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by JJH
Fri Jan 21, 2022 1:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC and Comorbidity, Part I: Bibliography
Replies: 4
Views: 3588

Re: CRC and Comorbidity, Part I: Bibliography

BUMP

Does anyone here have any thoughts or insights about the relationship between colorectal cancer and comorbidity?
by JJH
Fri Jan 14, 2022 3:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High AST, ALT, B12?
Replies: 7
Views: 1332

Re: High AST, ALT, B12?

Hi, JJH! Came back from the cruise and everything was great! The best part really, was that there was no Wi-Fi (actually, you could pay a gazillion dollars to get some slow Wi-Fi on the ship, which we declined), so we caught up on sleep, reading and talking… Sunnycd, I'm glad you had a nice cruise!...
by JJH
Tue Jan 11, 2022 10:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Preparing a facts & to-do-list for "newcomers"?
Replies: 37
Views: 9496

What information do you wish you had at the time of diagnosis?

There is a 2021 article in Fight CRC's magazine "BeyondBlue" that summarizes the unmet needs of newly diagnosed CRC patients, as discovered through several focus-group discussions. These unmet need categories are listed below, but they are not listed in any particular prioritized order. Ne...
by JJH
Sat Jan 08, 2022 4:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New lurker taking the leap to participant
Replies: 13
Views: 1413

Re: New lurker taking the leap to participant

Feb21 VATS I have a couple more questions: 1. For your VATS procedure last year, did the surgeon or the oncologist mention that this surgery was done with "curative intent" - - i.e., that this was considered to be the final treatment for you? 2. If so, did any of the doctors mention trans...
by JJH
Thu Jan 06, 2022 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Uptick From 3.3 to 3.4……..Any Cause For Alarm?
Replies: 3
Views: 614

Re: CEA Uptick From 3.3 to 3.4……..Any Cause For Alarm?

Oncologist was very non plussed, but unfortunately I live between scans and blood tests. Thank you for any input. This change sounds pretty small to me -- possibly even with the margin-of-error for the assay in question. In any event, I think it would help to have more information in order to put e...
by JJH
Wed Jan 05, 2022 1:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New lurker taking the leap to participant
Replies: 13
Views: 1413

Re: New lurker taking the leap to participant

abscess 7 wks hospital Would you be able to give a few more details about the onset and treatment of your abscesses? For example, did the two abscesses appear at the same time? Were they of the same type, i.e., both external, surgical-site related, or both internal organ-related abscesses? Were the...
by JJH
Tue Jan 04, 2022 3:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High AST, ALT, B12?
Replies: 7
Views: 1332

Re: High AST, ALT, B12?

Sunnycd wrote: ... Going on a cruise on Dec 26, which I optimistically booked in sept, before omnicrom. Now I am sort of hoping the cruise line will cancel, which obv they won’t. And I won’t cancel because it cost me an arm, a leg and some other body parts So, are you back from the cruise now? How ...
by JJH
Mon Jan 03, 2022 9:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New lurker taking the leap to participant
Replies: 13
Views: 1413

Re: New lurker taking the leap to participant

⋅  Comprehensive Medical History Form Here is a link to a 6-page comprehensive medical history form available on-line: Comprehensive Adult New Patient Health History Questionnaire https://www.sutterhealth.org/pdf/provider-forms/comprehensive-adult-new-patient-health-history.pdf As I menti...
by JJH
Sun Jan 02, 2022 8:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New lurker taking the leap to participant
Replies: 13
Views: 1413

Re: New lurker taking the leap to participant

Onedayatatime, Thank you for the detailed answers to my recent questions. Very informative. I would like to fill out your medical history with some of the important items that are still missing, but right now I am traveling and don't have time to create the list of your missing data items. When I ge...
by JJH
Fri Dec 31, 2021 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New lurker taking the leap to participant
Replies: 13
Views: 1413

Re: New lurker taking the leap to participant

Thank you for your replies and for your elaborate signature. From the statements you have made so far, there are several points that I find puzzling or hard to explain. First, I don't see how you could have had an obstructive T4 tumor at age 57 when you had just had a clear colonoscopy only a few ye...
by JJH
Tue Dec 28, 2021 12:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New lurker taking the leap to participant
Replies: 13
Views: 1413

Re: New lurker taking the leap to participant

... I only want to vent, and then to see if anyone of you can set me straight re my expectations .....If you’ve made it this far in the post, thank you, and I would love to hear your thoughts. Yes, I have some thoughts, but I also have a few questions, but first of all my thoughts... From what I un...
by JJH
Mon Dec 27, 2021 12:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Current Protocol——-All Thoughts/Criticism Welcomed
Replies: 24
Views: 1849

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Another comment. Your current protocol is different from the one you posted back in November 2020. https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=65089&p=506451#p506451 Is your new protocol actually a hybrid protocol designed to address COVID-19 in addition to cancer? I notice ...
by JJH
Sat Dec 25, 2021 3:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Current Protocol——-All Thoughts/Criticism Welcomed
Replies: 24
Views: 1849

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

1. Your updated, expanded signature (subject to correction) 11/2019: Colonoscopy at xx yrs 12/2019: Dx Stage 3C, T4bN2bM0, rectal cancer with a 6.6cm tumor invading the external anal sphincter. 12/2019: MSI status = MSI-H 12/2019: Baseline CEA = ??? 01/2020 - Start of TNT (Total Neoadjuvant Therapy)...
by JJH
Thu Dec 23, 2021 7:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New & Scared - Any Guidance Appreciated
Replies: 5
Views: 1001

Re: New & Scared - Any Guidance Appreciated

New & Scared - Any Guidance Appreciated ...Any help so appreciated as the holidays plus this = extreme stress... As others have said already, your situation has not been diagnosed as cancer right now, so, for now, you should try to focus on having an enjoyable time over the holidays. There is n...
by JJH
Wed Dec 22, 2021 8:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High AST, ALT, B12?
Replies: 7
Views: 1332

Re: High AST, ALT, B12?

…Long story short, I am retaking the blood test in about 3 weeks, stopped all supplements, though none of them should have had an impact on liver (baby aspirin, turmeric, berberine, vitamin D, hair/nail/skin :), and I asked my oncologist to move up our appointment to Jan 3. … Could the supplements ...

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