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by zephyr
Sun Aug 01, 2021 6:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Grieving my past life and no one understands
Replies: 23
Views: 1117

Re: Grieving my past life and no one understands

It's so easy to go down the rabbit hole, and it doesn't take much to start the process: a melody, a voice, a scent. I don't know if this will help any .. I often have to remind myself that if I spend too much time thinking about what could be or what was , I'll miss what I have right now. It may sou...
by zephyr
Mon Jul 26, 2021 4:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for help
Replies: 2
Views: 302

Re: Looking for help

As Nor Cal mentioned, ask at your father's cancer center. His oncologist should be able to tell you if the cancer center has a nurse navigator or social worker who helps to coordinate services when patients need assistance. Also ask if there is a palliative home care service. Sometimes it will be co...
by zephyr
Wed May 26, 2021 7:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Savvy Gig for former smokers: $2,500 fee
Replies: 0
Views: 503

Savvy Gig for former smokers: $2,500 fee

This is a new Savvy opportunity for former smokers who have been diagnosed with a smoking related illness. Cancer is one listed, and there is a link between smoking and colon cancer, but I don't know if colon cancer qualifies. Anyway, if you're interested, check it out. It pays $2,500. https://gigs....
by zephyr
Wed May 26, 2021 11:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Normal or should we change doctors ?
Replies: 4
Views: 818

Re: Normal or should we change doctors ?

I'm not a doctor, nurse, or any kind of medical professional and this is based solely on my own experiences. First, where is the tumor? I think a second opinion, preferably from a major cancer center and an oncologist who specializes in GI cancers, is ALWAYS a good idea. That may be a good place to ...
by zephyr
Mon May 24, 2021 5:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Focus Group re Cancer: $100 fee
Replies: 0
Views: 536

Focus Group re Cancer: $100 fee

Saavy is recruiting for people living with cancer who have received treatment in the last 12 months. Here are the link and the details if you're interested: https://gigs.savvy.coop/cancertreatment/?r=creed Design review and user testing Multiple opportunities: 60-minute virtual interview 60-minute a...
by zephyr
Sun May 02, 2021 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-fu 200ml push - should I keep it?
Replies: 8
Views: 1217

Re: 5-fu 200ml push - should I keep it?

I don't think you will get the same effect from CBD alone but all you probably need is a touch of THC. The way one person explained it to me was like this: think of Michael Jordan and Scottie Pippin. All by themselves they are each superstars but put them together and the whole is greater than the s...
by zephyr
Fri Apr 30, 2021 3:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Recurrence Treatment Plan
Replies: 19
Views: 3078

Re: Lung Recurrence Treatment Plan

After the recurrence in my lungs, I went on Xeloda and Avastin.
by zephyr
Thu Apr 29, 2021 5:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: nausea
Replies: 10
Views: 1226

Re: nausea

I can't take the anti-nausea meds so it seems I've tried everything. I never had severe nausea but it was pretty constant and overwhelming at times, and then I would get dehydrated followed by dry heaves and it was a vicious circle. When I started taking an Ativan before bed, that helped me at night...
by zephyr
Thu Apr 29, 2021 12:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does "We" Drive Anyone Else Crazy?
Replies: 7
Views: 1731

Re: Does "We" Drive Anyone Else Crazy?

As someone else mentioned, I think it depends on the individual and circumstances. My husband uses "we" and "she" depending on the context. He has been right by my side the whole time, going to all appointments and infusions with me (until COVID restricted those), picking up my p...
by zephyr
Wed Apr 28, 2021 8:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Research Op for Stage 4 patients over 60 - $175
Replies: 0
Views: 1189

Research Op for Stage 4 patients over 60 - $175

Saavy is looking for participants for a research opportunity. I've found Saavy to be legit. Apparently they're finding it harder than they thought to fill spots for this one. They're looking for fluent English speakers over 60 with metastatic (solid tumor) cancer to participate in a 120 minute focus...
by zephyr
Wed Apr 28, 2021 1:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vitamin C infusion to help with neuropathy
Replies: 12
Views: 1234

Re: Vitamin C infusion to help with neuropathy

Our problem with home-baked goods is they get moldy faster than we can usually eat them. We store our bread in the freezer and then take out a few pieces as we need it. The slices don't take long to thaw. Just don't store it without first slicing it because I imagine cutting through a loaf of froze...
by zephyr
Wed Apr 28, 2021 1:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vitamin C infusion to help with neuropathy
Replies: 12
Views: 1234

Re: Vitamin C infusion to help with neuropathy

I don't want to be playing doctor or dietician without a license, just offering some things that helped me and might be worth a discussion with your doctor/nurse. Your mileage may vary. When I had a bad flare one time, my oncologist prescribed Triamcinolone Acetonide Cream UPS, 0.5% 15 grams . It wo...
by zephyr
Sun Apr 25, 2021 10:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vitamin C infusion to help with neuropathy
Replies: 12
Views: 1234

Re: Vitamin C infusion to help with neuropathy

What you're describing sounds more like hand foot syndrome (HFS) than neuropathy although you may have some neuropathy that's making the HFS worse. I receive Vitamin C infusions weekly and I'm not aware of it helping as much with HFS. In addition to the things you're already doing and what jts menti...
by zephyr
Tue Mar 09, 2021 7:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on daily Xeloda?
Replies: 13
Views: 3505

Re: Anyone on daily Xeloda?

Not quite what you asked but for almost 2 years I was taking Xeloda on Monday-Friday with weekends off and did great. I remember our favorite onc (that was you, wasn't it?) telling me that in Europe they take Xeloda every day with no issues. I suspect the folic acid supplemented in North American fo...
by zephyr
Sun Jan 17, 2021 4:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: VEGF and TGF beta 1
Replies: 5
Views: 1543

Re: VEGF and TGF beta 1

beach sunrise wrote:If you think about it and want to share please let me know about your bloodwork. I also have bloodwork coming up in 2 wks to see about IP6 working or not.

I'll PM you.

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