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by CRguy
Fri May 10, 2024 1:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Old topic sorry. Advice for living w/ ileostomy?
Replies: 12
Views: 507

Re: Old topic sorry. Advice for living w/ ileostomy?

Thanks for tagging that in Rob !
A LOT of folks find the UOAA to be a great resource, I know a lot of permanent ostomates especially.

Cheers
CRguy
by CRguy
Thu May 09, 2024 8:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Conspicuity
Replies: 2
Views: 271

Re: Conspicuity

Have NOT had that exact wording in my reports ... which ARE many :shock: :twisted: BUTT ... the conspicuous aka conspicuity reference will relate to the visibility / discernibility / of what they are looking at VERSUS the visibility / discernibility of what is around it and the imaged background. In...
by CRguy
Thu May 09, 2024 8:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Old topic sorry. Advice for living w/ ileostomy?
Replies: 12
Views: 507

Re: Old topic sorry. Advice for living w/ ileostomy?

Coming up on surgery on May 30th, 2024 and will end up with a temporary ileostomy for 4 months. Any advice from those that have already done this? WOW did you ever come to the right place !!!! :shock: :) There are SO many topics and posts here about this very issue, I really encourage you to search...
by CRguy
Thu May 09, 2024 8:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda, hand-foot, weight training gloves...?
Replies: 2
Views: 173

Re: Xeloda, hand-foot, weight training gloves...?

Eight years of on-and-off but mostly on chemo - and probably 8 years of aging - have done a number on my bones and I need to get serious about weight-bearing exercises beyond walking. I started working with weight machines but ended up with a very bad case of HFS from the friction caused by grippin...
by CRguy
Wed May 01, 2024 5:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trial update - VAXINIA CF33 - it’s over
Replies: 9
Views: 1360

Re: Trial update - VAXINIA CF33 - it’s over

Hey Rob sending strongest POSITIVE VIBES your way Hoping for a resolution to the issues at hand and a better path moving forward for you. Without trial participants we would never be able to move things along. Sorry you had to take one for the team BUTT ... you have the whole CTalk forum cheering yo...
by CRguy
Wed May 01, 2024 5:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lymphoid Aggregates
Replies: 2
Views: 322

Re: Lymphoid Aggregates

Hey SBL !!!!! Nice to hear from you and hoping there is nothing "interesting" going on with your results :( Your rheumatologist/immunologist and your GI doctor/oncologist should all be in the loop IMO. The more eyes on the issue = the better the view, as I believe the Sjogren’s would not b...
by CRguy
Sun Apr 21, 2024 11:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung nodules and genetic testing
Replies: 41
Views: 9293

Re: Lung nodules and genetic testing

I also have my genetic test results in a few days, what if i have lynch syndrome? Then again what IF you DON'T ???? Your own signature says Signature 29m Male. DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0 Stage III3B , Positive lymph nodes: (2/20) Baseline CEA value: 1.98 LVI and PNI: absent Surg...
by CRguy
Sat Apr 20, 2024 12:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy prep question
Replies: 3
Views: 4769

Re: Colonoscopy prep question

Best to check specifically with your scoping doctors and see what they say regarding the exact type of prep they are requiring you to use. In general experience with my scopes, they say any CLEAR liquids, no cloudy liquids, no dairy, no solids, no red/blue/purple colorings etc. for 24 hrs pre-scope....
by CRguy
Thu Apr 11, 2024 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: fecal control and odor
Replies: 3
Views: 2351

Re: fecal control and odor

Hey survivor12 We have previously had a number of topics regarding this issue on the forum, and roadrunner's post has some good suggestions to get more info for us. Please peruse this search list https://coloncancersupport.colonclub.com/search.php?st=0&sk=t&sd=d&sr=posts&keywords=fec...
by CRguy
Wed Mar 20, 2024 3:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need recommendations for a cream for neuropathy
Replies: 4
Views: 2847

Re: Need recommendations for a cream for neuropathy

You may wish to peruse some of the posts in this search result from the forum

search.php?st=0&sk=t&sd=d&sr=posts&keywords=cream+neuropathy

Best wishes
CRguy
by CRguy
Sat Mar 02, 2024 12:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I was so lucky to find this forum a decade ago
Replies: 4
Views: 2492

Re: I was so lucky to find this forum a decade ago

SO many wonderful, poignant and powerful remembrances here, my friend. Thank you for sharing them in your post. FYI Eric was my best friend here and we shared many valued times online and offline via phone chats. The true value of this forum, echoed in what your post says, IS ... that WE here are AL...
by CRguy
Tue Feb 27, 2024 12:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What stage am I
Replies: 2
Views: 1456

Re: What stage am I

What Stage has your oncologist told you ?
by CRguy
Mon Feb 26, 2024 7:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: "Chemo Brain"
Replies: 1
Views: 672

Re: "Chemo Brain"

There is a long history here of discussions ... SO ...
you may wish to use this forum search to get some perspectives from a LOT of CTalkers !

Forum Search for "chemo brain"

Best wishes
CRguy on the Journey
by CRguy
Mon Feb 26, 2024 4:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Perineural invasion
Replies: 9
Views: 1311

RE: Perineural invasion

Welcome to the forum. I am sure others will eventually chime in here BUTT ...
for now you may wish to browse some of the other posts from previous discussions.

Forum Search for perineural invasion posts

Best wishes to you
CRguy on the Journey
by CRguy
Mon Feb 26, 2024 12:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo induced anemia…
Replies: 2
Views: 804

Re: Chemo induced anemia…

Any tips on how to raise red blood count and haemocrit. That will depend upon the exact cause Last two blood draws, 2 weeks apart are showing lower than they ever have been. Around the 4.07 mark for RBC. What are the exact lab normals for your area ? Thanks in advance :) You may wish to consult wit...

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