third infusion. It jumped from low 20s to high 30s. Was told it is normal for chemo-caused CEA jump to not sh...
by lovelife789
Mon Sep 14, 2020 6:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stg 4 para aortic and Iliac Lymph Nodes
Replies: 41
Views: 9485

Re: Stg 4 para aortic and Iliac Lymph Nodes

Hi All, Today I had my 8th cycle of folfox and avastin and I had a hypersensitivity reaction to oxaliplatin just 15-20 minutes after infusion started. They had to stop chemo and I was given Benadryl and steroids. The fellow who came to see me called my oncologist who decided to only continue with L...
by lovelife789
Sun Sep 13, 2020 12:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To my CC family
Replies: 21
Views: 2880

Re: To my CC family

I'm so sorry :( my thoughts and prayers are with you.
At least, we know he is at peace, no more sufferings.

Hugz.

Lovelife
by lovelife789
Wed Sep 09, 2020 3:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stg 4 para aortic and Iliac Lymph Nodes
Replies: 41
Views: 9485

Re: Stg 4 para aortic and Iliac Lymph Nodes

I’m in recovery from surgery today. The PET scan just before showed the maintenance chemo had held me stable For three months. The surgeon said it went well and they removed a lot of nodes. I was reading up on surgical options for lymph nodes and found this example of a patient with multiple lymph ...
by lovelife789
Wed Sep 09, 2020 5:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stg 4 para aortic and Iliac Lymph Nodes
Replies: 41
Views: 9485

Re: Stg 4 para aortic and Iliac Lymph Nodes

No two of us are the same its true. I can tell you that my spread was the right and left Illiac nodes all the way up to the Para-aortic nodes and chemo worked well on them for years. I also know of people who, given the right systemic chemo treatment have seen many nodes wiped out. Is it the most l...
by lovelife789
Thu Sep 03, 2020 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 44
Views: 6439

Re: Blood clots and low oxygen and hospice OH MY

I'm so sorry for the sad news. Sending love and lots of prayers to you. :cry:
by lovelife789
Thu Sep 03, 2020 6:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stg 4 para aortic and Iliac Lymph Nodes
Replies: 41
Views: 9485

Re: Stg 4 para aortic and Iliac Lymph Nodes

Hi AT, Been reading your posts as mCRC patients with PALN spread is not common, I was trying to read some stories with positive energy and I saw yours :) I have been trying to convince my doctor to do maintenance chemo with no luck. They said they don't do maintenance chemo there as researches did n...
by lovelife789
Fri Aug 28, 2020 10:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 375
Views: 92780

Re: My CRC with liver mets journey

I'm so happy for your good scan!! Been watching your journey and you have been so brave. I remember you absolutely hate your targeted therapy, but you toughed through it with such grace. Good luck to you! Btw, I was cursing when I saw what happened to your husband. Your husband's ex working partner ...
by lovelife789
Fri Aug 28, 2020 10:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Black Panther Actor Dead at 43
Replies: 14
Views: 2487

Re: Black Panther Actor Dead at 43

I read and am in complete shock :( :( :( respect to him for living LIFE despite the disease ... A true hero filming Black Panther while fighting CRC :shock:
by lovelife789
Sun May 24, 2020 3:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celebrating 10 years since my Stage IV DX!!!!!
Replies: 24
Views: 5572

Re: Celebrating 10 years since my Stage IV DX!!!!!

Wow your story is amazing!gives lots of us hope :D
May I know what nodes did you have mets?

Thanks in advance for sharing :P
by lovelife789
Sun May 24, 2020 11:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: very rough day post Folfiri + Avastin
Replies: 10
Views: 1259

Re: very rough day post Folfiri + Avastin

Yes, it is my only time taking avastin. It is so easy (had erbitux before which gave me breakouts from head to toe), only runny nose. But my platelet did not climb back to normal level for a long time. I finished in Nov 2019 :D :D .
by lovelife789
Sat May 23, 2020 1:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: very rough day post Folfiri + Avastin
Replies: 10
Views: 1259

Re: very rough day post Folfiri + Avastin

I'm doing well :) minor recurrence but no treatment for now. Enjoying life :P What I did back then was I would always have fresh lemon with me. Whenever I felt like committing, I would cut it open and sniff the lemon. Of course I had all the anti nausea medication in the world too (some gave me cons...

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