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by NHMike
Fri Nov 20, 2020 3:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1727
Views: 434276

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I'm still taking the Kombucha and just bought a package of Garden of Life Probiotics for men over 50. They are marketed as 85 billion live cultures and a wide variety of cultures. Most have around 1 to 2 billion. Of course I don't know if more is better. The daily does is three capsules so I'll star...
by NHMike
Wed Nov 11, 2020 11:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda Avastin Maintenance Plan
Replies: 22
Views: 2563

Re: Xeloda Avastin Maintenance Plan

Rikimaroo wrote:Sixth cycle starts today.

CEA is 16....WTF.

CT scans clear NED. Doctor is not concerned by CEA but we do a pet scan maybe next time in February.


That's pretty high. My doctor said he worries in the high-teens but mine was a lot lower than that when he ordered a CT. We're all different.
by NHMike
Tue Oct 27, 2020 1:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda Avastin Maintenance Plan
Replies: 22
Views: 2563

Re: Xeloda Avastin Maintenance Plan

I was on Xeloda for a little over six months and my CEA rose through treatment. I attributed to an increasing exercise load but it could have been the Xeloda as well. The oncologist was worried enough by it that he ordered a CT scan in the last month.
by NHMike
Tue Oct 27, 2020 5:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New stage 4 colon cancer diagnosis
Replies: 19
Views: 2603

Re: New stage 4 colon cancer diagnosis

After bugging the oncologist about the testing results, I finally got a copy of them. The results say that my husband's tumor is MSS, low TMB, with mutations in APC, PIK3R1, and TP53. No mutations in KRAS or BRAF. Based on what I've read on this message board and elsewhere, this means that the canc...
by NHMike
Tue Oct 27, 2020 5:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1727
Views: 434276

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I have tried Kirkland which is a Ginger Lemon flavor and I believe that Sujo is the supplier. I also have a Sujo Blood Orange Ade (it's fizzy) that I like. It does not guarantee a cleanout the first day. That happened the first time I tried it. This second time, it was on the second day. But it was ...
by NHMike
Mon Oct 26, 2020 1:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1727
Views: 434276

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Hi Mike, I enjoyed making kumbacha before my diagnosis but lost the taste for it during treatment. I may have to try it again. I haven’t had the need to crush the system too often but it is nice to know that that might do it! Hope you are enjoying your retirement. I am a year away from when I can r...
by NHMike
Sat Oct 24, 2020 4:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1727
Views: 434276

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The Kombucha works quite well - I just have to drink 1/4 bottle for it to do its thing. Maybe two bottles a week. I'd like to buy it at Costco but it would take up a lot of space in the fridge. One option would be to get a mini-fridge in the basement - which I'm thinking about.
by NHMike
Wed Oct 21, 2020 6:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is W&W an option for a partial response
Replies: 24
Views: 2429

Re: Is W&W an option for a partial response

At MSK, the doctor there suggested to do the chemotherapy before surgery because they have observed complete clinical response in patients that have residual tumors post radiation. You are going to have to do the chemo anyway. I’d much happier I did it pre surgery when I functioned normally. Doctor...
by NHMike
Wed Oct 21, 2020 5:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please Help With Weight Loss/Endless Painful Constipation
Replies: 24
Views: 2248

Re: Please Help With Weight Loss/Endless Painful Constipation

Going into this, a permanent colostomy is a terrifying idea, and the last thing anyone wants. It's an immediate emotional, visceral response. But usually, with education, positions will shift. Because it's not just a choice between LARS and a bag. It can be the choice between a bag or Stage IV. Or ...
by NHMike
Wed Oct 21, 2020 5:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1727
Views: 434276

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I picked up some Sujo Kombucha today. I really like the Costco Kombucha (Ginger Lemon) but they sell it in 8-bottle boxes and that would be a lot of space in the fridge. A cup of that stuff will clean you out in about eight hours and I was thinking that it wouldn't be bad to get a cleanout once a we...
by NHMike
Wed Oct 21, 2020 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please Help With Weight Loss/Endless Painful Constipation
Replies: 24
Views: 2248

Re: Please Help With Weight Loss/Endless Painful Constipation

I'm sure there is another side to the story. I guess we all come to terms with our diagnosis in different ways and at a different pace with different life circumstances. Perhaps he/she simply needs some more time to go through the motions. When I was first diagnosed with the possibilities of a temp...
by NHMike
Tue Oct 20, 2020 6:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1727
Views: 434276

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I made well over a year's salary in trading profits in these three weeks. What I found is that my trading and investing is a lot better when I have more time to focus on it. NHMike , do you mind sharing what you did in August? I also have more spare time since September 1st. :( Just trading stocks.
by NHMike
Tue Oct 20, 2020 6:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Retrograde ejaculation
Replies: 10
Views: 5146

Re: Retrograde ejaculation

I had this after surgery (October 2017) and mentioned it to my surgeon and she suggested seeing a urologist. I found several others on another CRC forum that experienced the same thing. I had meant to go see a urologist but I really don't like going to see a doctor given that I've had a lifetime's s...
by NHMike
Tue Oct 20, 2020 4:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is W&W an option for a partial response
Replies: 24
Views: 2429

Re: Is W&W an option for a partial response

@Phillypatient I spoke to MSK today. Since I live in California, they recommended a hospital from the NCI network. It just so happens UCSF is very close to me. I tried calling numerous times and even left a message. But no one got back to me. Luckily I had a phone meeting with my PCP to go over my ...
by NHMike
Mon Oct 19, 2020 5:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1727
Views: 434276

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The Male functionality lost after the LAR appears to have started working today. There is an old thread on Colon Talk about it which I need to read up on. I also have to look through an anatomy book to see how things are supposed to work and I have a number of papers to go through on the subject. It...

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