Diagnosed with colon cancer

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Posts: 3466
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Diagnosed with colon cancer

Postby DarknessEmbraced » Sat Feb 08, 2020 5:59 pm

Welcome to the group and I'm sorry for your diagnosis!*hugs* It's such a roller coaster especially when you're first diagnosed. I hope you won't have to wait long for test results and surgery. I found it helpful to bring a list of questions with me to appointments.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Posts: 417
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: Diagnosed with colon cancer

Postby Beckster » Sat Feb 08, 2020 6:22 pm

Welcome to the group! I was floored when I was diagnosed...no symptoms and perfect blood work. It was found during a routine colonoscopy. I know how you are feeling and so does everyone else in this group. When I asked the surgeon how this happened..he said it is 50% genetics and 50% environment. Once you get more detailed info, we are here to help you through this journey.
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
LN: 0/24
LVI present
Surgical margins: clear
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18, 6/19, 12/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8 6/20 3.0
Clear Colonoscopy 10/17, 11/19 :D

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Posts: 1539
Joined: Tue Apr 12, 2011 10:10 pm

Re: Diagnosed with colon cancer

Postby horizon » Sun Feb 09, 2020 11:17 am

Iyana271 wrote:The worst news I've ever heard this week is that I'm diagnosed with colon cancer. I got my biopsy results last week and the doctor said that I'm diagnosed with colon cancer. I'm just stunned that I've got this disease even after following a healthy style. I don't know what to expect after hearing this and what treatments I'll have to go through and how much time it will take to cure the disease.
Just hoping for the best!

I'm sorry you're going through this. I had a lot of anger when I was first diagnosed because I was so healthy and people I knew that didn't exercise or care what they ate were just living their life as normal. It seemed so unfair. You'll get a lot of support here.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 8 years NED). Is this real life?

Posts: 254
Joined: Tue May 22, 2018 4:04 pm

Re: Diagnosed with colon cancer

Postby Mohrfamily » Sun Feb 09, 2020 5:25 pm

My DH was 30 when diagnosed and its basically a violent shove into old age.

You're going to experience a wide range of emotions throughout your new roller coaster track of life, I know this and im just a sideline cheerleader for my big brave hubby also because I've had a wide array of emotions myself. The good news is you're not alone there's good people with great info, feedback, and often amazing advice.

One thing that helped me through the initial shock the first few months when I had negative thoughts/ feelings I wrote them down in a journal just to expel them from my constant thought. I wish you luck on your long road.
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI

Deb m
Posts: 558
Joined: Tue Jan 14, 2014 10:08 am

Re: Diagnosed with colon cancer

Postby Deb m » Mon Feb 10, 2020 10:39 am

We also were shocked when we heard the news. My husband also had a pretty healthy lifestyle. It's a hard think to accept. I always though cancer happened to other people, not me or my family. I was humbled!

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